nfmidwest.org
Stories Archives - Neurofibromatosis Midwest
https://www.nfmidwest.org/category/stories
Clinics, Awareness, Research, Education and Support. Mom found NF Midwest, she calls them our life ring and for good reason, they saved us in more ways than they or anyone else could imagine. We were no longer alone. They sent us information, talked to us gave us a breath when everyone else seemed to have taken it away. Trust me when I say my NF is much easier with them in my corner. Great Steps 4NF Walks. I received both of your packets in the mail yesterday and I wanted to say THANK YOU! 8220;Thanks fo...
nfmidwest.org
Volunteer - Neurofibromatosis Midwest
https://www.nfmidwest.org/get-involved/volunteer
Clinics, Awareness, Research, Education and Support. Mom found NF Midwest, she calls them our life ring and for good reason, they saved us in more ways than they or anyone else could imagine. We were no longer alone. They sent us information, talked to us gave us a breath when everyone else seemed to have taken it away. Trust me when I say my NF is much easier with them in my corner. Great Steps 4NF Walks. I received both of your packets in the mail yesterday and I wanted to say THANK YOU! 8220;Thanks fo...
nfincne.org
Latest News & Information From Neurofibromatosis Northeast
http://nfincne.org/category/news
Supporting the NF community in New England and New York. Sample Letter and Finding your Representative and Senators. Representatives and Senators Who Signed On. Jeff Leibow, NF Advocate is interviewed on Great-Day-Washington. Research Projects Funded by NF Northeast. May is NF Awareness Month Proclamations. Supporting NF Patients and Families. NF Northeast College Scholarship Program. How You Can Help. NF Research Updates and Clinical Trials. Join The NF Registry. Past Events and Photos. Karajannis MA, L...
nfincne.org
Past Events and Photos - Neurofibromatosis Northeast
http://nfincne.org/past-events
Supporting the NF community in New England and New York. Sample Letter and Finding your Representative and Senators. Representatives and Senators Who Signed On. Jeff Leibow, NF Advocate is interviewed on Great-Day-Washington. Research Projects Funded by NF Northeast. May is NF Awareness Month Proclamations. Supporting NF Patients and Families. NF Northeast College Scholarship Program. How You Can Help. NF Research Updates and Clinical Trials. Join The NF Registry. Past Events and Photos. The Third Annual...
nfincne.org
Videos - Neurofibromatosis Northeast
http://nfincne.org/who-we-are/video
Supporting the NF community in New England and New York. Sample Letter and Finding your Representative and Senators. Representatives and Senators Who Signed On. Jeff Leibow, NF Advocate is interviewed on Great-Day-Washington. Research Projects Funded by NF Northeast. May is NF Awareness Month Proclamations. Supporting NF Patients and Families. NF Northeast College Scholarship Program. How You Can Help. NF Research Updates and Clinical Trials. Join The NF Registry. Past Events and Photos. Advocating for N...
nfincne.org
What is NF? - Neurofibromatosis Northeast
http://nfincne.org/who-we-are/what-is-nf
Supporting the NF community in New England and New York. Sample Letter and Finding your Representative and Senators. Representatives and Senators Who Signed On. Jeff Leibow, NF Advocate is interviewed on Great-Day-Washington. Research Projects Funded by NF Northeast. May is NF Awareness Month Proclamations. Supporting NF Patients and Families. NF Northeast College Scholarship Program. How You Can Help. NF Research Updates and Clinical Trials. Join The NF Registry. Past Events and Photos. Neurofibromatosi...
nfincne.org
Tell Your Story - Neurofibromatosis Northeast
http://nfincne.org/advocacy-toolkit/tell-your-story
Supporting the NF community in New England and New York. Sample Letter and Finding your Representative and Senators. Representatives and Senators Who Signed On. Jeff Leibow, NF Advocate is interviewed on Great-Day-Washington. Research Projects Funded by NF Northeast. May is NF Awareness Month Proclamations. Supporting NF Patients and Families. NF Northeast College Scholarship Program. How You Can Help. NF Research Updates and Clinical Trials. Join The NF Registry. Past Events and Photos. Lakes Region Tri...
nfincne.org
Who We Are - Neurofibromatosis Northeast
http://nfincne.org/who-we-are
Supporting the NF community in New England and New York. Sample Letter and Finding your Representative and Senators. Representatives and Senators Who Signed On. Jeff Leibow, NF Advocate is interviewed on Great-Day-Washington. Research Projects Funded by NF Northeast. May is NF Awareness Month Proclamations. Supporting NF Patients and Families. NF Northeast College Scholarship Program. How You Can Help. NF Research Updates and Clinical Trials. Join The NF Registry. Past Events and Photos. We have twice be...
nfincne.org
NF Support Community - Neurofibromatosis Northeast
http://nfincne.org/useful-links/nf-network-message-board-3
Supporting the NF community in New England and New York. Sample Letter and Finding your Representative and Senators. Representatives and Senators Who Signed On. Jeff Leibow, NF Advocate is interviewed on Great-Day-Washington. Research Projects Funded by NF Northeast. May is NF Awareness Month Proclamations. Supporting NF Patients and Families. NF Northeast College Scholarship Program. How You Can Help. NF Research Updates and Clinical Trials. Join The NF Registry. Past Events and Photos. Lakes Region Tri...
nfincne.org
Newsletters - Neurofibromatosis Northeast
http://nfincne.org/useful-links/newsletters
Supporting the NF community in New England and New York. Sample Letter and Finding your Representative and Senators. Representatives and Senators Who Signed On. Jeff Leibow, NF Advocate is interviewed on Great-Day-Washington. Research Projects Funded by NF Northeast. May is NF Awareness Month Proclamations. Supporting NF Patients and Families. NF Northeast College Scholarship Program. How You Can Help. NF Research Updates and Clinical Trials. Join The NF Registry. Past Events and Photos.
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