ohbother.co.uk
Friedreich's ataxia and me
http://ohbother.co.uk/usingpublictransport.html
Please say hello, let me know that you've been here. Last updated: July 2016. I use buses to get to the gym, clubs/bars/restaurants, shopping centres, railway stations, local theatres and much more. They are the crux of my social freedom! Is great for when I'm waiting around for public transport in the rain. It's not specifically made for wheelchair users but it fits over my chair really well. I have a Disabled Person’s Railcard. National Concessionary Travel Pass. My National Concessionary Travel Pass e...
ohbother.co.uk
Friedreich's ataxia and me
http://ohbother.co.uk/mydiagnosis.html
Please say hello, let me know that you've been here. Last updated: July 2016. My disabilty: My diagnosis. The first thing I remember - I must have been about 4 - is going shopping every Sunday with my mum and sister. We made the ten-minute hike to the shops, which wore me out so much! Walking any distance tired me out so much. I would also walk so slowly and deliberately, and would trail at least twenty yards behind. My consultant always suspected it was FA as he was experienced and had seen ataxia befor...
ohbother.co.uk
Friedreich's ataxia and me
http://ohbother.co.uk/otherstuff.html
Please say hello, let me know that you've been here. Last updated: July 2016. My disabilty: The other stuff. The only prescribed medication I take is called Baclofen and I take this for muscle spasm. I also have botox injections to control the muscle spasm in my feet - see having botox injections. As my host and I have always been very happy with it. I have always wanted to learn how to build a website from scratch using Adobe Dreamweaver, so about three years ago I got in touch with Polar Solutions.
ohbother.co.uk
Friedreich's ataxia and me
http://ohbother.co.uk/mypowerchair.html
Please say hello, let me know that you've been here. Last updated: July 2016. My powerchair was supplied on a 5-year Motability lease contract. Every 4 weeks payment will be taken directly from my Higher Rate Mobility component of my DLA (and eventually the Enhanced Rate of the Mobility component of my PIP) over the next 5 years. Included in my lease:. Replacement tyres and batteries. Servicing, maintenance and repairs. Loss and damage protection. My powerchair is a very customised Invicare TDX SP2.
ohbother.co.uk
Friedreich's ataxia and me
http://ohbother.co.uk/myscoliosis.html
Please say hello, let me know that you've been here. Last updated: July 2016. My disabilty: My scoliosis. When I was 9 it was found that I had Scoliosis which is a curvature of the spine. I had two curves which pushed my left hip and right shoulder blade out. Throughout my time in hospital and in the weeks and months after leaving I did really struggle with the pain I was in. A family friend was a trained Bowen practitioner and this worked miracles in helping me to recover enough to start back to sch...
ohbother.co.uk
Friedreich's ataxia and me
http://ohbother.co.uk/wdw.html
Please say hello, let me know that you've been here. Last updated: July 2016. My travels: Walt Disney World. Since I was diagnosed with FA in 1991 (aged 8) I have been lucky enough to go to Walt Disney World (WDW) 11 times. Here I’ve tried to write a bit about each time we’ve been as it follows the story of how my FA has progressed and how it has influenced on my life. November 1993 Grosvenor Resort WDW. When I was diagnosed a neighbour who was involved in the charity Dreams Come True. This was just six ...
ohbother.co.uk
Friedreich's ataxia and me
http://ohbother.co.uk/workinglife.html
Please say hello, let me know that you've been here. Last updated: July 2016. Although I became medically retired many years ago, if you're disabled and looking for work you may well find this article useful. When I was 17, ASDA. My job involved using roller balls and pressing buttons to control cameras, and communicating what I was seeing to my team over walkie-talkie radios. I will say that when I actually saw someone shoplifting I thought it was the most thrilling job in the world - the adrenaline...
ohbother.co.uk
Friedreich's ataxia and me
http://ohbother.co.uk/independentliving.html
Please say hello, let me know that you've been here. Last updated: July 2016. I moved into my own adapted flat in 2010 - I love it here; it's given me the space to be me and set things up exactly the way I need them to be. My flat - my home. Before you actually get in my flat you'd meet my first can't live without adaptation - my automatic front door (left). I can't coordinate my hands to use a key to unlock the door so I have an automatic door so all I need to do is press a button on a key-fob. ...Ned a...
ohbother.co.uk
Friedreich's ataxia and me
http://ohbother.co.uk/usingawheelchair.html
Please say hello, let me know that you've been here. Last updated: July 2016. My disabilty: Using a wheelchair. If you look up ataxia in a dictionary it will define it as "loss of the ability to coordinate muscular movement" or similar. One way to induce ataxia is to drink too much, and, after a few too many, you will find that you begin to walk much like I did. I lost out on so much, didn't I? I began using the wheelchair full-time when I was 14 and I didn't look back. I'm so much more able and inde...
ohbother.co.uk
Friedreich's ataxia and me
http://ohbother.co.uk/europe.html
Please say hello, let me know that you've been here. Last updated: July 2016. May 2006 Polis, Cyprus. My mum was very dubious about me travelling without her, especially without a carer, but my friend persistently encouraged me to try C&A Apartments. And I was adamant to give it a try. So when my friend organised a group of mostly people with ataxia and their carers to go there the following year, I went along too. June 2007 Polis, Cyprus. As the C&A Apartments. We took the beach walkway to Latchi and li...