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Defending Joy | Life at home

Life at home

http://defendingjoy.wordpress.com/

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Defending Joy | Life at home | defendingjoy.wordpress.com Reviews

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Life at home

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1

FPIES Angels: Part 1 | Defending Joy

https://defendingjoy.wordpress.com/2014/08/05/fpies-angels-part-1

Blogs and Web Resources. FPIES Angels: Part 1. Asymp; 1 Comment. It’s easy to focus on the negatives when dealing FPIES, so today is a chance to focus on the positives, and thank those who have helped us out. I’m borrowing the idea for today’s post from a fellow FPIES mom. She describes the joy FPIES Angels. We are very thankful for the pediatrician assigned to Little Wiggles on base. Little Wiggles doctor has taken the time to educate herself about FPIES, and been very helpful. She has been will...What ...

2

defendingjoy | Defending Joy

https://defendingjoy.wordpress.com/author/defendingjoy

Blogs and Web Resources. Asymp; 2 Comments. I make almond milk for Little Wiggles, which I use as an ingredient in her smoothie. Estimated nutrition info: http:/ nutritiondata.self.com/facts/custom/3155994/2. 4 cups Gerolsteiner water. 1 tsp Great Lakes Beef Gelatin. 1 TBS Almond oil. FPIES Angels: Part 1. Asymp; 1 Comment. We are very thankful for the pediatrician assigned to Little Wiggles on base. Little Wiggles doctor has taken the time to educate herself about FPIES, and been very helpful. S...The f...

3

Homemade Almond Milk | Defending Joy

https://defendingjoy.wordpress.com/2015/03/27/homemade-almond-milk

Blogs and Web Resources. Asymp; 2 Comments. I make almond milk for Little Wiggles, which I use as an ingredient in her smoothie. Estimated nutrition info: http:/ nutritiondata.self.com/facts/custom/3155994/2. 4 cups Gerolsteiner water. 1 tsp Great Lakes Beef Gelatin. 1 TBS Almond oil. Larr; Previous post. Thoughts on “Homemade Almond Milk”. March 28, 2015 at 10:29 PM. Thanks Jaime for posting. Does the almond milk taste similar to cows milk? March 29, 2015 at 8:56 AM. Leave a Reply Cancel reply.

4

Tips for dealing with doctors when your child has a rare disease | Defending Joy

https://defendingjoy.wordpress.com/2014/07/07/24

Blogs and Web Resources. Tips for dealing with doctors when your child has a rare disease. Asymp; 1 Comment. Are there new symptoms that need to be addressed? Are you expecting a specific test to be run, or a referral? Larr; Previous post. Next post →. Thought on “Tips for dealing with doctors when your child has a rare disease”. July 9, 2014 at 1:30 AM. For me, I find it easiest to use the notepad app on my phone and have one note per doc, so I never have to worry about losing little pieces of paper&#46...

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Limited Ingredient Cooking Series: Quiches | Defending Joy

https://defendingjoy.wordpress.com/2014/07/12/limited-ingredient-cooking-series-quiches

Blogs and Web Resources. Limited Ingredient Cooking Series: Quiches. Asymp; Leave a comment. The food trial for chicken eggs was iffy, so we tried duck eggs, which were a great pass. I use duck eggs to make a variety of quiches for Little Wiggles. I love the ability to put a variety of vegetables in them for her. She still does not chew very well, so quiches let me add purées for improved digestion, while still letting her practice chewing. I use a gram scale. Two of Little Wiggles’ quiches. You are comm...

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Oat & Rice Trial Update | Frantically Unraveling FPIES

https://fufpies.wordpress.com/2015/02/27/oat-rice-trial-update

A mom's mission to understand and overcome her son's rare food allergy. Philadelphia FPIES Support Group. Oat and Rice Trial Update. February 27, 2015. The last couple of months have been full of ups and downs! I knew that squeezing in so many food challenges/trials over the holiday season was going to make things a little extra-stressful. What I didn’t count on was the confusion and uncertainty that would result. First we had the weird symptoms during the dairy trial. I discussed my concerns with Jonath...

fufpies.wordpress.com fufpies.wordpress.com

Cathy | Frantically Unraveling FPIES

https://fufpies.wordpress.com/author/cathybykowski

A mom's mission to understand and overcome her son's rare food allergy. Philadelphia FPIES Support Group. No News is Good News! October 14, 2016. Well, it has certainly been a while since my last blog post. Today is Global FPIES Day so I figured it was a perfect time to share an update. A lot has happened in our lives over the past 20 months or so, I’ll do my best to just give the abridged version. The bottom line is that E is doing wonderfully! He has officially passed trials of rice, dairy and egg!

