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oneoffordinary | Living an ordinary family life with a "one off" child

Living an ordinary family life with a "one off" child

http://oneoffordinary.wordpress.com/

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oneoffordinary | Living an ordinary family life with a "one off" child | oneoffordinary.wordpress.com Reviews

https://oneoffordinary.wordpress.com

Living an ordinary family life with a "one off" child

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1

Liebster Award | oneoffordinary

https://oneoffordinary.wordpress.com/2013/07/09/liebster-award

Living an ordinary family life with a one off child. Playing Catch Up →. Raquo; Liebster Award. July 9, 2013. I was very shocked this morning when I found out that the lovely Mr Boos Mum at Premmeditations. However there were strict instructions that had to be followed in accepting the award and these are:. Give a link back to the blog that nominated me (please see above! Answer some questions set by Premmeditations. Reveal 11 random facts about myself. Nominate 5-11 new blogs. 2 What keeps you blogging?

2

oneoffordinary | Living an ordinary family life with a "one off" child | Page 2

https://oneoffordinary.wordpress.com/page/2

Living an ordinary family life with a one off child. Newer posts →. June 27, 2013. Fed up of six-monthly development checks by the paediatrician when he was scored against a chart, I started my own book in which I wrote down all the new things he had done that month and what his favourite activities were. This was my happy book, something that allowed me to celebrate my son in the face of an outside world that was smacking me in the face with all the things he couldn’t do. Light through frosted glass.

3

School gate tears | oneoffordinary

https://oneoffordinary.wordpress.com/2013/07/04/school-gate-tears

Living an ordinary family life with a one off child. Liebster Award →. Raquo; June 2013. Raquo; School gate tears. July 4, 2013. Yesterday was a difficult day, I felt really, really sad and a bit angry; but, oddly, today I don’t at all. Today I feel tired and drained, it has been a roller-coaster two days. Two transition to school days. If you have a similar schooling arrangement I’d really love to hear from you; especially what worked, what doesn’t and how you’ve managed to keep involv...Hi, I used to w...

4

Playing Catch Up | oneoffordinary

https://oneoffordinary.wordpress.com/2013/07/16/playing-catch-up

Living an ordinary family life with a one off child. A One Day Holiday →. Raquo; July 2013. Raquo; Playing Catch Up. July 16, 2013. This week I heard words that, to be honest, I’d given up on waiting to hear long ago. Three little words that astounded me. 8220;Might catch up”. When Jacob stopped receiving play development therapy from portage. We were referred to a local outreach service run by a charity called BIBIC. He might catch up? 8221; She smiled, nodded and stressed “He. This entry was posted in ...

5

The One where Camp Amazing turns out to be… amazing | oneoffordinary

https://oneoffordinary.wordpress.com/2013/08/01/the-one-where-camp-amazing-turns-out-to-be-amazing

Living an ordinary family life with a one off child. A One Day Holiday. Sensory Hidden Treasure →. Raquo; July 2013. Raquo; The One where Camp Amazing turns out to be… amazing. The One where Camp Amazing turns out to be… amazing. August 1, 2013. As the holiday drew slowly nearer, I slowly began to panic slightly. What was I thinking? As it turned out the only things I really needed to worry about were:. Would we be able to fit everything in our car and roof box? Seriously, this is half of our stuff:.

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itssmallsworld.wordpress.com itssmallsworld.wordpress.com

A Precarious Balancing Act | itssmallsworld

https://itssmallsworld.wordpress.com/2015/01/19/a-precarious-balancing-act

Life with a Small boy with disabilities. A Precarious Balancing Act. Right now, right at this moment, my life feels almost balanced. I am, to be honest, nervous of writing this down, of letting this cat jump out of its bag, in case the whole thing comes crashing down again. I am still ably employed. *Shouts* ‘I, a parent of a disabled child, I am actually working! 8217; I am one of that shamefully low number – 16% of all mothers of disabled children – who have found, and maintained, employment. 8216;I&#8...

itssmallsworld.wordpress.com itssmallsworld.wordpress.com

Could I have a lift…? | itssmallsworld

https://itssmallsworld.wordpress.com/2014/12/04/could-i-have-a-lift

Life with a Small boy with disabilities. Could I have a lift…? 8216;I’m not sure how much longer I can carry him. And that makes me sad’. This is a conversation we have at home frequently. At just over 20kg Small is way over the limit of safe lifting and at just over 104cm high he’s also way over the limit of safety full stop. Sometimes it’s all I can do to contain him in my arms when my little boy starts to have an excited flap as we go downstairs for breakfast… Food, Mummy? Every parent wants to pick u...

itssmallsworld.wordpress.com itssmallsworld.wordpress.com

An open letter… | itssmallsworld

https://itssmallsworld.wordpress.com/2014/10/05/an-open-letter

Life with a Small boy with disabilities. An open letter…. To all of you who have input to our lives. Today though this is mainly for you in Social Services. You cannot take away our respite. We will fall apart. You know this. Wait, sorry, what? How could we have guessed his trajectory? No, no, this is not acceptable. Why don’t you plan for this? Why is there not a plan mapped out for your children? That way you can tweak it, but not crisis manage. How is this more efficient? Why weren’t we invited? Enter...

itssmallsworld.wordpress.com itssmallsworld.wordpress.com

itssmallsworld | itssmallsworld

https://itssmallsworld.wordpress.com/author/helenbarraclough

Life with a Small boy with disabilities. A Precarious Balancing Act. Right now, right at this moment, my life feels almost balanced. I am, to be honest, nervous of writing this down, of letting this cat jump out of its bag, in case the whole thing comes crashing down again. I am still ably employed. *Shouts* ‘I, a parent of a disabled child, I am actually working! 8217; I am one of that shamefully low number – 16% of all mothers of disabled children – who have found, and maintained, employment. 8216;I&#8...

itssmallsworld.wordpress.com itssmallsworld.wordpress.com

How fragile is this life? | itssmallsworld

https://itssmallsworld.wordpress.com/2014/08/26/how-fragile-is-this-life-2

Life with a Small boy with disabilities. How fragile is this life? I’ve felt the frailty of human life more keenly this past week. I suspect I’m not the only one. Our Swan community has taken a battering of late. With our community ever growing and some of these beautiful children with more complex medical needs, it was possibly naive to assume bad news wouldn’t come our way but. Still. We are losing our children. This is our normal. No one should have to grieve twice. An open letter… ». This actually ma...

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