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Dr. La Verne's Awesome Adventure

A blog about leukemia, CLL, CLL/SLL, clinical trials, 17p, Ibrutinib, PCI-32765, IMBRUVICA, blood cancer

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Dr. La Verne's Awesome Adventure | drlaverne.blogspot.com Reviews
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Dr. La Verne's Awesome Adventure | drlaverne.blogspot.com Reviews

https://drlaverne.blogspot.com

A blog about leukemia, CLL, CLL/SLL, clinical trials, 17p, Ibrutinib, PCI-32765, IMBRUVICA, blood cancer

INTERNAL PAGES

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1

Dr. La Verne's Awesome Adventure: October 2016

http://drlaverne.blogspot.com/2016_10_01_archive.html

Dr La Verne's Awesome Adventure. Slaying the Leukemia Dragon. Saturday, October 15, 2016. Carl and I with our 14 grandbabies (half are adopted and special gifts to our family). 45 years and still counting. This has been a very busy time of year for me, and believe me I am not complaining. I am very grateful for every day I have on this earth. I am grateful for my family and my friends. And I am VERY thankful for the medical researchers who conduct clinical trials. Links to this post. Links to this post.

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Dr. La Verne's Awesome Adventure: LLS and the National Moonshot Cancer Initiative

http://drlaverne.blogspot.com/2016/06/lls-and-national-moonshot-cancer.html

Dr La Verne's Awesome Adventure. Slaying the Leukemia Dragon. Thursday, June 30, 2016. LLS and the National Moonshot Cancer Initiative. Wednesday, June 2 9. In a virtual town hall meeting sponsored by the Leukemia and Lymphoma Society as a part of the National Moonshot Cancer Initiative led by Vice President Joe Biden. I joined about 500 people across the country. This is just the beginning of the conversation. Vice President Biden did mention. Blog Now to the summary of the virtual town meeting…. I enjo...

3

Dr. La Verne's Awesome Adventure: May 2016

http://drlaverne.blogspot.com/2016_05_01_archive.html

Dr La Verne's Awesome Adventure. Slaying the Leukemia Dragon. Wednesday, May 4, 2016. Life According to MaMa La Verne (a.k.a Cancer and Comedy). I was once called the EverReady Bunny. That was B.C. (before cancer). I am now the Velveteen Rabbit. My life is now filled with things that bring me joy: painting, writing, tai chi, my husband Carl, my children, my friends, my grandbabies, being a patient advocate, a political activist, and dabbling in comedy. With comedian Tony Vicich. Then I took a stand-up co...

4

Dr. La Verne's Awesome Adventure: March 2016

http://drlaverne.blogspot.com/2016_03_01_archive.html

Dr La Verne's Awesome Adventure. Slaying the Leukemia Dragon. Wednesday, March 2, 2016. According to the NIH blood work from January 2016, I am still in complete remission. I will have a physical today with my local GP. My bone marrow biopsy is not scheduled until this summer. I just defended my PhD and passed! You are the first one to know I passed - before parents, before friends! You are the reason I made it here today! I wish you were here today . Thank you for believing in me.”. Links to this post.

5

Dr. La Verne's Awesome Adventure: IMBRUVICA is still doing its thing

http://drlaverne.blogspot.com/2016/07/imbruvica-is-still-doing-its-thing.html

Dr La Verne's Awesome Adventure. Slaying the Leukemia Dragon. Saturday, July 30, 2016. IMBRUVICA is still doing its thing. Mountain Winery, Saratoga, California. LLS donor development friends:. Gail Sperling, Carson Jacobi, Sharon Ladin, and me. What an incredible past few weeks it has been! Then my husband Carl and I flew to Bethesda, Maryland for my medical testing and I met my new doctor. More about that in a minute. Then I gave a talk to the national Leukemia and Lymphoma Society (LLS) donor developm...

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How's Dave Doing?: Brave New World of Cancer Therapy

http://howsdave.blogspot.com/2014/11/brave-new-world-of-cancer-therapy.html

Tuesday, November 11, 2014. Brave New World of Cancer Therapy. Actually, these are AmoxKClav - the Ibrutinib hasn't arrived yet.). An excellent development for someone whose main complaint is fatigue and shortness of breath. And whose immune system is so shot, a handshake is more feared than welcomed.). Now we await the Fed Ex delivery of the drugs - I just tracked it online and it’s on a truck, somewhere between South San Francisco and here. Should be here by noon. Wow, some things *are* getting better.

howsdave.blogspot.com howsdave.blogspot.com

How's Dave Doing?: Treatment done, for another 5 years?

http://howsdave.blogspot.com/2012/12/treatment-done-for-another-5-years.html

Sunday, December 2, 2012. Treatment done, for another 5 years? Dave finished 6 rounds of chemo (Dexamethasone, Treanda, and Rituxan) in November and his hematologist/oncologist said he should be good for another 5 years. That first dose, in June, was a doozy - with a severe "shake 'n bake" reaction, followed by a pneumonia that landed him in the hospital. But since then, he tolerated this regimen much better than the Fudarabine/Mitoxantrone that he got back 2007. Conference, in San Francisco, in February.

