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Raphael in CHARGE

Friday, 8 February 2013. Tuesday, 23 October 2012. I had the first appointment today specifically for sound localisation. The Audiologist said that severe loss in the low frequencies is the cause for the inability to localise sounds. Hearing aids focus on speech, of course, and so they are not providing the info for localisation. Having said that there is a chance that some directional hearing can be taught. From this we appointment we have a course of action:. Thursday, 15 September 2011. This is my att...

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Raphael in CHARGE | raphaelincharge.blogspot.com Reviews

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Friday, 8 February 2013. Tuesday, 23 October 2012. I had the first appointment today specifically for sound localisation. The Audiologist said that severe loss in the low frequencies is the cause for the inability to localise sounds. Hearing aids focus on speech, of course, and so they are not providing the info for localisation. Having said that there is a chance that some directional hearing can be taught. From this we appointment we have a course of action:. Thursday, 15 September 2011. This is my att...

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Raphael in CHARGE | raphaelincharge.blogspot.com Reviews

https://raphaelincharge.blogspot.com

Friday, 8 February 2013. Tuesday, 23 October 2012. I had the first appointment today specifically for sound localisation. The Audiologist said that severe loss in the low frequencies is the cause for the inability to localise sounds. Hearing aids focus on speech, of course, and so they are not providing the info for localisation. Having said that there is a chance that some directional hearing can be taught. From this we appointment we have a course of action:. Thursday, 15 September 2011. This is my att...

INTERNAL PAGES

raphaelincharge.blogspot.com

1

Raphael in CHARGE: More sleep studies

http://raphaelincharge.blogspot.com/2009/05/more-sleep-studies.html

Friday, 1 May 2009. Raphael had two more sleep tests in Hobart and he continued to maintain excellent saturations over night. So with this information we organised another full Polysomnography test in Melbourne for 29-30/4/2009. To cut a long story short, this latest test confirmed the good results that he appeared to be having in Hobart. As for Annie and I, we are celebrating the opportunity of getting uninterrupted sleep for the first time in three years. And a short video like the one from 2008:.

2

Raphael in CHARGE: My child has just been diagnosed with CHARGE syndrome, what should I do?

http://raphaelincharge.blogspot.com/2011/09/my-child-has-just-been-diagnosed-with.html

Thursday, 15 September 2011. My child has just been diagnosed with CHARGE syndrome, what should I do? BIG DISCLAIMER: I have no relevant qualifications other than being a parent of a child with CHARGE syndrome. Get a good baby sitter network for other kids. Early intervention (physiotherapy, occupational therapy, speech pathologist, hearing and vision specialists). Possibly learn sign language to give your child a language as early as possible. Get disabled parking permit. If you don't understand anythin...

3

Raphael in CHARGE: The new sound "s"

http://raphaelincharge.blogspot.com/2010/06/new-sound-s.html

Friday, 4 June 2010. The new sound "s". Today Rapahel made a new sound "s". He did this at the end of a word that he was copying "Always". It is not a very confident sound but it is being made with the correct part of the mouth rather than him using the constant fluid in his nose to make an s whistle when he breathes out his nose. Ironically his Chinese can be quite clear but he has a very limited Chinese vocabulary. Mostly "I want" and "I don't want". 14 July 2010 at 2:52 pm. 16 July 2010 at 7:04 am.

4

Raphael in CHARGE: It has been a long time

http://raphaelincharge.blogspot.com/2011/09/it-has-been-long-time.html

Thursday, 15 September 2011. It has been a long time. It has been a long time since my last post but I wanted to say that this year Raphael has undergone intensive speech pathology and his talking skills have take a couple of huge steps forward. It is obviously still hard work for him to understand what people are saying to him but he is an eager learner and all the hard work that everyone is investing in him is being reflected well in his progress. 25 September 2011 at 3:29 pm. It has been a long time.

5

Raphael in CHARGE

http://raphaelincharge.blogspot.com/2013/02/i-have-given-up-looking-into-sound.html

Friday, 8 February 2013. Subscribe to: Post Comments (Atom). I have given up looking into sound localisation be. Gross motor skills teacher [gymbaroo]. Speech pathologist [ELT] (x2). Teacher of the deaf [ELT] (x3). Audiologist [RHH and Aus Hearing]. Ear Nose and Throat Doctor (ENT) (x3). Ophthalmologist (eye surgeon) (x3). Orthoptist [RHH and Hobart Eye Surgeons]. Paediatric home care nurse (x2) [RHH]. Speech Pathologist [RHH (x2) and CHC and Speech Pathology Tasmania (x2)]. German CHARGE Syndrome Forum.

