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Ldquo;Studies show that Neurofibromatosis occurs in almost 1:2,500 people. You are not alone.”. Join the conversation. Share your story. Tweets by @NF society NS. We look very forward to meeting folks similarly motivated and in touching lives. To contact NFSNS, email info@nfsns.org. Natasha’s journey with NF began in highschool when a bump appeared on her leg. Through her experience, she looks forward to raising awareness about NF. Click to read more. Click to read more. Click to read more.

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Ldquo;Studies show that Neurofibromatosis occurs in almost 1:2,500 people. You are not alone.”. Join the conversation. Share your story. Tweets by @NF society NS. We look very forward to meeting folks similarly motivated and in touching lives. To contact NFSNS, email info@nfsns.org. Natasha’s journey with NF began in highschool when a bump appeared on her leg. Through her experience, she looks forward to raising awareness about NF. Click to read more. Click to read more. Click to read more.
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NFSNS | Home | Welcome | nfsns.org Reviews

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Ldquo;Studies show that Neurofibromatosis occurs in almost 1:2,500 people. You are not alone.”. Join the conversation. Share your story. Tweets by @NF society NS. We look very forward to meeting folks similarly motivated and in touching lives. To contact NFSNS, email info@nfsns.org. Natasha’s journey with NF began in highschool when a bump appeared on her leg. Through her experience, she looks forward to raising awareness about NF. Click to read more. Click to read more. Click to read more.

INTERNAL PAGES

nfsns.org nfsns.org
1

NFSNS | Home | Welcome

http://www.nfsns.org/nf1.html

Neurofibromatosis 1 (NF1) is also known as Von Recklinghausen NF and occurs in 1:3,000 births. NF1 is characterized by multiple cafe-au-lait spots and neurofibromas on or under the skin as well as enlargement and/or deformation of bones and scoliosis of the spine. Do I have NF1? This is a question best answered by a physician knowledgeable about NF, however, as a general guide, doctors will look for two or more of the following criteria:. Family history of NF1. Six or more cafe-au-lait spots. For many pe...

2

NFSNS | Home | Welcome

http://www.nfsns.org/nf2.html

Neurofibromatosis2 (NF2) is considerably more rare than NF1 occurring in 1:25,000 births. NF2 is characterized by multiple tumors on the cranial and spinal nerves as well as auditory nerves. Hearing loss is the hallmark of NF2 and often begins in the teens or early twenties as the first symptom. Affected acoustic and vestibular nerves are also responsible for the common symptoms of tinnitus (ringing in the ears) and loss of balance. Do I have NF2? Any two of the following: meningoma, glioma, schwannoma, ...

3

NFSNS | Home | Welcome

http://www.nfsns.org/schwannomatosis.html

Schwannomatosis is a rare form of NF that has only recently been recognized and appears to affect 1:40,000 individuals. Because it is so newly recognized, it is much less well understood than NF1 and NF2. Do I have schwannomatosis? Individual is over 30 years and all of the following,. Has two or more non-intradermal schwannomas, at least one with histological confirmation. No evidence of vestibular tumor on a high quality MRI scan. Has no constitutional NF2 mutation. Has two or more non-intradermal schw...

4

NFSNS | Home | Welcome

http://www.nfsns.org/glossary.html

Tumours on the nerves that lead from the ears to the brain which enable a person to hear. The process by which one gene of a pair causes the expression of a trait or disorder. Such a gene has 50% chance of being passed on to each child of an affected parent. Light brown flat spots on the skin, variable in size and shape. Six or more spots with a minimum diameter in children, and diamtere in adults is usually a sign of NF. Computer Axial Tomography (CAT) Scan. A type of brain tumour. Situated away from th...

5

NFSNS | Home | Welcome

http://www.nfsns.org/resource-links.html

Nova Scotia Health and Support. Health and Welfare Initiatives, Programs and Services. Capital Health District Information. NF Society of Ontario. The Friedman Lab at UBC, Canadian NF Research. That we will support! John’s Hopkins University, NF Centre. Take Part Database, Registry and Other Important Links. NF Registry @ CTF. Research, events and information on new studies. Local, national and global resources, and NF signups. Or volunteer your time. Or have an idea? Glen Margaret, Nova Scotia.

