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Cortical Malformation & Cephalic Disorder Foundation

The Cortical Malformation & Cephalic Disorder (CMCD) Foundation, founded in 2014, is a non-profit organization dedicated to improving that quality of life of patients and their families who have been affected by the diagnosis of a cortical malformation or a cephalic disorder.

http://www.cmcdfoundation.org/

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Cortical Malformation & Cephalic Disorder Foundation | cmcdfoundation.org Reviews
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The Cortical Malformation & Cephalic Disorder (CMCD) Foundation, founded in 2014, is a non-profit organization dedicated to improving that quality of life of patients and their families who have been affected by the diagnosis of a cortical malformation or a cephalic disorder.
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1 about us
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5 cortical malformations
6 cephalic disorders
7 projects
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9 inclusive playground
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Cortical Malformation & Cephalic Disorder Foundation | cmcdfoundation.org Reviews

https://cmcdfoundation.org

The Cortical Malformation & Cephalic Disorder (CMCD) Foundation, founded in 2014, is a non-profit organization dedicated to improving that quality of life of patients and their families who have been affected by the diagnosis of a cortical malformation or a cephalic disorder.

INTERNAL PAGES

cmcdfoundation.org cmcdfoundation.org
1

Cortical Malformation & Cephalic Disorder Foundation

http://www.cmcdfoundation.org/about-us

Cortical Malformation and Cephalic Disorder Foundation. The Cortical Malformation and Cephalic Disorder (CMCD) Foundation, founded in 2014, is a non-profit organization dedicated to improving the quality of life of patients and their families who have been affected by the diagnosis of a cortical malformation or a cephalic disorder. Check out the final gallery from our inclusive playground project! About a year ago.

2

Our Story — Cortical Malformation & Cephalic Disorder Foundation

http://www.cmcdfoundation.org/our-story

Cortical Malformation and Cephalic Disorder Foundation. When he was 9 months old he was finally referred to a neurologist to be evaluated based on the recommendation of his physical therapist and my persistence regarding something being wrong. The neurologist suspected that with all of the pregnancy and birth complications that he probably sustained some type of brain injury, resulting in cerebral palsy. He recommended that we do an MRI to confirm this. About a year ago.

3

Grant Program — Cortical Malformation & Cephalic Disorder Foundation

http://www.cmcdfoundation.org/grant-program

Cortical Malformation and Cephalic Disorder Foundation. More Information Coming Soon. Check out the final gallery from our inclusive playground project! About a year ago.

4

Disclaimer/Privacy Policy — Cortical Malformation & Cephalic Disorder Foundation

http://www.cmcdfoundation.org/disclaimer

Cortical Malformation and Cephalic Disorder Foundation. The Cortical Malformation and Cephalic Disorder (CMCD) Foundation cannot verify every claim made by a third party contributor to our website and is not responsible for their authenticity. User information submitted through the CMCD Foundation Site? Pages is only used for the purposes for which it was collected. Cookies are small files that a site or its service provider transfers to your computers hard drive through your Web browser (if you allow) t...

5

Board of Directors — Cortical Malformation & Cephalic Disorder Foundation

http://www.cmcdfoundation.org/boardofdirectors

Cortical Malformation and Cephalic Disorder Foundation. Krystyn LaBate, Ph.D. Elaine Houlihan currently works as a Legal Affairs Specialist for the New York State Office of Temporary and Disability Assistance in Albany, NY. Previously, she worked as an Examiner for the Albany County Department of Social Services. A graduate of Hudson Valley Community College, Elaine brings experience in human services, outreach, and patient advocacy. Check out the final gallery from our inclusive playground project!

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giovannisjourney.com giovannisjourney.com

— Giovanni's Journey

http://www.giovannisjourney.com/home/2015/10/21/st0sjs7yq40q9483f9wyab9xjhrpss

Written by Krystyn LaBate. June 22, 2015. Larr; CPSE Meeting. Can a picture really change the world? It can, and I will tell you how. →. CMCD Foundation Launch Video. IComLeavWe: Join the Conversation.

giovannisjourney.com giovannisjourney.com

First Time for Everything — Giovanni's Journey

http://www.giovannisjourney.com/home/2015/10/21/first-time-for-everything

First Time for Everything. My heart absolutely broke for Giovanni. He refused to do anything but watch out the window as he wanted to wait for his friend. How do you explain to a 3 year old that his friend isn't ever coming back? After about an hour, we finally convinced him to come away from the window and go for a ride in the car. To turn lemons into lemonade, we took him out for his first Hibachi experience, and then for ice cream. As long as we have each other, we can get through anything.

