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Once Upon A Butterfly...

Once Upon A Butterfly. Wednesday, February 13, 2013. We have a talker! She is also eating more and more every week. We are still trying out the Avent cup. She wouldn't use it for a week or so, but I have been working with her this last week and she is doing a lot better. It is great to see her progress. She is still drinking her bottle, but less and less every day! I am so happy they work for her. They are so soft! Her two spots on her tummy are healed almost all the way now. No Want to play? Brystal did...

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Once Upon A Butterfly... | brystalandeb.blogspot.com Reviews

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Once Upon A Butterfly. Wednesday, February 13, 2013. We have a talker! She is also eating more and more every week. We are still trying out the Avent cup. She wouldn't use it for a week or so, but I have been working with her this last week and she is doing a lot better. It is great to see her progress. She is still drinking her bottle, but less and less every day! I am so happy they work for her. They are so soft! Her two spots on her tummy are healed almost all the way now. No Want to play? Brystal did...

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Once Upon A Butterfly... | brystalandeb.blogspot.com Reviews

https://brystalandeb.blogspot.com

Once Upon A Butterfly. Wednesday, February 13, 2013. We have a talker! She is also eating more and more every week. We are still trying out the Avent cup. She wouldn't use it for a week or so, but I have been working with her this last week and she is doing a lot better. It is great to see her progress. She is still drinking her bottle, but less and less every day! I am so happy they work for her. They are so soft! Her two spots on her tummy are healed almost all the way now. No Want to play? Brystal did...

INTERNAL PAGES

brystalandeb.blogspot.com

1

Once Upon A Butterfly...: December 2012

http://www.brystalandeb.blogspot.com/2012_12_01_archive.html

Once Upon A Butterfly. Friday, December 14, 2012. I couldn't stop crying while driving down the road. I called and made a small donation, but I wish I could have done more for them. I am a stay at home mom. I don't work a 40 hour week job with a commute. I am here ALL day (besides doctor appointments)! I should be doing something to help others. I don't know if I mentioned before how Brystal had to have her leg cut open so the infection under her skin could drain? Tuesday, December 4, 2012. Thanksgiving,...

2

Once Upon A Butterfly...: At a loss...

http://www.brystalandeb.blogspot.com/2012/12/at-loss.html

Once Upon A Butterfly. Friday, December 14, 2012. I couldn't stop crying while driving down the road. I called and made a small donation, but I wish I could have done more for them. I am a stay at home mom. I don't work a 40 hour week job with a commute. I am here ALL day (besides doctor appointments)! I should be doing something to help others. I don't know if I mentioned before how Brystal had to have her leg cut open so the infection under her skin could drain? December 14, 2012 at 11:30 PM.

3

Once Upon A Butterfly...: February 2012

http://www.brystalandeb.blogspot.com/2012_02_01_archive.html

Once Upon A Butterfly. Sunday, February 19, 2012. SO its been a week since Ive posted and a lot has happened since! First off we moved! No more being crowded in a tiny apartment. With all of Brystals supplies every where I am so happy to be in a bigger place where her bandaged are now localized in HER room :) No more bandage time on the dinning room table! We can actually eat on it! I am so happy! And the Sophie and Emily love it as well! They pushed it back AGAIN! So we did that last night! They were pr...

4

Once Upon A Butterfly...: June 2012

http://www.brystalandeb.blogspot.com/2012_06_01_archive.html

Once Upon A Butterfly. Monday, June 25, 2012. After a talk with Brendan we decided that it is best if I look for a job. We aren't getting the help that we expected to help us pay for our bills and the money I have saved up is depleting fast! I hope I can get a job quick! I am thinking about calling my last job and seeing if they would take me back but I feel bad since I left them! We had a really rough bandage change yesterday. Brystal hasn't been feeling good lately and has been VERY itchy! On a good no...

5

Once Upon A Butterfly...: We have a talker!

http://www.brystalandeb.blogspot.com/2013/02/we-have-talker.html

Once Upon A Butterfly. Wednesday, February 13, 2013. We have a talker! She is also eating more and more every week. We are still trying out the Avent cup. She wouldn't use it for a week or so, but I have been working with her this last week and she is doing a lot better. It is great to see her progress. She is still drinking her bottle, but less and less every day! I am so happy they work for her. They are so soft! Her two spots on her tummy are healed almost all the way now. No Want to play? Brystal did...

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abuckforbenjr.blogspot.com

Honoring a EB soldier Ben Wiley Jr.: Ben Jr's Journey Day 1

http://abuckforbenjr.blogspot.com/2013/01/ben-jrs-journey-day-1.html

Honoring a EB soldier Ben Wiley Jr. Wednesday, January 9, 2013. Ben Jr's Journey Day 1. Oct 26, 2011. When we got home I went to sleep. I woke up and told my husband that I was not feeling well. Ben Sr. was all excited and said, "YES hospital time baby! Give me my SON! We decided to go to the hospital, packed the girl's bags, dropped them off at my mom's, contractions were coming, but they were very different then I remembered. Oct 27, 2011. All this in one day. My next blog I will include learning dress...

abuckforbenjr.blogspot.com

Honoring a EB soldier Ben Wiley Jr.: 100 pennies

http://abuckforbenjr.blogspot.com/2013/01/100-pennies.html

Honoring a EB soldier Ben Wiley Jr. Friday, January 18, 2013. Have any of you ever taken the cushions off your couch and found a bunch of change hidden in the cracks and crevices? When I was younger and in need of money for the penny candy aisle at our neighborhood market I would always go down to our basement and lift up the cushions on my dad's couch. It was rare if I found less than $1. Do you know how much candy a kid can buy in the penny candy aisle for a dollar? Subscribe to: Post Comments (Atom).