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swimminhill.com swimminhill.com

Our most exciting fundraiser yet! | Tales From Swimmin Hill

https://swimminhill.com/2016/09/09/our-most-exciting-fundraiser-yet

Tales From Swimmin Hill. The little things. Our little things. Our most exciting fundraiser yet! September 9, 2016. September 9, 2016. But maybe I’m partial. After much deliberation, we’ve come up with a beautiful set of four linen note cards featuring mom’s original artwork to sell in support of the Neurofibromatosis Society of Nova Scotia. If you’re interested in purchasing, you can do so by emailing me at info@nfsns.org. Without further ado, here are the beauts in all their glory…. Tales from the hill.

swimminhill.com swimminhill.com

Strong or Stubborn? | Tales From Swimmin Hill

https://swimminhill.com/2016/10/24/strong-or-stubborn

Tales From Swimmin Hill. The little things. Our little things. October 24, 2016. October 24, 2016. Well, I behaved and lived to tell the tale. Now we wait up to two weeks to see if there’s relief worthy of the whole rigmarole. During my down time I was binge watching a Canadian program, Blackstone. 8220;You know, not asking for or accepting help is not being strong. This is being stubborn. It is asking for help that makes one strong.”. Way to make my guilty binge-watching fruitful! All of us can take awa...

swimminhill.com swimminhill.com

Swimminhill | Tales From Swimmin Hill

https://swimminhill.com/author/swimminhill

Tales From Swimmin Hill. The little things. Our little things. February 23, 2017. Like anyone, when meeting new folks, I’m often asked, “. So what do you do? I always want to say “. Oh, I grow tumors for a living. 8221; But refrain (mostly). Honestly, I never know how to answer. It tends to make me blush and stammer my way through something other than shamelessly admitting that I have a serious, chronic medical condition and am on disability. Why is that so hard to say out loud? After physio, I got a pho...

simplygorgeousnaturals.ca simplygorgeousnaturals.ca

Simply Curious - Simply Gorgeous - natural meets something good

http://www.simplygorgeousnaturals.ca/simply-curious.html

Because our products have no chemicals, preservatives or otherwise icky, unnatural. They have a limited shelf life. It's hard to put a definitive number on it, but like all things fresh, potency decreases over time. This is why I like the smaller jars for lotion. That said, it's best to use up lotions and deodorant within six months, but they should be fine for up to a year. Tips to keep your purchases in top shape? Store with the lid on and out of direct sunlight. SG products are made with all-natural i...

simplygorgeousnaturals.ca simplygorgeousnaturals.ca

About Us - Simply Gorgeous - natural meets something good

http://www.simplygorgeousnaturals.ca/about-us.html

Want to know about Simply Gorgeous? Well, it's a one man show with a lot of wonderful, patient, and committed followers helping with product development. I make all natural bath and body products in my home in Glen Margaret, Nova Scotia. The best part is, that on top of using only natural ingredients, our home is totally off the grid, so any electricity used in the process is clean, solar and wind energy. I've always been envious of people who find something they're passionate about. There are lots o...

swimminhill.com swimminhill.com

The Juggler | Tales From Swimmin Hill

https://swimminhill.com/2016/08/05/the-juggler

Tales From Swimmin Hill. The little things. Our little things. August 5, 2016. I’ve been saying. 8220;Things really need to change, my lifestyle needs to change. Something just has to give…”. To myself, to this blog and to anyone who will listen for quite some time. But in my life, I just can’t imagine what it is that. So it came down to the charity, NFSNS. And my business, Simply Gorgeous. I have to battle through pain to make my products, I can only mix on ‘good days’, I forget orders and m...I do have...

swimminhill.com swimminhill.com

Likey Links | Tales From Swimmin Hill

https://swimminhill.com/likey-links

Tales From Swimmin Hill. The little things. Our little things. This is a page where I’ll share links to sites I find helpful, inspiring, informative, self-promoting (you know me! And other local businesses I’d like to support. I’ll start with the self-promotion:. Simply Gorgeous Bath and Beauty. My line of handmade, all natural bath and body products for the whole family. The Neurofibromatosis Society of Nova Scotia. Informative Sites for NF (and other health conditions):. The Childrens Tumor Foundation.

nfon.ca nfon.ca

NF Community Links - Neurofibromatosis Society of Ontario

http://www.nfon.ca/nf-community-links.html

British Columbia Neurofibromatosis Foundation. Neurofibromatosis Society of Nova Scotia. Association de la Neurofibromatose du Québec. Manitoba Neurofibromatosis Support Group. Children’s Tumour Foundation. Washington University NF Registry.

anfq.org anfq.org

Home

http://www.anfq.org/index.php/en/25-en-gb/uncategorised

Why become a member? The links were placed in different sections for easy reading and accessibility. You have a website you'd like to share? Manitoba Neurofibromatosis Support Group. The NF Society of Ontario. The NF Society of Ontario is a charitable non-profit organization for individuals and families across Ontario. British Colombia Neurofibromatosis Foundation. BCNF, a charitable non-profit organization for individuals and families throughout British Columbia and western Canada. Projet de recherche c...

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NFSNS | Home | Welcome

Ldquo;Studies show that Neurofibromatosis occurs in almost 1:2,500 people. You are not alone.”. Join the conversation. Share your story. Tweets by @NF society NS. We look very forward to meeting folks similarly motivated and in touching lives. To contact NFSNS, email info@nfsns.org. Natasha’s journey with NF began in highschool when a bump appeared on her leg. Through her experience, she looks forward to raising awareness about NF. Click to read more. Click to read more. Click to read more.

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