jessicasjourneywithrettsyndome.blogspot.com
Jessica's Journey with Rett SyndromeA blog about a little girl's journey with Rett Syndrome
http://jessicasjourneywithrettsyndome.blogspot.com/
A blog about a little girl's journey with Rett Syndrome
http://jessicasjourneywithrettsyndome.blogspot.com/
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Jessica's Journey with Rett Syndrome | jessicasjourneywithrettsyndome.blogspot.com Reviews
https://jessicasjourneywithrettsyndome.blogspot.com
A blog about a little girl's journey with Rett Syndrome
jessicasjourneywithrettsyndome.blogspot.com
Jessica's Journey with Rett Syndrome: The cure for Rett Syndrome
http://www.jessicasjourneywithrettsyndome.blogspot.com/p/the-cure-for-rett-syndrome.html
Jessica was born in July 2009, and has Rett Syndrome. She lives with her parents and younger sister in London, UK. This blog is intended to keep family and friends updated on Jessica’s progress, to document how having a child with a profound disability affects our family life, and to keep me sane! If you are reading this, and something strikes a chord with you, or you just want to say hello, please comment so I know I am not talking to myself! The cure for Rett Syndrome. The cure for Rett Syndrome. What ...
Jessica's Journey with Rett Syndrome: August 2014
http://www.jessicasjourneywithrettsyndome.blogspot.com/2014_08_01_archive.html
Jessica was born in July 2009, and has Rett Syndrome. She lives with her parents and younger sister in London, UK. This blog is intended to keep family and friends updated on Jessica’s progress, to document how having a child with a profound disability affects our family life, and to keep me sane! If you are reading this, and something strikes a chord with you, or you just want to say hello, please comment so I know I am not talking to myself! The cure for Rett Syndrome. Thursday, 28 August 2014. And, ob...
Jessica's Journey with Rett Syndrome: April 2015
http://www.jessicasjourneywithrettsyndome.blogspot.com/2015_04_01_archive.html
Jessica was born in July 2009, and has Rett Syndrome. She lives with her parents and younger sister in London, UK. This blog is intended to keep family and friends updated on Jessica’s progress, to document how having a child with a profound disability affects our family life, and to keep me sane! If you are reading this, and something strikes a chord with you, or you just want to say hello, please comment so I know I am not talking to myself! The cure for Rett Syndrome. Thursday, 30 April 2015. This has...
Jessica's Journey with Rett Syndrome: July 2015
http://www.jessicasjourneywithrettsyndome.blogspot.com/2015_07_01_archive.html
Jessica was born in July 2009, and has Rett Syndrome. She lives with her parents and younger sister in London, UK. This blog is intended to keep family and friends updated on Jessica’s progress, to document how having a child with a profound disability affects our family life, and to keep me sane! If you are reading this, and something strikes a chord with you, or you just want to say hello, please comment so I know I am not talking to myself! The cure for Rett Syndrome. Saturday, 18 July 2015. When Anna...
Jessica's Journey with Rett Syndrome: Siblings
http://www.jessicasjourneywithrettsyndome.blogspot.com/2015/07/siblings.html
Jessica was born in July 2009, and has Rett Syndrome. She lives with her parents and younger sister in London, UK. This blog is intended to keep family and friends updated on Jessica’s progress, to document how having a child with a profound disability affects our family life, and to keep me sane! If you are reading this, and something strikes a chord with you, or you just want to say hello, please comment so I know I am not talking to myself! The cure for Rett Syndrome. Saturday, 18 July 2015. When Anna...
TOTAL PAGES IN THIS WEBSITE
19
Sunshine in a Hypotonic World: September 2014
http://hypotonicworld.blogspot.com/2014_09_01_archive.html
Sunshine in a Hypotonic World. Living in the world of Rett Syndrome, celebrating all the little victories, taking life one day at a time and trying to keep a sense of humor about it all. What is Rett Syndrome? Wednesday, September 3, 2014. Upper EnDO or EnDON'T. We're at a crossroad again. I'm standing here ( actually sitting. Trying to make an educated decision about how to proceed. We've hit a few rough patches this summer including:. A battle with pneumonia ( a four letter word in our home. The end of...
Sunshine in a Hypotonic World: Upper EnDO or EnDON'T
http://hypotonicworld.blogspot.com/2014/09/upper-endo-or-endont.html
Sunshine in a Hypotonic World. Living in the world of Rett Syndrome, celebrating all the little victories, taking life one day at a time and trying to keep a sense of humor about it all. What is Rett Syndrome? Wednesday, September 3, 2014. Upper EnDO or EnDON'T. We're at a crossroad again. I'm standing here ( actually sitting. Trying to make an educated decision about how to proceed. We've hit a few rough patches this summer including:. A battle with pneumonia ( a four letter word in our home. The end of...
