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A Life Less Ordinary

Raising a child with Cerebral Palsy

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A Life Less Ordinary | elenadoodle.blogspot.com Reviews
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Raising a child with Cerebral Palsy
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1 seizures
2 it's vivian
3 posted by amy
4 5 comments
5 labels epilepsy
6 keppra
7 vivian
8 carrying
9 pocket sash
10 labels carrying
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seizures,it's vivian,posted by amy,5 comments,labels epilepsy,keppra,vivian,carrying,pocket sash,labels carrying,cerebral palsy,crutches,loftstrand,pockets,the mule,posts,it was windy,gravel,1 comments,labels cerebral palsy,the bike project,trike,surgery
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A Life Less Ordinary | elenadoodle.blogspot.com Reviews

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Raising a child with Cerebral Palsy

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A Life Less Ordinary: October 2014

http://elenadoodle.blogspot.com/2014_10_01_archive.html

Thursday, October 30, 2014. Multi-level surgery to help crouch gait. Hi Doodlers in blogland,. I've been thinking about Elena's worsening gait. Most days, it's bad. Feet splayed out, dragging, slow. There is a helplessness creeping up in her. So it's time. How bad is it? Anyone with experience out there? I am not necessarily pro-multiple surgeries, but I want to arm myself with information. Pros/cons? Difficult time believing 100% success rate with no follow-up from his patients). I value your experiences.

2

A Life Less Ordinary: Mother of Invention: Beach Walker

http://elenadoodle.blogspot.com/2010/06/mother-of-invention-beach-walker.html

Tuesday, June 22, 2010. Mother of Invention: Beach Walker. Okay, so here it is! Well, it's not technically ready yet. But here is the "prototype" of E's beach walker! What I wanted was a walker-type contraption that Elena might be able to push on sand. MIGHT. Sand is THE MOST DIFFICULT solid surface to navigate, so this little experiment might very well end up in a big pile of FAIL. Vids trying this contraption in action should be posted before Saturday- that's when we leave for the Beach! A wider wheel ...

3

A Life Less Ordinary: SOLs and other things

http://elenadoodle.blogspot.com/2014/05/sols-and-other-things.html

Wednesday, May 7, 2014. SOLs and other things. Welcome to May in our house! SOL testing, for those abroad, is short for Standards Of Learning for a particular grade and the tests are government mandated each year. Third grade has more tests (four in may, many over several days) than any other grade. There are many parents/districts in an uproar over these tests. I have brought them up in IEP meetings and I've spoken to Elena about them. The biggest issue right now, is, unfortunately, test anxiety. Anyway...

4

A Life Less Ordinary: Beach 2015

http://elenadoodle.blogspot.com/2015/08/beach-2015.html

Sunday, August 2, 2015. This post is overdue.everything takes longer these days! Everyone had a great time. Great company, wonderful location, gorgeous weather. Determined face and terrible gait. She doesn't typically move like that. I knew something was wrong. She sat in the chair, and started to cry for me- obviously in distress. Turns out she was stung by a good-sized sea nettle (I got a picture of it in case we needed an ID) while she was on her knees in the water. The girl who saved herself. The bea...

5

A Life Less Ordinary: School, Summer, and Operation possibilities

http://elenadoodle.blogspot.com/2015/05/school-summer-and-operation.html

Thursday, May 14, 2015. School, Summer, and Operation possibilities. These tests bring out the worst of anxieties in students, and Elena is a perfect example. I wrote about this during her third grade year. She was awash in nervousness and extremely disruptive. Tackling anxiety, quite simply, is going to be a problem for us (with Elena). While I don't look forward to testing, I do think it can be a way to measure if Elena is making progress dealing with her emotions. Kneecap side. This will temporari...

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Landon's Love: August 2010

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Edenbrook Farm Therapy Program Radio Interview Featuring Landon! Edenbrook Farm Therapy Program Radio Interview. Some days are much more difficult than others. I Blessed are those who stop and listen to my chatter. You may not understand me; but I love when people talk to me, for I long for companionship, too. III Blessed are those who take the time to tell me about special happenings, for unless you make special effort to inform me, I remain ignorant. IX Blessed are those who think of me as a person who...

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Ciaran and Shay: May 2014

http://ciaranandshay.blogspot.com/2014_05_01_archive.html

Ollie is finding a digging his way into all of our hearts…he is such a perfect puppy. Saturday, May 31, 2014. Links to this post. April 24 - Throw Back thursday. Man…have they ever come a LONG way :) So much to be proud of! Saturday, May 31, 2014. Links to this post. Friday, May 30, 2014. Links to this post. Good Friday - Part 2. Our Good Friday tradition continues.I think we are eight years strong! Had Rory and Tasha's family over for Good Friday Fish and Chips.it was delicious! Friday, May 30, 2014.

