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Me, Myself and IBD | Page 2
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Me, Myself and IBD. April 2, 2015. Let the Battle Commence! In 2010 I was diagnosed with a condition called Primary Sclerosing Cholangitis, a rare progressive disorder characterized by inflammation, thickening, and abnormal formation of fibrous tissue (fibrosis) within the passages that carry bile from the liver (bile ducts). According to the medical literature, approximately 60 to 80 percent of individuals with PSC also have inflammatory bowel disease (IBD), most often Ulcerative Colitis (yipee for me!
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yourkirstyness | Me, Myself and IBD
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Me, Myself and IBD. October 23, 2016. PSC Awareness Week 2016. Today marks the start of PSC awareness week (23rd-29th October). Through researching the condition, I came to learn that PSC is classed as a rare disease, and classed as an extra-intestinal manifestation of IBD. Research told me that around 2% of people with Ulcerative Colitis are affected by PSC. June 29, 2016. Sharing the Patient Experience. I’m delighted that Scotland is becoming the pioneer of IBD care and is leading the way with a Nation...
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November | 2014 | Me, Myself and IBD
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Me, Myself and IBD. Monthly Archives: November 2014. November 15, 2014. Hospital admission number…(I’ve lost count, so let’s call this the 2014 admission). 23rd July 2014 14:15 I received a text from my dad asking if he could phone, I said he couldn’t and instead of his usual “ok” I got “ASAP” as a reply, I knew something was wrong, so I phoned him and burst into tears when he told me that he’s been asked to bring me into hospital. PSC Awareness Week 2016. Sharing the Patient Experience. On Sharing the P...
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Who am I? 2 4 6 0 1!!!!! | Me, Myself and IBD
https://yourkirstyness.wordpress.com/2015/01/25/who-am-i-2-4-6-0-1
Me, Myself and IBD. January 25, 2015. I’ve been chatting with some old school friends recently and the main question that has cropped up has always been why don’t I remember you? And it got me thinking, why don’t they remember me? Is it because of my geekiness, my (non-existent)charm and wit? Is it because I was a nobody in school or because I barricaded myself in the music department? Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. On Sharing ...
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Rare Disease Day 2015 | Me, Myself and IBD
https://yourkirstyness.wordpress.com/2015/02/28/rare-disease-day-2015
Me, Myself and IBD. Rare Disease Day 2015. February 28, 2015. The last day in February each year is Rare Disease Day, a chance for us all to raise awareness about our conditions and the impact it can have on our lives. A rare disease is defined as one that affects fewer than 1 in 1000. The relationship between these disorders and the exact cause of PSC are not fully understood. Hufflepuff Quidditch Captain, Singer, Gamer, IBD and PSC Survivor,Registered Mental Health Nurse, Ambassador to Alliance Scotlan...
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Be PSC Aware | Me, Myself and IBD
https://yourkirstyness.wordpress.com/2015/06/24/be-psc-aware
Me, Myself and IBD. June 24, 2015. June is PSC awareness week. But what is PSC I hear you ask? The exact cause of PSC is unknown, but in my case, it is related to Ulcerative Colitis. Research suggests that there may be a common cause for both conditions existing OR the inflamed colon allows toxins or infections to be absorbed into the body, causing the bile duct inflammation. I was diagnosed with PSC in 2010 and up until March 2015, it was relatively quiet. Leave a Reply Cancel reply. You are commenting ...
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April | 2015 | Me, Myself and IBD
https://yourkirstyness.wordpress.com/2015/04
Me, Myself and IBD. Monthly Archives: April 2015. April 2, 2015. Let the Battle Commence! In 2010 I was diagnosed with a condition called Primary Sclerosing Cholangitis, a rare progressive disorder characterized by inflammation, thickening, and abnormal formation of fibrous tissue (fibrosis) within the passages that carry bile from the liver (bile ducts). The relationship between these disorders and the exact cause of PSC are not fully understood. I am also due to have an ultrasound carried out on my liv...
yourkirstyness.wordpress.com
July | 2015 | Me, Myself and IBD
https://yourkirstyness.wordpress.com/2015/07
Me, Myself and IBD. Monthly Archives: July 2015. July 10, 2015. 8220;But You’re Young”. Yes, I am well aware that I am 25 years old, but that means nothing when it comes to health, or rather it should mean nothing when it comes to health, but it does:. You’re too young to have breast cancer ,. You’re too young to have cervical cancer ,. You’re too young to be this tired ,. You’re young, you can bounce back ,. You’re young; a late night shouldn’t bother you. It infuriates me that there is an expectation o...
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September | 2014 | Me, Myself and IBD
https://yourkirstyness.wordpress.com/2014/09
Me, Myself and IBD. Monthly Archives: September 2014. September 30, 2014. So, I decided to write a blog. I was diagnosed with Ulcerative Colitis in 1997, when I was 7 years old and later diagnosed with Primary Sclerosing Cholangitis in 2010, an uncommon liver condition that can be associated with bowel disease, such as Ulcerative Colitis. I remember the events leading up to both diagnoses clearly, but as I hope to write a few blogs, I won’t bore you with those details just yet. Late 2011/early 2012, a le...
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Hospital admission number…(I’ve lost count, so let’s call this the 2014 admission) | Me, Myself and IBD
https://yourkirstyness.wordpress.com/2014/11/15/hospital-admission-number-ive-lost-count-so-lets-call-this-the-2014-admission
Me, Myself and IBD. Hospital admission number…(I’ve lost count, so let’s call this the 2014 admission). November 15, 2014. 23rd July 2014 14:15 I received a text from my dad asking if he could phone, I said he couldn’t and instead of his usual “ok” I got “ASAP” as a reply, I knew something was wrong, so I phoned him and burst into tears when he told me that he’s been asked to bring me into hospital. Hufflepuff Quidditch Captain, Singer, Gamer, IBD and PSC Survivor,Registered Mental Health Nurse, Ambassad...