Sunshine in a Hypotonic World: August 2014
http://hypotonicworld.blogspot.com/2014_08_01_archive.html
Sunshine in a Hypotonic World. Living in the world of Rett Syndrome, celebrating all the little victories, taking life one day at a time and trying to keep a sense of humor about it all. What is Rett Syndrome? Saturday, August 23, 2014. Save Access to AAC Devices! You can communicate and participate in the world around you. Now, imagine that you do not have the ability to communicate at all. Zip Zilch. Nada. Many ( if not most. But we are still just doing the best we can to pinpoint what they need/want.
Sunshine in a Hypotonic World: Rae's Book Review: You Are Special
http://hypotonicworld.blogspot.com/2012/12/raes-book-review-you-are-special.html
Sunshine in a Hypotonic World. Living in the world of Rett Syndrome, celebrating all the little victories, taking life one day at a time and trying to keep a sense of humor about it all. What is Rett Syndrome? Thursday, December 6, 2012. Rae's Book Review: You Are Special. Awhile back, I ventured into my local Lifeway Christian Bookstore and while perusing the children's books, I came across the story of Punchinello, a Wemmick ( think Pinocchio after he came to life, but before he became a "real boy".
Sunshine in a Hypotonic World: July 2014
http://hypotonicworld.blogspot.com/2014_07_01_archive.html
Sunshine in a Hypotonic World. Living in the world of Rett Syndrome, celebrating all the little victories, taking life one day at a time and trying to keep a sense of humor about it all. What is Rett Syndrome? Monday, July 28, 2014. Rae's Book Review: Just Because. Was written and illustrated by Rebecca Elliot. And he doesn't know why. "Just because.". Such a simple, no nonsense statement. Clemmie is a lot like a princess ( so is our Evie. She makes sweet noises and funny faces. Links to this post. Evie ...
Sunshine in a Hypotonic World: January 2015
http://hypotonicworld.blogspot.com/2015_01_01_archive.html
Sunshine in a Hypotonic World. Living in the world of Rett Syndrome, celebrating all the little victories, taking life one day at a time and trying to keep a sense of humor about it all. What is Rett Syndrome? Tuesday, January 6, 2015. When There Are No Words. It seems weird to write a post about there being no words, but more often than not I find that there just aren't adequate words to express my sorrows and empathy to members of our Rett community. Nothing I can think of feels right. These are the on...
Sunshine in a Hypotonic World: The Diagnosis is....(drum roll).....
http://hypotonicworld.blogspot.com/2013/02/the-diagnosis-isdrum-roll.html
Sunshine in a Hypotonic World. Living in the world of Rett Syndrome, celebrating all the little victories, taking life one day at a time and trying to keep a sense of humor about it all. What is Rett Syndrome? Saturday, February 2, 2013. The Diagnosis is.(drum roll). At 9am on Friday morning, we received an email ( in our special encrypted inbox. And after scanning the nine pages as quickly as possible I found the official diagnosis. Rae has Rett Syndrome. What's that you ask? Causes problems in brain fu...
Sunshine in a Hypotonic World: More Than I Can Handle
http://hypotonicworld.blogspot.com/2012/11/more-than-i-can-handle.html
Sunshine in a Hypotonic World. Living in the world of Rett Syndrome, celebrating all the little victories, taking life one day at a time and trying to keep a sense of humor about it all. What is Rett Syndrome? Wednesday, November 21, 2012. More Than I Can Handle. You might want to get comfortable for this post.it's a tad long. I have wanted to write on this topic for months, but just needed to really get my thoughts together before putting them out there for the world. I'll give you a minute. This misnom...
Sunshine in a Hypotonic World: April 2014
http://hypotonicworld.blogspot.com/2014_04_01_archive.html
Sunshine in a Hypotonic World. Living in the world of Rett Syndrome, celebrating all the little victories, taking life one day at a time and trying to keep a sense of humor about it all. What is Rett Syndrome? Monday, April 28, 2014. The "R" Word and Beyond. Her small body goes rigid, her hands become manic, and she breathes heavily. As I sat there collecting myself after her episode, a sound I am all too familiar with made it's way to my ears. The sound of adult men (. Noises. I'm sure you can hear ...
Sunshine in a Hypotonic World: April 2015
http://hypotonicworld.blogspot.com/2015_04_01_archive.html
Sunshine in a Hypotonic World. Living in the world of Rett Syndrome, celebrating all the little victories, taking life one day at a time and trying to keep a sense of humor about it all. What is Rett Syndrome? Tuesday, April 7, 2015. Accepting the Answer Given. A few weeks ago, when I managed to pull myself together, I attended church. I just sat there with my hands in my lap. Trapped in my own thoughts. Not focused on the sermon. I can't even tell you where my mind drifted off to during ...The message c...
