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About European Huntington's Disease Network

EHDN has a New Website. We are happy to announce that EHDN has a new public face. Please visit us at www.ehdn.org. Find information based on your background as clinician, researcher, HD family member or sponsor. On this website you can still access the. For all other things please visit the EHDN webpage. The UHDRS Motor Certification. Has been moved to the HD Training Platform. This is immediately accessible for Enroll-HD site staff, and after an Application. For a User Account to others.

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About European Huntington's Disease Network | euro-hd.net Reviews

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EHDN has a New Website. We are happy to announce that EHDN has a new public face. Please visit us at www.ehdn.org. Find information based on your background as clinician, researcher, HD family member or sponsor. On this website you can still access the. For all other things please visit the EHDN webpage. The UHDRS Motor Certification. Has been moved to the HD Training Platform. This is immediately accessible for Enroll-HD site staff, and after an Application. For a User Account to others.

INTERNAL PAGES

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1

About European Huntington's Disease Network

http://www.euro-hd.net/html/network/project/hiq?eurohdsid=7259423a52155b3b9d77d3930c53c8c7

The Project - Sponsor High Q Foundation. Writing Committee Strategic . Scientific and Bioethics Advis. Is a private philanthropic foundation dedicated to finding therapies for Huntington's disease (HD). Over the past seven years High Q and its affiliates have committed more than $50 million to HD research directly and through organizations such as the Hereditary Disease Foundation. HDF), the Huntington's Disease Society of America. HDSA), and the Huntington Study Group. Last fall it was chartered as an i...

2

European Huntington's Disease Network

http://www.euro-hd.net/html/False

3

About European Huntington's Disease Network

http://www.euro-hd.net/html/network/locations?eurohdsid=7259423a52155b3b9d77d3930c53c8c7

Network - Locations of the Network.

4

About European Huntington's Disease Network

http://www.euro-hd.net/html/network

On this website you find information about the EHDN project (. Of EHDN, participating. And ongoing studies (. Click on the map of Europe and select your country. Language area coordination centres. Another way to navigate is to use the menu on the left. There you find Locations, Coordination Centres. And their contact details . Please feel free to contact us by phone, email or fax. Please see further information. Patients and Relatives . Physicians and Researchers . Apply for an EHDN Login! 28th Edition'...

5

Huntington's Disease

http://www.euro-hd.net/html/disease

Huntington's disease (HD) is an inherited, degenerative brain disorder. Named after physician George Huntington, who first described the illness in 1872. It is also sometimes referred to as Huntington's chorea. From the Greek word choreia. Due to the characteristic movement disorder that is a part of the illness. In former times it was called St. Vitus' Dance. HD is a genetic (hereditary). Every child of a parent who carries the HD gene has a 50:50 probability. How common is HD? About 30,000 people.

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LINKS TO THIS WEBSITE

shv.ch shv.ch

Links

http://www.shv.ch/links

Schweizerische Huntington Vereinigung SHV. Association Huntington France: huntington.fr. Deutsche Huntington-Hilfe: huntington-hilfe.de. Europäische Huntington-Netzwerk EHDN: www.euro-hd.net. Fédération Huntington Espoir: www.huntington-asso.fr. HD-Buzz, Huntington's disease research news http:/ en.hdbuzz.net. HD-Buzz, Neuigkeiten aus der Huntingtonforschung http:/ de.hdbuzz.net. HD-Buzz, Nouveauté sur la recherche dans la maladie de Huntington http:/ fr.hdbuzz.net. Cms website by masterhomepage.ch.

huntington-portugal.com huntington-portugal.com

ASSOCIAÇÃO PORTUGUESA DE DOENTES DE HUNTINGTON (APDH) » Documentário “Do you really want to know?” (2012)

http://www.huntington-portugal.com/archives/708

ASSOCIAÇÃO PORTUGUESA DE DOENTES DE HUNTINGTON (APDH). Documentário “Do you really want to know? April 10, 2015 at 10:21 am · Filed under Uncategorized. Um documentário que segue a vida de três famílias confrontadas com os aspectos emocionais, éticos e psicológicos que envolvem a realização do teste genético preditivo para a Doença de Huntington. Foi exibido no último Congresso Europeu sobre Doença de Huntington (Barcelona, 2014). Ver o documentário aqui. O site oficial do documentário aqui.

newshd.net newshd.net

Link | Huntington's Disease News

http://www.newshd.net/link

Venerdì, aprile 21, 2017. Sign in / Join. Log into your account. FDA approves a new drug for symptoms of Huntington’s disease. FDA Approves Second Drug for Huntington Disease Symptom. New discovery is a step towards developing Huntington’s disease treatments before…. Affrontare il rischio genetico e proteggere la speranza. Stanford study identifies new biomarkers for Huntington’s disease. HD free with PGD. Predictive testing for HD. Independent Swedish HD Site. 8211; Information in Swedish about HD.