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littlemissevie.blogspot.com

Little Miss Evie: October 2009

http://littlemissevie.blogspot.com/2009_10_01_archive.html

Thursday, October 22, 2009. It's Going To Be That Kind of Season.". Posted by Little Miss Evie. Tuesday, October 6, 2009. Can you believe that it has been 2 months since my last post! I have no excuse for this other than Mommy and I have been just taking it easy and having fun at home. Here is an update of what has been happening:. I has pneumonia in September but it wasn't too bad. I did not have to sleep over at the hospital. This month it will be 13 months since I last had a hospital stay! Although I ...

littlemissevie.blogspot.com

Little Miss Evie: June 2009

http://littlemissevie.blogspot.com/2009_06_01_archive.html

Thursday, June 25, 2009. Hello everyone. This is a picture that Daddy sent to Mommy when she was in the hospital. She would look at it several times a day and it would always make her laugh. Although I giggle and smile all the time, it is rare to get a picture of me smiling. In fact this is the only one! Things are getting back to "normal" around here (whatever that is? Has gone home to Tennessee. Thank you for being such a great help! Today was my last day of Stepping Stones. Yep I graduated! My Name is...

littlemissevie.blogspot.com

Little Miss Evie: February 2009

http://littlemissevie.blogspot.com/2009_02_01_archive.html

Thursday, February 19, 2009. This is a picture of me and my new car. I am getting very good at riding back and forth with it. When I first got it all I did was cry. Now I can move it forward and backwards all by myself! In other news. My mommy is having TWINS. Yep you read that right! Ultrasound quite soon to see what is going on. So right now we are waiting to talk with the Doctor to see what this all means. Posted by Little Miss Evie. Subscribe to: Posts (Atom). CHARGE IT FOR CHARGE.

littlemissevie.blogspot.com

Little Miss Evie: January 2010

http://littlemissevie.blogspot.com/2010_01_01_archive.html

Friday, January 29, 2010. Hello Everyone in Blogland,. We are having some computer issues. Hopefully we will get them solved soon because we have lots of pictures and news to tell, such as my first day of nursery school and my first big girl haircut! Lots of Love,. Posted by Little Miss Evie. Tuesday, January 5, 2010. Discovery Museum,Holidays, and 1st day of Nursery School. I was lucky enough to travel to Tennessee to see my Aage. Birthday on New Year's Eve. Lastly, I would like to tell you that I belie...

littlemissevie.blogspot.com

Little Miss Evie: May 2009

http://littlemissevie.blogspot.com/2009_05_01_archive.html

Saturday, May 23, 2009. This week I had many adventures. I went to stay in Toronto with my Daddy and Aage. At a hotel down the street from Mommy's hospital. I am a little sick now and sadly. I lost my hearing aid. Uuugh. I know, Mommy is really sad. It is strange how quiet I have become just after 1 week. Here is me playing on the floor with it. I take it in my stroller for all my walks. Daddy says in this picture I am signing Mommy while holding it. Mommy thinks that is wishful. Mommy is doing ok. Are r...

littlemissevie.blogspot.com

Little Miss Evie: November 2009

http://littlemissevie.blogspot.com/2009_11_01_archive.html

Friday, November 20, 2009. Lights, Lights, LIGHTS! We have been having a beautiful November so far. The weather has been quite mild and because of this today Mommy and my Grandma brought me to the Festival of Lights in Niagara falls. It was so nice that we were able to get out and walk around a bit. I was in my Light Loving Heaven! Folks if you kiddos are like me and like lights, this is the place for you! Here I am so excited. hands going like crazy. This game was right up her alley, testing her sharp s...

littlemissevie.blogspot.com

Little Miss Evie: April 2009

http://littlemissevie.blogspot.com/2009_04_01_archive.html

Thursday, April 30, 2009. As you may already know, I have a crazy head of hair. I absolutely hate it when my Mommy combs it. It gets very tangled and there is a really rough patch in the back that matts. All up as soon as i lie down. It has caused many tears for me and my Mommy. Well. after many trail and errors we now have a pretty good system of combing it out:. First: My hair gets shampooed, then I get to use mommy's big girl curly. Tangle Free. Curly. Hair (With much less tears! Fun in the Shade.

littlemissevie.blogspot.com

Little Miss Evie: August 2009

http://littlemissevie.blogspot.com/2009_08_01_archive.html

Thursday, August 6, 2009. From the very start of my first physiotherapy appointment I screamed from start to finish. No matter what I did there, I was completely unhappy and unmotivated. I will do the same thing at home and on my own terms with no argument but not at the my appointments and not when being made to do it! After almost 2 years of this Mommy and our PT have become very frustrated. About 3 weeks ago we introduced Picture Cards into the mix (thanks to our wonderful Speech therapist. She claims...

littlemissevie.blogspot.com

Little Miss Evie: February 2011

http://littlemissevie.blogspot.com/2011_02_01_archive.html

Thursday, February 24, 2011. Wow My Mommy let a Year go by. Ok, so a whole year has passed since my Mom last posted on here but let me tell you it was worth the wait. We knew we had to post big after such a long time so here it is. WALKING! Can you believe it? I am so proud of myself. For the first few times I would start laughing I thought it was so funny. Now I walk everywhere around the house and preschool! Here is a video from my first week of walking. * *Please ignore my mom's annoying voice. The mi...

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Raphael in CHARGE

Friday, 8 February 2013. Tuesday, 23 October 2012. I had the first appointment today specifically for sound localisation. The Audiologist said that severe loss in the low frequencies is the cause for the inability to localise sounds. Hearing aids focus on speech, of course, and so they are not providing the info for localisation. Having said that there is a chance that some directional hearing can be taught. From this we appointment we have a course of action:. Thursday, 15 September 2011. This is my att...

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