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How's Dave Doing?: Imbruvica (Ibrutinib) Day Five, and CLL Networking

http://howsdave.blogspot.com/2014/11/imbruvica-ibrutinib-day-five-and-cll.html

Sunday, November 16, 2014. Imbruvica (Ibrutinib) Day Five, and CLL Networking. Dave started the Imbruvica (Ibrutinib) five days ago. So far the main side effects have been mild nausea and extreme fatigue. Nothing else seemed to change, good or bad, until yesterday afternoon, when we noticed that the lymph nodes in his neck seemed a little smaller. And the National Institutes of Health estimates. That 15% of Leukemia patients were misdiagnosed before coming to the cancer center. Suddenly, you realize you'...

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How's Dave Doing?: October 2010

http://howsdave.blogspot.com/2010_10_01_archive.html

Saturday, October 2, 2010. It seems as if each year is busier than the last. That's very good in a way: I have the energy to keep up and I actually add items to our calendar. After quite a few years of constantly feeling run down and so out of shape, it's amazing to be able leave the office after a day of work and head downtown, meet a group of friends, go gallery hopping, then out to dinner and enjoy long debates and discussions about art and photography and publishing. David W. Sumner. Subscribe to: Po...

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How's Dave Doing?: July 2011

http://howsdave.blogspot.com/2011_07_01_archive.html

Wednesday, July 6, 2011. Kicked to the Curb by Kaiser. Dave has been a Kaiser member for 17 years, via two different workplaces. The company he was recently working for went belly-up so now he's looking for full-time work and looking for health care. You could get Cobra through your employer . . . oh, your company employed less than 20 people? Then they weren't required to carry Cobra. You could apply for individual coverage but you'd probably be denied for having a pre-existing condition. You could use ...

howsdave.blogspot.com howsdave.blogspot.com

How's Dave Doing?: December 2012

http://howsdave.blogspot.com/2012_12_01_archive.html

Tuesday, December 18, 2012. New Therapies Coming up. We've been hearing quite a bit about a new therapy called Ibrutinib (eh-BRU-teh-nib.) It's a BTK inhibitor,. Not chemotherapy, and it is administered in pill form instead of infusion. We hope to learn more about it in February at the Emerging Therapies Conference. But for now, here's a little preview from the ASH press conference on this drug. Posted by Anna L. Conti. Sunday, December 2, 2012. Treatment done, for another 5 years? Was an extraordinary e...

howsdave.blogspot.com howsdave.blogspot.com

How's Dave Doing?: December 2009

http://howsdave.blogspot.com/2009_12_01_archive.html

Monday, December 14, 2009. David the nurse and David the patient give two thumbs up to the end of Dave's 2.5 years of treatment for B-cell chronic lymphocytic leukemia. (He'll be monitored every 3 months until he needs treatment again.). Things are going great now and we're living for today, focusing on what's really important to us, in ways that we couldn't imagine before this all came down. Dave asked me to post this message from him:. Based on my history and my good response to treatment, I expect to ...

howsdave.blogspot.com howsdave.blogspot.com

How's Dave Doing?: New Treatment Plan

http://howsdave.blogspot.com/2014/11/new-treatment-plan.html

Thursday, November 6, 2014. Dave, at lunch today, between appointments. The next hurdle is getting our insurance to approve the treatment, and then affording the co-pay. And then obtaining the drug (apparently it has to be shipped here from Texas? Luckily, Dave's oncologist has a staff person assigned to help us through these issues. We met with her this afternoon and she was very optimistic and reassuring. It might be a week or so before it's all figured out and he actually starts the drug. National Can...

howsdave.blogspot.com howsdave.blogspot.com

How's Dave Doing?: April 2010

http://howsdave.blogspot.com/2010_04_01_archive.html

Thursday, April 22, 2010. 5 months of chemo. 2 years of Rituxan therapy. I never stopped shooting. Photo: Anna L. Conti. David W. Sumner. Subscribe to: Posts (Atom). Written by Anna L. Conti. And David W. Sumner. At first, Anna was the only one writing the posts here, but now Dave weighs in fairly regularly. Friends and family can contribute in the comments sections (and we thank you for the many good wishes.). Links to us all. Dave and Anna's home page. Alan Knight's CLL Diary. Dave Arrenson's CLL Diary.

howsdave.blogspot.com howsdave.blogspot.com

How's Dave Doing?: August 2009

http://howsdave.blogspot.com/2009_08_01_archive.html

Monday, August 10, 2009. Dave had an ultrasound of his leg today. The clot is still there (but we knew that.) He sees the oncology/hematologist on Wednesday, about the clot in his leg, and the CLL. More then. Posted From My iPod Touch. Posted by Anna L. Conti. Subscribe to: Posts (Atom). Written by Anna L. Conti. And David W. Sumner. Links to us all. Dave and Anna's home page. Alan Knight's CLL Diary. Brian Koffman's Transplant blog. Dave Arrenson's CLL Diary. Dave Eckberg's Great Adventure.

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Dr. La Verne's Awesome Adventure

Dr La Verne's Awesome Adventure. Slaying the Leukemia Dragon. Friday, December 16, 2016. 8220;The most wasted of all days is one without laughter.” – E. E. Cummings. A&K Sisters (Diane Miner and MaMa La Verne). Even in my “horizontal days” – the days I did not have the energy to do anything – I watched comedy movie marathons lying on the sofa without guilt. I was listening to my body and it needed rest. I was listening to my mind and heart and they needed joy. Long pause and confused looks on their faces.

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