expy.cz expy.cz

Užitečné odkazy: | EX

http://www.expy.cz/uzitecne-odkazy

Česká neurologická společnost http:/ www.czech-neuro.cz/. Slovenská neurologická spoločnosť http:/ www.snes.sk/cms/. Sekce kognitivní neurologie ČNS http:/ www.kognice.cz/. Neuropsychiatrické fórum http:/ www.conferencepartners.cz/NPF/. Neuropsychofarmakologická společnost http:/ www.cnps.cz/. Česká společnost pro klinickou neurofyziologii http:/ www.neurofyziologie.cz/. MOVEMENT DISORDER SOCIETY http:/ www.movementdisorders.org/. AMERICAN ACADEMY OF NEUROLOGY http:/ www.aan.com/. EXPY sekce je součástí ...

aiher.it aiher.it

I NOSTRI PROGETTI - Aiher

http://www.aiher.it/i-nostri-progetti

I NOSTRI PROGETTI - Aiher. La malattia di Huntington. Vivere con la MH. Al famgliare che presta cura. Diventa ns. socio. La malattia di Huntington. Vivere con la MH. Al famgliare che presta cura. Diventa ns. socio. Il nostro approccio alla malattia di Huntington. Vorremmo concorrere, consapevoli della limitatezza dei nostri mezzi e delle nostre competenze, allo sviluppo di un approccio integrato alla malattia di Huntington :. Promuovendo la ricerca scientifica e clinica;. Come illustrato al menù vivere c...

aiher.it aiher.it

LA NOSTRA ORGANIZZAZIONE - Aiher

http://www.aiher.it/48-2

LA NOSTRA ORGANIZZAZIONE - Aiher. La malattia di Huntington. Vivere con la MH. Al famgliare che presta cura. Diventa ns. socio. La malattia di Huntington. Vivere con la MH. Al famgliare che presta cura. Diventa ns. socio. Il Consiglio Direttivo di AIHER è attualmente costituito da sei persone:. Maria Bruna Corradini – Consigliere. Carlo Cozza – Consigliere. Antonio Fontana – Presidente. Monia Galli – Consigliere. Walter Mancini – Consigliere. Sonia Trebbi – Tesoriere. La Sezione di Modena.

aiher.it aiher.it

DIAGNOSI DELLA MALATTIA - Aiher

http://www.aiher.it/diagnosi-della-malattia

DIAGNOSI DELLA MALATTIA - Aiher. La malattia di Huntington. Vivere con la MH. Al famgliare che presta cura. Diventa ns. socio. La malattia di Huntington. Vivere con la MH. Al famgliare che presta cura. Diventa ns. socio. La diagnosi della malattia di Huntington non è sempre agevole e solo una parte dei portatori sintomatici sono iscritti nel registro regionale delle malattie rare. La diagnosi è clinica e può essere formulata anche in assenza dell’esito del test genetico. Alcuni Centri gestiscono direttam...

huntington-portugal.com huntington-portugal.com

ASSOCIAÇÃO PORTUGUESA DE DOENTES DE HUNTINGTON (APDH) » Livro “Despacha-te e Espera!”

http://www.huntington-portugal.com/livro-despacha-te-e-espera

ASSOCIAÇÃO PORTUGUESA DE DOENTES DE HUNTINGTON (APDH). Livro “Despacha-te e Espera! A Doença de Huntington (DH) apresenta uma série constante de desafios para integrar as alterações de pensamento que provoca, quer aos que por ela são afectados, quer aos que deles cuidam. O livro Despacha-te e Espera! Um conjunto de exercícios que simulam as dificuldades cognitivas que os doentes de Huntington enfrentam. Uma compilação de dicas para integrar essas dificuldades em sua casa ou na unidade clínica residencial.

huntington.nl huntington.nl

De ziekte van Huntington

http://www.huntington.nl/over-de-ziekte

Nieuws van de Huntington expertise-en zorgcentra. De ziekte van Huntington. Nederlands netwerk van onderzoekers naar de ziekte van Huntington (DHDRN). Kinderwens bij de ziekte van Huntington. Huntington in de media. Deelname aan media- activiteiten. Oproep door de media. Huntington in de bladen. Nieuws voor de jongeren. De ziekte van Huntington. De Vereniging van Huntington. Polikliniek voor de ziekte van Huntington (Grou). Expertisecentrum Huntington Topaz Overduin. Wooncentrum Willem Drees (Amstelring).

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About European Huntington's Disease Network

EHDN has a New Website. We are happy to announce that EHDN has a new public face. Please visit us at www.ehdn.org. Find information based on your background as clinician, researcher, HD family member or sponsor. On this website you can still access the. For all other things please visit the EHDN webpage. The UHDRS Motor Certification. Has been moved to the HD Training Platform. This is immediately accessible for Enroll-HD site staff, and after an Application. For a User Account to others.

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