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Ciaran and Shay: April 21

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Friday, May 30, 2014. Subscribe to: Post Comments (Atom). Strength does not come from physical capacity. It comes from an indomitable will." - Mahatma Gandhi. Our two little fighters. Continually amaze us with their strength and determination to overcome adversity.we are so blessed to have you in our lives! Oakville, Ontario, Canada. View my complete profile. Stay a baby please please please. Enjoying the Small Things. Back to School Juice Cleanse and Other Ill-Timed Bad Decisions. A Life Less Ordinary.

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Ciaran and Shay: April 23

http://ciaranandshay.blogspot.com/2014/05/april-23_26.html

This little man is growing up way to quickly! It's exciting and sad all. At the same time. All I know is that he is pretty darn cute :). Monday, May 26, 2014. Subscribe to: Post Comments (Atom). Strength does not come from physical capacity. It comes from an indomitable will." - Mahatma Gandhi. Our two little fighters. Continually amaze us with their strength and determination to overcome adversity.we are so blessed to have you in our lives! Oakville, Ontario, Canada. View my complete profile. Day 49 - 58.

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Ciaran and Shay: Good Friday - Part 2

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Good Friday - Part 2. Our Good Friday tradition continues.I think we are eight years strong! Had Rory and Tasha's family over for Good Friday Fish and Chips.it was delicious! Kids had a blast.Lyla ended up asking if she could sleep over.ended up with six kids for the night.Bev joined us which is awesome. Always so good to see her! Friday, May 30, 2014. Subscribe to: Post Comments (Atom). Strength does not come from physical capacity. It comes from an indomitable will." - Mahatma Gandhi. The Big Black Boot.

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Ciaran and Shay: April 2013

http://ciaranandshay.blogspot.com/2013_04_01_archive.html

April 29 - Post 128. I have had the worst head cold/cough since I woke up Saturday morning. My head has felt like it is going to explode for the past three days straight - today has by far been the worst day yet.so hence, I cancelled riding tonight for the boys and I stayed in bed.so no pictures were taken. Tuesday, April 30, 2013. Links to this post. April 28 - Post 127. Tuesday, April 30, 2013. Links to this post. April 27 - Post 126. Tuesday, April 30, 2013. Links to this post. April 26 - Post 125.

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Ciaran and Shay: April 25

http://ciaranandshay.blogspot.com/2014/05/april-25.html

Ollie is finding a digging his way into all of our hearts…he is such a perfect puppy. Saturday, May 31, 2014. Subscribe to: Post Comments (Atom). Strength does not come from physical capacity. It comes from an indomitable will." - Mahatma Gandhi. Our two little fighters. Continually amaze us with their strength and determination to overcome adversity.we are so blessed to have you in our lives! Oakville, Ontario, Canada. View my complete profile. Stay a baby please please please. Enjoying the Small Things.

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Ciaran and Shay: May 2013

http://ciaranandshay.blogspot.com/2013_05_01_archive.html

Day 155 - May 26. This little boy has ZERO pre-tenses. He holds NO judgement. Through his eyes, all is good and innocent in this world. He has TWO heroes - his older brothers - Ciaran and Shay - there is nobody else in the world he would rather be than one of his brothers. Today Rowan was desperate to have his go at T-Ball. I love how much he looks up to Ciaran and Shay. He is determined to be just like them. Enjoyed a beautiful morning practicing our T Ball skills. Sunday, May 26, 2013. Day 154 - May 25.

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Ciaran and Shay: November 2014

http://ciaranandshay.blogspot.com/2014_11_01_archive.html

This post has been a LONG time coming! Life has been so hectic. Lots to share but NOTHING as important as this amazing video of Shay. So proud of you Shay-man! Tuesday, November 25, 2014. Links to this post. Subscribe to: Posts (Atom). Strength does not come from physical capacity. It comes from an indomitable will." - Mahatma Gandhi. Our two little fighters. Continually amaze us with their strength and determination to overcome adversity.we are so blessed to have you in our lives! A Life Less Ordinary.

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Ciaran and Shay: March 2013

http://ciaranandshay.blogspot.com/2013_03_01_archive.html

Post 87 - March 28. Speaking of Rowan being a big brother. The fourth addition of the Parreira/Sneyd household is expected at the end of July. We are very excited to add an additional child to our clan. I am 5 months - 1 week pregnant. So far.so good! Friday, March 29, 2013. Post 86 - March 27. Be pseudo big brother to. Boss" around. Today Rowan was sharing his cars and I pad with Vann. He LOVES. Friday, March 29, 2013. Day 85 - March 26. We are thankful that Ciaran responds to medication and that his li...

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A Life Less Ordinary

Sunday, January 21, 2018. And it's not what you think. It's not Elena. This week she was diagnosed with focal epilepsy. More tests are coming, and more information. Thursday, December 7, 2017. Since Elena is mainly a crutch user, her hands are busy most of the time. This makes carrying difficult. BACKPACK PICTURE, before school day (max weight). Which are pretty awesome. A hip pack is a great option; we have several sizes (small, large) and a few colors. Elena doesn't love the look. But it works. I've al...

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