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MECP2 – huh?!?? | Breaking Out of My Cage
https://gabyvalner.wordpress.com/2011/01/26/mecp2
Breaking Out of My Cage. My voice; my life with Rett Syndrome. MECP2 – huh? January 26, 2011. All my life I have been defined as having autism. Due to the diligence and hard work of one of my wonderful doctors, Dr. Ricki Robinson, not to mention my amazing mom, we made an exciting discovery last year: I actually have a specific gene disorder known as MECP2. It all sounds like a foreign language to me. Feel free to correct me with comments or to elaborate. The key. →. January 27, 2011 at 2:06 am. The othe...
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October | 2011 | Breaking Out of My Cage
https://gabyvalner.wordpress.com/2011/10
Breaking Out of My Cage. My voice; my life with Rett Syndrome. Monthly Archives: October 2011. Long time no blog! October 25, 2011. My Experience With Rett Syndrome. There are so many things I could share with the world about myself, but the volumes of information I have to share would keep us here until they discover a treatment for Rett Syndrome. What I can do now is give you a glimpse of the tip of the iceberg. I do know how fortunate I’ve been in having an amazing support team that is constantly grow...
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gossip girl. are you? | Breaking Out of My Cage
https://gabyvalner.wordpress.com/2011/02/02/gossip-girl-are-you
Breaking Out of My Cage. My voice; my life with Rett Syndrome. Gossip girl. are you? February 2, 2011. I wouldn’t say that I like to gossip, because I seldom exchange information about others with others. However, I will listen to others’ conversations and form opinions on the matter. People sometimes think that I am in my own world, not paying attention, but I actually have excellent hearing and I often listen to strangers gossiping when I am out and about. Is there anything wrong with gossiping? Gossip...
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August | 2014 | Breaking Out of My Cage
https://gabyvalner.wordpress.com/2014/08
Breaking Out of My Cage. My voice; my life with Rett Syndrome. Monthly Archives: August 2014. August 18, 2014. I don’t even know how long it has been but I am getting ready to bring this back to life. I will try to use it to keep in better touch with the world and the Rett Syndrome community, especially as we are planning our annual fundraiser in October. More about that later. Anyway, just a quick hello for now. Hope the new layout and intention will be to my readers’ liking. View all 5 comments.
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October | 2014 | Breaking Out of My Cage
https://gabyvalner.wordpress.com/2014/10
Breaking Out of My Cage. My voice; my life with Rett Syndrome. Monthly Archives: October 2014. Answers and a Speech. October 13, 2014. My role is not only to speak on behalf of the girls without a voice; I also hope to provide some support for the parents and families who are so devoted to our girls. I have gotten so many questions from parents seeking to better understand their daughters; while each one of us is different, I hope my sharing of my own experiences will do something to help.
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Should I? | Breaking Out of My Cage
https://gabyvalner.wordpress.com/2011/06/02/should-i
Breaking Out of My Cage. My voice; my life with Rett Syndrome. June 2, 2011. Have any of my readers (besides my wonderful sister Danielle) gone gluten-free? I’m pretty sure I want to try it but might need more convincing because it is a big step. I have not been feeling super healthy lately and sometimes when you don’t feel good you lash out at people. People named Joanne. (she knows. Andrea and robin too. And family. Hahand, sorry.). Leli, any thoughts since you made the switch? June 3, 2011 at 5:53 am.
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Light at the end of the tunnel. | Breaking Out of My Cage
https://gabyvalner.wordpress.com/2011/06/15/light-at-the-end-of-the-tunnel
Breaking Out of My Cage. My voice; my life with Rett Syndrome. Light at the end of the tunnel. June 15, 2011. School is almost done. We had a ceremony on Monday and I presented this speech I wrote. Beach day Friday and that’s all! The classic epic poem. 7 thoughts on “ Light at the end of the tunnel. June 15, 2011 at 5:34 pm. June 16, 2011 at 3:39 am. June 16, 2011 at 10:07 pm. June 17, 2011 at 5:12 am. Gaby, I share sentiments of Phyllis as stated above. It is wonderful to witness your transformatio...
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hello! | Breaking Out of My Cage
https://gabyvalner.wordpress.com/2012/01/19/hello
Breaking Out of My Cage. My voice; my life with Rett Syndrome. January 19, 2012. I want to try to start blogging more, but the last year of high school is keeping me so busy. Here is what I did over vacation:. My time over winter break this year was not spent vacationing or adventuring, yet it definitely was not squandered. Even though I might have preferred to be really on vacation, nobody can complain about a staycation in Los Angeles. When you think of LA, what comes to mind? Long time no blog! Grandm...
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poem. | Breaking Out of My Cage
https://gabyvalner.wordpress.com/2011/05/19/poem
Breaking Out of My Cage. My voice; my life with Rett Syndrome. May 19, 2011. I was getting my butt kicked by school, but I finished a couple hard tests and now I am back. Here is a poem I wrote today. Enjoy. A Mind Comes to Light. From the foggy deep,. A mind chained and bound. Finds the light, a flickering dim glow. To add to the infant flame. The mind uses kindling. Knowledge, books;. Soon, a fluorescent glow burns bright. From the foggy deep,. 7 thoughts on “ poem. May 19, 2011 at 8:13 pm. I look forw...
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Breaking Out of My Cage | My voice; my life with Rett Syndrome | Page 2
https://gabyvalner.wordpress.com/page/2
Breaking Out of My Cage. My voice; my life with Rett Syndrome. Long time no blog! October 25, 2011. My Experience With Rett Syndrome. There are so many things I could share with the world about myself, but the volumes of information I have to share would keep us here until they discover a treatment for Rett Syndrome. What I can do now is give you a glimpse of the tip of the iceberg. I once wrote a blog answering the question of whether or not I believe in luck. Here is what I said:. I do know how fortuna...