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Jenn has Sarcoidosis...or does she? | just trying to figure it all out!

just trying to figure it all out!

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Jenn has Sarcoidosis...or does she? | just trying to figure it all out! | sarcoidosisjenn.wordpress.com Reviews

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just trying to figure it all out!

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September | 2016 | Jenn has Sarcoidosis...or does she?

https://sarcoidosisjenn.wordpress.com/2016/09

Jenn has Sarcoidosis…or does she? Just trying to figure it all out! So, it was fitting that two years ago I changed the name of this blog to add “…or does she? 8221; Sorry for the time between posts too – life has gotten hectic for the good and bad. I went to Johns Hopkins Wilmer Eye Institute at the end of July and saw Dr. Jennifer Thorne. Loved her dry, sarcasm and humor. After about 30 minutes of really listening to me, she said that she’s 90% sure I do not have sarcoidosis. The Actemra was approved b...

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March | 2014 | Jenn has Sarcoidosis...or does she?

https://sarcoidosisjenn.wordpress.com/2014/03

Jenn has Sarcoidosis…or does she? Just trying to figure it all out! It’s just scary. The stigma attached to the word infusion. I am picturing a chemo-like situation. It isn’t, necessarily, like that. I know. But I don’t. Usually, I am all for change. But sometimes, not so much. PS – Weening off prednisone cutting out sugar/eating healthy = NEVER EVER DO! March 20, 2014. Isn’t it typical? Anyway, change in meds again and I didn’t have a good reaction to it. At ALL. I guess I will see you in another 4 weeks.

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February | 2016 | Jenn has Sarcoidosis...or does she?

https://sarcoidosisjenn.wordpress.com/2016/02

Jenn has Sarcoidosis…or does she? Just trying to figure it all out! So, I finally saw my rheumatologist: she hadn’t put in for the Actemra yet. Because she needed to examine me first (she listened to my breathing – was that really worth delaying me by 3 weeks? The Retisert is my last resort. It’s two eye surgeries (one for each eye) where they insert an implant the size of a grain of rice into my eyeball (WHILE I AM OUT COLD! Sometimes, that’s just gotta be ok. And today, I am ok. February 12, 2016.

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November | 2014 | Jenn has Sarcoidosis...or does she?

https://sarcoidosisjenn.wordpress.com/2014/11

Jenn has Sarcoidosis…or does she? Just trying to figure it all out! I still don’t “look” sick. And people can forget I am. Sometimes that is a good thing but other times? It’s a reminder that asking me to get up to get something off the printer or in the kitchen isn’t that same as it was when you asked me to do that simple task 18 months ago. 8221; when I wake up with yet something else new. November 11, 2014. Create a free website or blog at WordPress.com.

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April | 2015 | Jenn has Sarcoidosis...or does she?

https://sarcoidosisjenn.wordpress.com/2015/04

Jenn has Sarcoidosis…or does she? Just trying to figure it all out! I go for my first of three loading infusions on Thursday afternoon. I will sit with many other patients, most of them getting chemo. And hopefully, this will work this time. It’s a long time to sit there (3 hours or so depending on how long it takes them to find a vein) so I will bring my Surface Pro 3 and try to get some work done! April 28, 2015. April is Sarcoidosis Awareness Month so be aware…. I see the pain management specialist on...

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Words Just Fly | Words Just Fly...

https://wordsjustfly.com/author/wordsjustfly

Words Just Fly…. Right outta of my head and sometimes here…. Author Archives: Words Just Fly. Radio silence sucks…. Right now I’m kind of in this weird place. I’m not sure what to do. In fact, I don’t think there’s really anything to do. It would be helpful if I could say I felt truly sad, or resigned, or badly or angry… But I’m not really any of those. I think I’m more unsure, in the dark, puzzled. And that’s ok I guess. I’ve thought things like:. My expectations are too high? I have too much energy?

gwidow.wordpress.com gwidow.wordpress.com

it’s dandy for your teeth | Golfwidow's Ministry of Silly Walks

https://gwidow.wordpress.com/2013/08/16/its-dandy-for-your-teeth

Golfwidow's Ministry of Silly Walks. Champion of Truth, Justice, and Good Grammar. Skip to primary content. It’s dandy for your teeth. August 16, 2013. I skipped last week, as I’m sure no one noticed, but if you’re wondering what I was thinking last week, just read the post from the week before. I didn’t feel like burdening anyone with reruns. Worried about the number, but she’s the one with the medical degree. Staff sent incomplete referrals, not once, but twice, and both times the surgeon’s offic...