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jessicasjourneythroughchildrenslit.blogspot.com
Jessica's Journey Through Children's Lit
Saturday, November 29, 2008. The Top 10 Ways to Ruin the First Day of School (Realistic Fiction). The Top 10 Ways to Ruin the First Day of School by Ken Derby is a great book and I could see all readers enjoying it. JK Rowling by pm Boekhoff and Stuart A. Kallen (Informational). Oh, The Places He Went: A Story About Dr. Seuss by Maryann N. Weidt (Informational). Friday, November 28, 2008. Harry Potter and the Prisoner of Azkaban: Series Study (Harry Potter). The Watsons Go To Birmingham- 1963. The Myster...
jessicasjourneyto100miles.blogspot.com
Jessica's Journey to 100 miles
Jessica's Journey to 100 miles. Sunday, March 25, 2012. I am not an athlete. In school gym was my worst class….well that and Spanish….and Algebra! But anyway gym class was awful for me. I do not have the body of an athlete, I do not have the mindset of an athlete, so the fact that I just finished my second 100 mile bike ride is surreal to me. I swore up and down after my first century ride that I would never do this again. But I did….and I did it because people are still suffering. So….my 2. If anyone is...
jessicasjourneytonothingness.blogspot.com
Jessica's Journey to Nothingness
Jessica's Journey to Nothingness. Tuesday, October 23, 2012. Day 79: Digging My Own Grave. This is a continuation to Day 78: I Need Stability In My Life. Myself that I have accepted. And allowed myself to actually be relieved/relaxed and at ease when/as I am having trouble making a choice. To live that what will bring about a change. And thus take into consideration how much responsibility I am willing to live here in this one life to bring about a change. My talk - lol. I forgive myself that I have acce...
jessicasjourneytowhateveritis.blogspot.com
Jessica's Journey to Whatever It Is
Jessica's Journey to Whatever It Is. A tidbit of words that may follow my journey. Between allergies, anaphylaxis, celiacs, and my most troublesome newly diagnosed gastroparesis. Follow me through the ups, downs, and sideways turns that this journey takes me on. Prepare for unedited, real life, all over the place rambles of whatever it is. Saturday, June 22, 2013. What's it like being me #1. What is it like to be me? So I thought Id just kind of reflect. Now imagine doing that everyday. This didn't start...
jessicasjourneywithrettsyndome.blogspot.com
Jessica's Journey with Rett Syndrome
Jessica was born in July 2009, and has Rett Syndrome. She lives with her parents and younger sister in London, UK. This blog is intended to keep family and friends updated on Jessica’s progress, to document how having a child with a profound disability affects our family life, and to keep me sane! If you are reading this, and something strikes a chord with you, or you just want to say hello, please comment so I know I am not talking to myself! The cure for Rett Syndrome. Saturday, 18 July 2015. When Anna...
Jessica's Joygivers
Mary Kay Independent Sr. Sales Director. Mary Kay Independent Sr. Sales Director. Seminar 2018 Unit Goals. This is my husband, Mark, our kids, Leah (12yrs), Michael (10yrs), and Brianna (7yrs), and Brayden (5yrs) and Alyssa (3yrs)! I love that Mary Kay allows me the flexibility to work from home, homeschool, and spend lots of time with my family and friends! I've had the privilege to bring all of my kids home from the hospital in Mary Kay cars and our youngest 2 though adoption! I know you can do it!
Jessica's Joys
Thursday, July 16, 2015. May leftovers-It was a busy month with things wrapping up for the school year. Ellie and Jaren had their piano recital where they each played a solo and a duet together. They did amazing! They love their teacher, Kristi Wendt! Jaren picked Australia for his World's Fair project and did an awesome job! Soccer was in full gear. Here is Ellie with the Lake Mills girls that are her age. Dru and I found a turtle on the path we were running on, protecting her egg. Happy 100th Birthday ...
Jessica's Journal and Joys
Jessica's Journal and Joys. Do You Know Who You Are? Starting Over In Blogs and Life. Do You Know Who You Are? Starting Over In Blogs and Life. Do You Know Who You Are? Starting Over In Blogs and Life. Create a free website or blog at WordPress.com. Follow “Jessica's Journal and Joys”. Get every new post delivered to your Inbox. Build a website with WordPress.com.
Jessica's Joys
Sunday, May 8, 2016. The both of you have made me a mommy. It's the greatest most important job in the whole world. I cherish every single moment I spend with you.being your mommy has made me whole and complete. I couldn't imagine doing anything else with my life. I'm so thankful to you both and your daddy for giving me the greatest job there is. We had so much fun on my first Mother's Day to two precious babies. Monday, March 28, 2016. March 28, 2016. Sunday, January 24, 2016. He said when y'all got the...
jessicasjubilantshindigspot.blogspot.com
Time to spill those beans...
Time to spill those beans. I like to think. And I really like to write. So, alas, here is where I'll spill all those thoughts that would just rattle around in my noggin otherwise. It's a scientific fact- rattling thoughts are hazardous to one's health :). Tuesday, September 29, 2009. I have a VACATION itch. Have you ever just gotten a wee bit tired of the monotony of life and wanted to throw an extra shirt in the backseat (and your make-up, of course) and take off for someplace unknown? I'll bet it was o...
