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— Giovanni's Journey
http://www.giovannisjourney.com/home/2015/10/21/st0sjs7yq40q9483f9wyab9xjhrpss
Written by Krystyn LaBate. June 22, 2015. Larr; CPSE Meeting. Can a picture really change the world? It can, and I will tell you how. →. CMCD Foundation Launch Video. IComLeavWe: Join the Conversation.
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First Time for Everything — Giovanni's Journey
http://www.giovannisjourney.com/home/2015/10/21/first-time-for-everything
First Time for Everything. My heart absolutely broke for Giovanni. He refused to do anything but watch out the window as he wanted to wait for his friend. How do you explain to a 3 year old that his friend isn't ever coming back? After about an hour, we finally convinced him to come away from the window and go for a ride in the car. To turn lemons into lemonade, we took him out for his first Hibachi experience, and then for ice cream. As long as we have each other, we can get through anything.
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Failure — Giovanni's Journey
http://www.giovannisjourney.com/home/2015/10/21/failure
Today was one of the most challenging days that we have had in a long time. It was a day that I found myself questioning my ability to keep it together. Today I feel completely defeated as a parent. I experienced moments of such intense internal anger and rage, that I was left with feelings of extreme guilt afterwards. How could I feel such anger and rage towards a child? Today I was not a good mom. I feel that I have failed my child. Written by Krystyn LaBate. October 21, 2015.
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CPSE Meeting — Giovanni's Journey
http://www.giovannisjourney.com/home/2015/10/21/cpse-meeting
Overall I think we made at well, and I feel that Giovanni will continue to get the services that he needs to thrive. He is such a cute little booger! Written by Krystyn LaBate. July 6, 2015. CMCD Foundation Launch Video. IComLeavWe: Join the Conversation.
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Bad Day — Giovanni's Journey
http://www.giovannisjourney.com/home/2015/10/21/bad-day
Eventually I was able to get him downstairs, as I wanted to try and get some food into him. He immediately screamed that he wanted the TV off, and he just sat quietly. My husband and I kept noticing starring spells (seizures), probably 4 or 5 of them within a 30 minute period. He was completely off, as he wouldn't do anything expect sit quietly with his toy tractor. Written by Krystyn LaBate. August 25, 2015. Larr; First Time for Everything. CMCD Foundation Launch Video. IComLeavWe: Join the Conversation.
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Can a picture really change the world? It can, and I will tell you how. — Giovanni's Journey
http://www.giovannisjourney.com/home/2015/6/15/can-a-picture-really-change-the-world-it-can-and-i-will-tell-you-how
Can a picture really change the world? It can, and I will tell you how. Simply getting a child with limited mobility onto the playground doesn’t necessarily enhance their play experience. It also does not take into consideration children with sensory deficits and other developmental issues. In addition to ensuring access, we must ensure inclusion. Our children deserve more than the minimum standards when it comes to playground inclusion and accessibility. Written by Krystyn LaBate. June 15, 2015.
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Heads Up — Giovanni's Journey
http://www.giovannisjourney.com/home/2015/10/21/heads-up
After two and a half weeks of horrible sleep due to a sudden fear of monsters and ghosts, we have finally found a solution. I picked this little gem up for less than $10 at a local toy store. Tonight was his first night using it, and so far so good! I also wanted to post a quick update about some things going on with Giovanni. The end result was a medication increase and an ambulatory EEG, which they will do at home. Ugh! Written by Krystyn LaBate. July 30, 2015. Larr; A Day I Cannot Forget.
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Update — Giovanni's Journey
http://www.giovannisjourney.com/home/2015/6/15/update
I wanted to post a quick update on Giovanni, as so much of my focus lately has been on this inclusive playground project. On a positive note (barely) we were informed during a doctor's visit last week, that he gained a whole ounce (note the sarcasm). But seriously, considering his was diagnosed as "failure to thrive" for the entire first year of his life, we will take it! At least he isn't losing weight! I love my skinny boy! Written by Krystyn LaBate. May 18, 2015. Larr; Just Chillin'.
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Happy Birthday! — Giovanni's Journey
http://www.giovannisjourney.com/home/2015/10/21/happy-birthday
Happy 3rd Birthday to the strongest, most determined, and funniest little boy I know. I am truly blessed to call you my son. I love you so much! Written by Krystyn LaBate. August 22, 2015. A Day I Cannot Forget →. CMCD Foundation Launch Video. IComLeavWe: Join the Conversation.
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CMCD Foundation — Giovanni's Journey
http://www.giovannisjourney.com/cmcd-foundation
The Cortical Malformation and Cephalic Disorder (CMCD) Foundation, founded in 2014, is a non-profit organization dedicated to improving the quality of life of patients and their families who have been affected by the diagnosis of a cortical malformation or a cephalic disorder.
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