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Rocking the Rice Trial! | Frantically Unraveling FPIES

https://fufpies.wordpress.com/2014/12/10/rocking-the-rice-trial

A mom's mission to understand and overcome her son's rare food allergy. Philadelphia FPIES Support Group. Rocking the Rice Trial! December 10, 2014. E’s rice challenge on Monday was great! He inhaled his first dose of rice flour (1/4 tsp mixed in applesauce) and could barely wait the 20 minutes until his next dose (1/2 teaspoon mixed in applesauce). The rest of the day was gloriously boring. There was no sign of any problem or discomfort and we were out of there by 1:00! We are so lucky. Amazing success ...

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Recipes | Frantically Unraveling FPIES

https://fufpies.wordpress.com/recipes

A mom's mission to understand and overcome her son's rare food allergy. Philadelphia FPIES Support Group. If you use your own adaptations and substitutions, please leave a message in the comments to let us know how it went. Dairy-Free, Soy-Free, Egg-Free). Banana Chocolate Chip French Toast Casserole. Dairy-Free, Soy-Free, Egg-Free). Dairy-Free, Soy-Free, Egg-Free). Dairy-Free, Soy-Free, Egg-Free, Grain-Free, Nut-Free). Mexican Cauliflower “Rice”. Grain-Free, Soy-Free, Dairy-Free, Egg-Free, Nut-Free).

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FPIES Journal Articles | Frantically Unraveling FPIES

https://fufpies.wordpress.com/fpies-journal-articles

A mom's mission to understand and overcome her son's rare food allergy. Philadelphia FPIES Support Group. Review Articles (Summaries of Original Studies). 4 Jarvinen, K.M., Nowak-Wegrzyn, A. (2013). Food protein-induced enterocolitis sydrome (FPIES): Current management strategies and review of the literature. Journal of Allergy and Clinical Immunology, 1, 317-322. Review of chronic, acute, milk/soy, and solid food FPIES. Provides description of common presentations via case examples. Makes a case for com...

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Index | Frantically Unraveling FPIES

https://fufpies.wordpress.com/index

A mom's mission to understand and overcome her son's rare food allergy. Philadelphia FPIES Support Group. This is a list of all blog posts, roughly by category. Hopefully it will make it easier to find what you are looking for, but don’t hesitate to ask if you have a question and can’t seem to find the answer! FPIES Information – Research, Tips, and Tricks. Food Trials: Variations on a Theme. 8211; Our changing approach to food trials, a more relaxed approach. Food Trials and Tribulations. Keep it Simple...

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Dairy is a PASS!!!! (we think) | Frantically Unraveling FPIES

https://fufpies.wordpress.com/2014/12/07/dairy-is-a-pass-we-think

A mom's mission to understand and overcome her son's rare food allergy. Philadelphia FPIES Support Group. Dairy is a PASS! December 7, 2014. I feel like I spent the last week just waiting for a reaction – scrutinizing every diaper, questioning every funny face, and generally being on edge. I’m exhausted! But there hasn’t been any projectile vomit! No vomit at all. None. I still can’t really believe it. Here’s the dairy trial recap…. You can read the whole long story. For FPIES, the 23 months without dair...

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FPIES Information | Frantically Unraveling FPIES

https://fufpies.wordpress.com/fpies-information

A mom's mission to understand and overcome her son's rare food allergy. Philadelphia FPIES Support Group. Food Protein-Induced Enterocolitis Syndrome (FPIES). Lasting for several days) or acute. Check out my posts (. And the FPIES Journal Articles. Page for more detailed information. Most of this information was from “ Understanding and Managing Your Child’s Food Allergies. 8221; By Scott H. Sicherer, MD. You can also find great information and resources from the FPIES Foundation. Enter your comment here.

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Our Story | Frantically Unraveling FPIES

https://fufpies.wordpress.com/our-story

A mom's mission to understand and overcome her son's rare food allergy. Philadelphia FPIES Support Group. Birth to 4 Mont. Hs: “Happy Spitter”. 4 Months to 7 Months: Looking for a Zebra. At that point we started avoiding soy, grains, and meats in addition to the milk. This was the first time I started to consider the possibility of a non-IgE allergy, but no one officially called it FPIES yet. 7 Months to 12 Months: Baseline. 13 Months to 14 Months: Acute Reactions! E successfully passed wheat! We celebra...

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Defending Joy | Life at home

Blogs and Web Resources. Asymp; 2 Comments. I make almond milk for Little Wiggles, which I use as an ingredient in her smoothie. Estimated nutrition info: http:/ nutritiondata.self.com/facts/custom/3155994/2. 4 cups Gerolsteiner water. 1 tsp Great Lakes Beef Gelatin. 1 TBS Almond oil. FPIES Angels: Part 1. Asymp; 1 Comment. We are very thankful for the pediatrician assigned to Little Wiggles on base. Little Wiggles doctor has taken the time to educate herself about FPIES, and been very helpful. S...The f...

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