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Carrie's story - from the heart | Express North magazine

http://expressnorth.co.uk/carries-story-straight-from-the-heart

Carrie’s story – straight from the heart. January 09, 2017. By : Lucy Richardson. WOMAN being fed directly into her heart is raising awareness of the rare condition from her hospital bed in Newcastle through social media. Was born with a genetic connective tissue disorder called Ehlers Danlos Syndrome (EDS) which causes her joints to dislocate on a daily basis, bruise from just a hug and resulted in her digestive system totally shutting down. 8220;I want to raise awareness of intestinal failure especiall...

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Gastroparesis and Ehlers-Danlos Syndrome: Photos

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Gastroparesis and Ehlers-Danlos Syndrome. My experiences of living with Gastroparesis and EDS. Written from the heart in the hope that one day things will change. What is a functional disorder? TPN (Total Parenteral Nutrition). Here is my gallery of photos from tests to surgery, I decided to post these to help other people like me to come to terms with what's happening to their bodies and what to expect if you are faced with the same decisions. Back when it was possible to eat a pork pie! More testing : (.

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Gastroparesis and Ehlers-Danlos Syndrome: Diary: Part 3

http://helpme-minx.blogspot.com/p/diary-2011-septdec.html

Gastroparesis and Ehlers-Danlos Syndrome. My experiences of living with Gastroparesis and EDS. Written from the heart in the hope that one day things will change. What is a functional disorder? TPN (Total Parenteral Nutrition). Please scroll to the bottom of the page for the most recent diary entry x. Thursday 15th September 2011. Well, my body is officially confused.com! This may not be so bad if everything else was going well, but that would be too easy! Sunday 18 September 2011. I was just missing the...

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Gastroparesis and Ehlers-Danlos Syndrome: Top 10 Posts

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Gastroparesis and Ehlers-Danlos Syndrome. My experiences of living with Gastroparesis and EDS. Written from the heart in the hope that one day things will change. What is a functional disorder? TPN (Total Parenteral Nutrition). Here are my top ten most popular posts! I hope you like them and find them useful x. What To Do If You Think You Have Gastroparesis" #Part 1. What To Do If You Think You Have Gastroparesis". What To Do If You Think You Have Gastroparesis" #Part 3. Never Ever Give Up! Please click ...

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Gastroparesis and Ehlers-Danlos Syndrome: Ehlers-Danlos syndrome

http://helpme-minx.blogspot.com/p/hypermobility-syndrome.html

Gastroparesis and Ehlers-Danlos Syndrome. My experiences of living with Gastroparesis and EDS. Written from the heart in the hope that one day things will change. What is a functional disorder? TPN (Total Parenteral Nutrition). I thought it would be useful to post my letter from the consultant diagnosing my EDS, as so many people have asked me to comment on my diagnosis. I am happy to review her from time to time as and when the need arises. Here is a great article I found explaining EDS/ Hypermobility.

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Gastroparesis and Ehlers-Danlos Syndrome: Useful Sites

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Gastroparesis and Ehlers-Danlos Syndrome. My experiences of living with Gastroparesis and EDS. Written from the heart in the hope that one day things will change. What is a functional disorder? TPN (Total Parenteral Nutrition). This page is dedicated to all the really useful websites I have found along my journey, if anyone has any suggestions for this page please place a comment below, Thanks! Gastroparesis and Intestinal Failure Trust (uk charity). Gastroparesis and Intestinal Failure Trust. Living wit...

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Gastroparesis and Ehlers-Danlos Syndrome: Videos

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Gastroparesis and Ehlers-Danlos Syndrome. My experiences of living with Gastroparesis and EDS. Written from the heart in the hope that one day things will change. What is a functional disorder? TPN (Total Parenteral Nutrition). Here are my videos in one easy place, hope you like them x. Make a video - it's fun, easy and free! 8 September 2015 at 16:14. Find joy and happiness where ever you can, YOU deserve it. Look after yourself and your beautiful children. Lots of love, Linda from Australia! I realise ...

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Gastroparesis and Ehlers-Danlos Syndrome: Be Somebody?

http://helpme-minx.blogspot.com/2014/10/be-somebody.html

Gastroparesis and Ehlers-Danlos Syndrome. My experiences of living with Gastroparesis and EDS. Written from the heart in the hope that one day things will change. What is a functional disorder? TPN (Total Parenteral Nutrition). Friday, 17 October 2014. Not because I was naughty… simply because I didn't have the courage to make myself heard. I found my "be somebody" job in nursing, I can honestly say I loved my time as a carer, I realised for the first time that I may not have the most glamourous job in t...

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Gastroparesis and Ehlers-Danlos Syndrome: Diary part 2

http://helpme-minx.blogspot.com/p/story-continues-diary-2011.html

Gastroparesis and Ehlers-Danlos Syndrome. My experiences of living with Gastroparesis and EDS. Written from the heart in the hope that one day things will change. What is a functional disorder? TPN (Total Parenteral Nutrition). Hey Guys, Welcome to my diary 2011. The diary is posted with all latest entries at the bottom so please scroll to the bottom of the page if you want to read the most up to date account. Happy New Year everyone! This is me now : (. Monday 3rd January 2011. I was allowed to go home ...