giovannisjourney.com giovannisjourney.com

Failure — Giovanni's Journey

http://www.giovannisjourney.com/home/2015/10/21/failure

Today was one of the most challenging days that we have had in a long time. It was a day that I found myself questioning my ability to keep it together. Today I feel completely defeated as a parent. I experienced moments of such intense internal anger and rage, that I was left with feelings of extreme guilt afterwards. How could I feel such anger and rage towards a child? Today I was not a good mom. I feel that I have failed my child. Written by Krystyn LaBate. October 21, 2015.

giovannisjourney.com giovannisjourney.com

CPSE Meeting — Giovanni's Journey

http://www.giovannisjourney.com/home/2015/10/21/cpse-meeting

Overall I think we made at well, and I feel that Giovanni will continue to get the services that he needs to thrive. He is such a cute little booger! Written by Krystyn LaBate. July 6, 2015. CMCD Foundation Launch Video. IComLeavWe: Join the Conversation.

giovannisjourney.com giovannisjourney.com

Bad Day — Giovanni's Journey

http://www.giovannisjourney.com/home/2015/10/21/bad-day

Eventually I was able to get him downstairs, as I wanted to try and get some food into him. He immediately screamed that he wanted the TV off, and he just sat quietly. My husband and I kept noticing starring spells (seizures), probably 4 or 5 of them within a 30 minute period. He was completely off, as he wouldn't do anything expect sit quietly with his toy tractor. Written by Krystyn LaBate. August 25, 2015. Larr; First Time for Everything. CMCD Foundation Launch Video. IComLeavWe: Join the Conversation.

giovannisjourney.com giovannisjourney.com

Can a picture really change the world? It can, and I will tell you how. — Giovanni's Journey

http://www.giovannisjourney.com/home/2015/6/15/can-a-picture-really-change-the-world-it-can-and-i-will-tell-you-how

Can a picture really change the world? It can, and I will tell you how. Simply getting a child with limited mobility onto the playground doesn’t necessarily enhance their play experience. It also does not take into consideration children with sensory deficits and other developmental issues. In addition to ensuring access, we must ensure inclusion. Our children deserve more than the minimum standards when it comes to playground inclusion and accessibility. Written by Krystyn LaBate. June 15, 2015.

giovannisjourney.com giovannisjourney.com

Heads Up — Giovanni's Journey

http://www.giovannisjourney.com/home/2015/10/21/heads-up

After two and a half weeks of horrible sleep due to a sudden fear of monsters and ghosts, we have finally found a solution. I picked this little gem up for less than $10 at a local toy store. Tonight was his first night using it, and so far so good! I also wanted to post a quick update about some things going on with Giovanni. The end result was a medication increase and an ambulatory EEG, which they will do at home. Ugh! Written by Krystyn LaBate. July 30, 2015. Larr; A Day I Cannot Forget.

giovannisjourney.com giovannisjourney.com

Update — Giovanni's Journey

http://www.giovannisjourney.com/home/2015/6/15/update

I wanted to post a quick update on Giovanni, as so much of my focus lately has been on this inclusive playground project. On a positive note (barely) we were informed during a doctor's visit last week, that he gained a whole ounce (note the sarcasm). But seriously, considering his was diagnosed as "failure to thrive" for the entire first year of his life, we will take it! At least he isn't losing weight! I love my skinny boy! Written by Krystyn LaBate. May 18, 2015. Larr; Just Chillin'.

giovannisjourney.com giovannisjourney.com

Happy Birthday! — Giovanni's Journey

http://www.giovannisjourney.com/home/2015/10/21/happy-birthday

Happy 3rd Birthday to the strongest, most determined, and funniest little boy I know. I am truly blessed to call you my son. I love you so much! Written by Krystyn LaBate. August 22, 2015. A Day I Cannot Forget →. CMCD Foundation Launch Video. IComLeavWe: Join the Conversation.

giovannisjourney.com giovannisjourney.com

CMCD Foundation — Giovanni's Journey

http://www.giovannisjourney.com/cmcd-foundation

The Cortical Malformation and Cephalic Disorder (CMCD) Foundation, founded in 2014, is a non-profit organization dedicated to improving the quality of life of patients and their families who have been affected by the diagnosis of a cortical malformation or a cephalic disorder.

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Cortical Malformation & Cephalic Disorder Foundation

Cortical Malformation and Cephalic Disorder Foundation. The Cortical Malformation and Cephalic Disorder (CMCD) Foundation, founded in 2014, is a non-profit organization dedicated to improving the quality of life of patients and their families who have been affected by the diagnosis of a cortical malformation or a cephalic disorder. Check out the final gallery from our inclusive playground project! About a year ago.

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