b-u-b-b-l-e-girl.blogspot.com
Ehlers-Danlos Syndrome-Deal With It: Mombie...
http://b-u-b-b-l-e-girl.blogspot.com/2013/06/mombie.html
Wednesday, June 5, 2013. It's like a mom, but a bit more zombified. It's amazing how little sleep you can live on when you're a new mom, and an insomniac. When I do finally have an opportunity to sleep (like right now, as my tiny person has been asleep for 5 whole hours in a row! I am so horribly wide awake, and with the whole EDS/epinephrine. Thing, I couldn't sleep right now unless there was an elephant tranquilizer involved. Did you know. That babies are the best comedians? My tiny person has 1001 fac...
tensiletimes.blogspot.com
The Tensile Times: January 2012
http://tensiletimes.blogspot.com/2012_01_01_archive.html
Snippets of my day, about living well with a hidden disability known as Ehlers Danlos. Here I can be me, bent and broken in body but never in spirit. Tuesday, 31 January 2012. Its all about The Title and other random crap. So sorry but I really understand. Somedays I wonder if it would help if it would be better if mine were and I wrote to myself perhaps I would be able to bare my soul better that way. I am trying to think of a way to do it. To dear sherry - thank you. Here is a link to a moving piece of...
b-u-b-b-l-e-girl.blogspot.com
Ehlers-Danlos Syndrome-Deal With It: June 2013
http://b-u-b-b-l-e-girl.blogspot.com/2013_06_01_archive.html
Wednesday, June 5, 2013. It's like a mom, but a bit more zombified. It's amazing how little sleep you can live on when you're a new mom, and an insomniac. When I do finally have an opportunity to sleep (like right now, as my tiny person has been asleep for 5 whole hours in a row! I am so horribly wide awake, and with the whole EDS/epinephrine. Thing, I couldn't sleep right now unless there was an elephant tranquilizer involved. Did you know. That babies are the best comedians? My tiny person has 1001 fac...
tensiletimes.blogspot.com
The Tensile Times: March 2011
http://tensiletimes.blogspot.com/2011_03_01_archive.html
Snippets of my day, about living well with a hidden disability known as Ehlers Danlos. Here I can be me, bent and broken in body but never in spirit. Tuesday, 29 March 2011. Now I have worked out I can just post about this, that and the cat I feel less afraid. I can just come here write stuff, hit publish and off I go again. I knew this already really but I have a tendency to self limiting behaviours. Nb - It is actual fact that Ehlers Danlos Syndrome shares the same gene as the phobia gene. So there...
tensiletimes.blogspot.com
The Tensile Times: November 2011
http://tensiletimes.blogspot.com/2011_11_01_archive.html
Snippets of my day, about living well with a hidden disability known as Ehlers Danlos. Here I can be me, bent and broken in body but never in spirit. Wednesday, 23 November 2011. I know I know its all about campaigns again but I need to put this up. If just one person (I am afraid I think one must be from the UK) but nevertheless if just one person could sign the petition having read the link below it would make a difference. Please click on the link and Take Action - Thank you. Thursday, 17 November 2011.
tensiletimes.blogspot.com
The Tensile Times: October 2011
http://tensiletimes.blogspot.com/2011_10_01_archive.html
Snippets of my day, about living well with a hidden disability known as Ehlers Danlos. Here I can be me, bent and broken in body but never in spirit. Sunday, 16 October 2011. OH and I went away for a week. We didn't much care about the weather. We drank in some silence, peace and enjoyed doing nothing in particular. As I don't manage much at the best of times the change of scenery was fantastic. Its not that I am a fan of warships if that is what they are! Wednesday, 12 October 2011. Pass The Duct Tape.
tensiletimes.blogspot.com
The Tensile Times: November 2012
http://tensiletimes.blogspot.com/2012_11_01_archive.html
Snippets of my day, about living well with a hidden disability known as Ehlers Danlos. Here I can be me, bent and broken in body but never in spirit. Monday, 5 November 2012. I love this new addition to our family and she loves me! Subscribe to: Posts (Atom). View my complete profile. Living with Bob (Dysautonomia). Musings of a Medical Zebra. Pass The Duct Tape. Ehlers Danlos Syndrome in New Zealand. Flexability is over-rated, creativity is ingenious. Ehlers-Danlos Syndrome-Deal With It.
tensiletimes.blogspot.com
The Tensile Times: January 2011
http://tensiletimes.blogspot.com/2011_01_01_archive.html
Snippets of my day, about living well with a hidden disability known as Ehlers Danlos. Here I can be me, bent and broken in body but never in spirit. Sunday, 16 January 2011. One Month Before Heartbreak. One Month Before Heartbreak. Written as part of the broken of britain blogswarm. Sometime before Christmas I found myself unable to blog. I hadn't even been blogging for long. Then little by little my confidence became shattered. Perhaps I am overwhelmed by guilt. I know not what the actual cause...Auton...
transballad.blogspot.com
transballad: Ugh. Ugh.
http://transballad.blogspot.com/2013/01/ugh-ugh.html
Poetry, professorial ambitions and collagenopathy. Wednesday, January 16, 2013. I'm not as good at denial as my parents, although I'm still pretty good. Ignore it, maybe it'll go away. I dragged through the holidays, barely getting out of my pajamas. I slept in the basement so I wouldn't keep my sister up because I'd stopped sleeping though the night long ago. It's like, what, the constipation, urinary retention, tachycardia, low blood pressure, nausea, vomiting and months-long headache weren't enough?
transballad.blogspot.com
transballad: My first video blog!
http://transballad.blogspot.com/2012/11/my-first-video-blog.html
Poetry, professorial ambitions and collagenopathy. Sunday, November 11, 2012. My first video blog! I am so sorry you are going through this pain without the support that you need from your doctors. I hope that you get answers and treatment soon and that in the meantime you manage to stay as peaceful and hopeful as you can. I too have EDS and am starting to deal with regular severe headaches. It is overwhelming to have yet another symptom added to the pile. Sending love from Scotland,. My Life with EDS.