abuckforbenjr.blogspot.com

Honoring a EB soldier Ben Wiley Jr.: January 2013

http://abuckforbenjr.blogspot.com/2013_01_01_archive.html

Honoring a EB soldier Ben Wiley Jr. Friday, January 18, 2013. Have any of you ever taken the cushions off your couch and found a bunch of change hidden in the cracks and crevices? When I was younger and in need of money for the penny candy aisle at our neighborhood market I would always go down to our basement and lift up the cushions on my dad's couch. It was rare if I found less than $1. Do you know how much candy a kid can buy in the penny candy aisle for a dollar? Wednesday, January 9, 2013. I never ...

abuckforbenjr.blogspot.com

Honoring a EB soldier Ben Wiley Jr.: News Story featuring Ben Jr!

http://abuckforbenjr.blogspot.com/2013/01/arcadia-boy-with-rare-disease.html

Honoring a EB soldier Ben Wiley Jr. Sunday, January 6, 2013. News Story featuring Ben Jr! Check out this news story from WINK News in Arcadia, Florida featuring Ben Jr. Just click on the link below. Arcadia boy with rare disease celebrates first birthday. Subscribe to: Post Comments (Atom). Please Pin this site. Ben Jrs Journey Day 1. Hello Everyone this Is Kay Broad! For those of you. I am very excited about being able to blog . News Story featuring Ben Jr! Picture Window theme. Powered by Blogger.

abuckforbenjr.blogspot.com

Honoring a EB soldier Ben Wiley Jr.: Ben Jr's 2nd Valentines Day

http://abuckforbenjr.blogspot.com/2013/02/ben-jrs-2nd-valentines-day.html

Honoring a EB soldier Ben Wiley Jr. Wednesday, February 13, 2013. Ben Jr's 2nd Valentines Day. We have the auction coming up! Http:/ bidsforben.wordpress.com/ Please help us with items for the auction! We are in need of any item that you may find valuable! Email bidsforben@yahoo.com for more information =). Also, we do have a amazon wish list that can be found by going to http:/ www.amazon.com/gp/registry/wishlist/3OYWOYPSQ0F3M/ref=topnav lists 1. 1557 NW Eucalyptus Ave. Subscribe to: Post Comments (Atom).

abuckforbenjr.blogspot.com

Honoring a EB soldier Ben Wiley Jr.

http://abuckforbenjr.blogspot.com/2013/01/hello-i-am-very-excited-about-being.html

Honoring a EB soldier Ben Wiley Jr. Monday, January 7, 2013. I am very excited about being able to blog finally. Being a mother of three children, I have never had the time to sit down and create a blog, but thanks to. Julianne Smith, now I can. She is an amazing woman that I have never met before, yet she took time out of her everyday schedule to make a blog page for Ben Jr. I am honored and I thank God for the great people that he has sent to help us along our journey. January 7, 2013 at 10:29 AM.

abuckforbenjr.blogspot.com

Honoring a EB soldier Ben Wiley Jr.: About EB

http://abuckforbenjr.blogspot.com/p/about-eb.html

Honoring a EB soldier Ben Wiley Jr. There are 3 FORMS of EB. 1 EB simplex (EBS). 2 Junctional EB (JEB). 3 Dystrophic EB (DEB). Ben Jr has JEB-NH. Subscribe to: Posts (Atom). Please Pin this site. Ben Jrs 2nd Valentines Day. Picture Window theme. Powered by Blogger.

abuckforbenjr.blogspot.com

Honoring a EB soldier Ben Wiley Jr.

http://abuckforbenjr.blogspot.com/2013/01/this-past-year-i-came-across-facebook_5.html

Honoring a EB soldier Ben Wiley Jr. Saturday, January 5, 2013. I know to us one dollar doesn't seem like much, but if EVERY ONE of Ben Jr's followers donated just one dollar to the family it would add up so very quickly and help them out in a HUGE way! Would you please consider donating a Buck for Ben Jr? If you would like to learn more about Ben Jr. and EB please visit their facebook page: https:/ www.facebook.com/#! Be a blessing by donating "a Buck for Ben Jr."! Subscribe to: Post Comments (Atom).

abuckforbenjr.blogspot.com

Honoring a EB soldier Ben Wiley Jr.

http://abuckforbenjr.blogspot.com/2013/01/hello-everyone-this-is-kay-broad-for.html

Honoring a EB soldier Ben Wiley Jr. Monday, January 7, 2013. Hello Everyone this Is Kay Broad! For those of you who do not know me already, i'm a friend of the family :) The other day I was checking my messages and came across a message from a sweet family, Mike and Julianne. Julianne had a wonderful Idea to start an event for Ben Jr. called " A buck for Ben"! In no time we created the event and started sharing it on Ben Jr.s page! Such and amazing Idea Julianne! THank you so much for your idea! This mea...

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Once Upon A Butterfly...

Once Upon A Butterfly. Wednesday, February 13, 2013. We have a talker! She is also eating more and more every week. We are still trying out the Avent cup. She wouldn't use it for a week or so, but I have been working with her this last week and she is doing a lot better. It is great to see her progress. She is still drinking her bottle, but less and less every day! I am so happy they work for her. They are so soft! Her two spots on her tummy are healed almost all the way now. No Want to play? Brystal did...

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