Elijah's Hope is a non-profit organisation aimed at bringing together families affected by the rare disease, Apert Syndrome. This site will collate information about Apert syndrome and hopefully, as time goes on, become a repository of knowledge for both families and practitioners.
http://www.elijahshopeforapert.org/
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Home - Elijah's Hope for Apert syndrome | elijahshopeforapert.org Reviews
https://elijahshopeforapert.org
Elijah's Hope is a non-profit organisation aimed at bringing together families affected by the rare disease, Apert Syndrome. This site will collate information about Apert syndrome and hopefully, as time goes on, become a repository of knowledge for both families and practitioners.
elijahshopeforapert.org
RareConnect - Elijah's Hope for Apert syndrome
http://www.elijahshopeforapert.org/join-rareconnect
Living with Apert Syndrome Series. Postural Care It’s all about Family” Conference 2017. Connecting people living with Apert syndrome worldwide. Elijah's Hope has partnered with the European Organization for Rare Diseases, EURORDIS. To create an international online community for people living with Apert syndrome and their loved ones. It's our very own community for people with Apert and their families so come over and join us! Why Should I Join? Across: English, Spanish, French, German, and Italian.
Newsletter - Elijah's Hope for Apert syndrome
http://www.elijahshopeforapert.org/family-support/newsletter
Living with Apert Syndrome Series. Postural Care It’s all about Family” Conference 2017. Raquo; Family support. We’re delighted to bring you our full-colour newsletter which has news about what we’ve been doing. You can download it in pdf format by clicking the image. Let us know what you think! Our RareConnect forum for Apert syndrome: Join us! Living with Apert Syndrome Series. Postural Care It’s all about Family” Conference 2017. Privacy and Cookies Policy. Send to Email Address.
Elijah's story - Elijah's Hope for Apert syndrome
http://www.elijahshopeforapert.org/family-support/family-stories/elijahs-story
Living with Apert Syndrome Series. Postural Care It’s all about Family” Conference 2017. Raquo; Family support. Raquo; Family stories. Raquo; Elijah’s story. Elijah is a strong, brave and courageous young boy who suffers from Apert Syndrome, a congenital disorder characterised by deformities of the skull, face, hands and feet. Elijah as a baby. Apert Syndrome is hereditary, and something that his Mum Kaddy also suffers from, although she is largely able to live a healthy life herself. Kaddy said: Elijah ...
Apert Webinar - Elijah's Hope for Apert syndrome
http://www.elijahshopeforapert.org/family-support/apert-webinar
Living with Apert Syndrome Series. Postural Care It’s all about Family” Conference 2017. Raquo; Family support. Raquo; Apert Webinar. As a founding member of the RareConnect Apert syndrome community, we are proud to be able to bring you educational or informative webinars surrounding the issues faced by families who have a member with Apert. View our latest webinars below. View the Apert webinar discussion on grief, loss & depression. February 5, 2015. February 5, 2015. How do you carry on? Living with A...
Family support - Elijah's Hope for Apert syndrome
http://www.elijahshopeforapert.org/family-support
Living with Apert Syndrome Series. Postural Care It’s all about Family” Conference 2017. Raquo; Family support. Because Apert syndrome is such a rare condition, there are very few sources of patient support. At Elijah's Hope, we aim to provide you with Apert-specific sources of information about the condition and where you can find doctors who know more about it. There are some Craniofacial support groups and charities in various parts of the world, however. Living with Apert Syndrome Series.
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Elijah's Hope
Elijah's Hope
Jeune’s Asphyxi-ating Thoracic Dystrophy). Local family needs help for life-saving surgery. Nine-month-old Elijah Retter is a handsome little boy with his light brown hair and beautiful blue eyes. If you saw him, you’d never guess he has a rare and possibly fatal disease. Within two days, a geneticist came to Mike and Tina’s room and gave them the bad news. Elijah was diagnosed with Jeune’s Syndrome, also known as Jeune’s Asphyxi-ating Thoracic Dystrophy. The disease is a recess...Elijah’s father w...
Elijahs Hope Africa – Bringing Hope to the Forgotten Children
Bringing Hope to the Forgotten Children. Elijah’s Hope: Our Mission. Creating Opportunities for Self Sufficiency. Give to the Orphans. Thing Needed for Elijahs Hope. Elijah’s Hope: Our Mission. Elijah’s Hope is dedicated to bringing hope to the impoverished children of Africa. This humanitarian organization is focused on three key areas: hunger, education, and planting the seeds of faith. Planting the Seeds of Faith:. Proudly powered by WordPress.
Home - Elijah's Hope for Apert syndrome
Living with Apert Syndrome Series. Elijah's Hope is a non-profit organisation aimed at bringing together families affected by the rare disease, Apert Syndrome. This site will collate information about Apert syndrome and hopefully, as time goes on, become a repository of knowledge for both families and practitioners. We now have an updated date for our Postural Care Conference., 26th and 27th November 2015. Read more about the conference here. On the Elijah's Hope site. Available in five languages. IN ITA...
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I have conducted research in many different areas. I am currently working with industry leaders on sustainable resources and renewable energy. I want to help my community any way that I can. So, I volunteer in my spare time and try to help others. Some of my interests include music, baseball, basketball, video games and anime. This site is dedicated to letting my family friends, and colleagues know about me. Here, I'll share my thoughts, accomplishments, goals, and more info about me!
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Elijah's Hut, how to Connect:. 手機/cell:0921 821 525 Elijah's Hut: The Place Where Miracles Can Happen! 歇息片刻，安靜沉澱，重新得力 Take the time for a creative rest. Find out how God reveals His will to you. Become one of the lucky ones who MEET him! Mein Profil vollständig anzeigen. Montag, 12. Mai 2014. Maudie Brown's Special Exhibtion created in Elijah Hut! 手機/cell:0921 821 525 Elijah's Hut: The Place Where Miracles Can Happen! Diesen Post per E-Mail versenden. Mittwoch, 2. Oktober 2013. Montag, 5. August 2013.
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