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Q & A. Although spontaneous improvement is common, the severity and manifestations of disease are highly variable, and many patients require courses of corticosteroids some time during the course of their disease. Thus, serial monitoring for evidence of relapse is imperative. About 90% of patients who have spontaneous remission do so within the first 2 yr after diagnosis; […]. Relapsing Polychondritis – Skin Disorders. A person should take steps to stay healthy. This includes: Not smoking. Avoidi...Sarco...

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Sarcoidosis Freedom Cookbook Review. November 3rd, 2014. The sarcoidosis freedom cookbook provides dietary solutions for those who are on sarcoidosis treatment. Its author is. How The Cookbook Helps With Sarcoidosis Management? The book contains the general overview of nutrition in relation to sarcoidosis in its first few pages, the myths surrounding these, a bit about the chemicals you need for remission and the information you might have missed from your medical doctor. Advantages Of Using This Cookbook.

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Awareness is Key - Research is Power - Support is Everything. News, Events and Info. Events, News and Blog. The home of the National Sarcoidosis Organization and support site Sarcoidosis and Me. The Basics of Sarcoidosis. Sarcoidosis is an inflammatory disease which can affect any organ or system in the body. This disease causes the body’s immune system to over-react, forming granulomas or groups of cells (nodules) that attach to other tissues and organs in the body, affecting normal function. BRAIN AND ...

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Jenn has Sarcoidosis...or does she? | just trying to figure it all out!

Jenn has Sarcoidosis…or does she? Just trying to figure it all out! So…where were we? Her ridiculous words erased all that I’ve experienced in the last (almost) four years. All the pain and the crying and the happiness and everything. But it was also a good reminder to make the doctor’s appointments I needed to in order to get back on the horse. So – Actemra. After my fourth injection, I thought I infected myself. I started therapeutic yoga last night. It was really, really hard for me. Just movi...That&...

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The greatest WordPress.com site in all the land! Apologies, but no results were found. Perhaps searching will help find a related post. The Twenty Twelve Theme. Create a free website or blog at WordPress.com. Blog at WordPress.com. The Twenty Twelve Theme. Follow “sarcoidosislivetobreathe”. Get every new post delivered to your Inbox. Build a website with WordPress.com. Add your thoughts here. (optional).

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A blog for those with Sarcoidosis or Lyme disease. Wednesday, 22 May 2013. Safety and immunogenicity of a novel multivalent OspA vaccine against Lyme borreliosis in healthy adults. Safety and immunogenicity of a novel multivalent OspA vaccine against Lyme borreliosis in healthy adults - a double-blind, randomised, dose-escalation phase 1/2 trial. The Lancet Infectious Diseases. Early Online Publication, 10 May 2013. Doi:10.1016/S1473-3099(13)70110-5 Cite or Link Using DOI. Prof Peter G Kremsner. Lyme Dis...

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The domain sarcoidosisnetwork.info. May be for sale by its owner! This page provided to the domain owner free. By Sedo's Domain Parking. Disclaimer: Domain owner and Sedo maintain no relationship with third party advertisers. Reference to any specific service or trade mark is not controlled by Sedo or domain owner and does not constitute or imply its association, endorsement or recommendation.

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Committed to Giving Sarcoidosis a Voice. Support The Sarcoidosis Awareness Network when you shop at Food Lion Stores. Stay informed with The Sarcoidosis Hotline! To subscribe to the listserv, send a message to. The Sarcoidosis Awareness Network at iGive.com. YOU ARE NOT ALONE. THE SARCOIDOSIS AWARENESS NETWORK. WEB SITE DESIGN BY TriceNet.

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