theboywithfivenames.blogspot.com

The boy with five names

The boy with five names. This isn't really my blog, it's Zack's. Zack arrived here 7 weeks early, he had no heartbeat, wasn't breathing but decided he wanted to stay here and so the doctors brought him back. He suffered catastrophic damage to his brain, he has cerebral palsy, problems with his hearing, vision and feeding. Our lives are both challenging and extraordinary. He is a gift. Saturday, 25 April 2015. December. December. That's when I last spoke. So on with the story. We move over to real child w...

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The boy with five names | theboywithfivenames.blogspot.com Reviews

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The boy with five names. This isn't really my blog, it's Zack's. Zack arrived here 7 weeks early, he had no heartbeat, wasn't breathing but decided he wanted to stay here and so the doctors brought him back. He suffered catastrophic damage to his brain, he has cerebral palsy, problems with his hearing, vision and feeding. Our lives are both challenging and extraordinary. He is a gift. Saturday, 25 April 2015. December. December. That's when I last spoke. So on with the story. We move over to real child w...

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1 google followers

2 epic fail

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4 linzi price

5 1 comment

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The boy with five names | theboywithfivenames.blogspot.com Reviews

https://theboywithfivenames.blogspot.com

The boy with five names. This isn't really my blog, it's Zack's. Zack arrived here 7 weeks early, he had no heartbeat, wasn't breathing but decided he wanted to stay here and so the doctors brought him back. He suffered catastrophic damage to his brain, he has cerebral palsy, problems with his hearing, vision and feeding. Our lives are both challenging and extraordinary. He is a gift. Saturday, 25 April 2015. December. December. That's when I last spoke. So on with the story. We move over to real child w...

INTERNAL PAGES

theboywithfivenames.blogspot.com

1

The boy with five names: August 2014

http://theboywithfivenames.blogspot.com/2014_08_01_archive.html

The boy with five names. This isn't really my blog, it's Zack's. Zack arrived here 7 weeks early, he had no heartbeat, wasn't breathing but decided he wanted to stay here and so the doctors brought him back. He suffered catastrophic damage to his brain, he has cerebral palsy, problems with his hearing, vision and feeding. Our lives are both challenging and extraordinary. He is a gift. Sunday, 24 August 2014. The generous donations reached well over £1000 and to that we are very grateful. As I currently t...

2

The boy with five names: Bent leg

http://theboywithfivenames.blogspot.com/2014/08/bent-leg.html

The boy with five names. This isn't really my blog, it's Zack's. Zack arrived here 7 weeks early, he had no heartbeat, wasn't breathing but decided he wanted to stay here and so the doctors brought him back. He suffered catastrophic damage to his brain, he has cerebral palsy, problems with his hearing, vision and feeding. Our lives are both challenging and extraordinary. He is a gift. Saturday, 23 August 2014. I can't believe how difficult this year is becoming. I thought this was going to be a great...

3

The boy with five names: December 2014

http://theboywithfivenames.blogspot.com/2014_12_01_archive.html

The boy with five names. This isn't really my blog, it's Zack's. Zack arrived here 7 weeks early, he had no heartbeat, wasn't breathing but decided he wanted to stay here and so the doctors brought him back. He suffered catastrophic damage to his brain, he has cerebral palsy, problems with his hearing, vision and feeding. Our lives are both challenging and extraordinary. He is a gift. Friday, 5 December 2014. We are here. I just haven't had five minutes to myself to write about our crazy, busy life.

4

The boy with five names: Busy

http://theboywithfivenames.blogspot.com/2014/12/busy.html

The boy with five names. This isn't really my blog, it's Zack's. Zack arrived here 7 weeks early, he had no heartbeat, wasn't breathing but decided he wanted to stay here and so the doctors brought him back. He suffered catastrophic damage to his brain, he has cerebral palsy, problems with his hearing, vision and feeding. Our lives are both challenging and extraordinary. He is a gift. Friday, 5 December 2014. We are here. I just haven't had five minutes to myself to write about our crazy, busy life.

5

The boy with five names: Epic Fail

http://theboywithfivenames.blogspot.com/2015/04/epic-fail.html

The boy with five names. This isn't really my blog, it's Zack's. Zack arrived here 7 weeks early, he had no heartbeat, wasn't breathing but decided he wanted to stay here and so the doctors brought him back. He suffered catastrophic damage to his brain, he has cerebral palsy, problems with his hearing, vision and feeding. Our lives are both challenging and extraordinary. He is a gift. Saturday, 25 April 2015. December. December. That's when I last spoke. So on with the story. We move over to real child w...

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littlelucymay.blogspot.com

Lucy May: 30Jun08 - House Adaptions

http://littlelucymay.blogspot.com/2008/06/30jun08-house-adaptions.html

Lucy May born 30th May 2004 suffered oxygen starvation ( Hypoxic-Ischemic Encephalopathy or HIE ) at birth and as a result has Athetoid Cerebral Palsy, Epilepsy, Visual Impairment and Quadriplegia. Lucy's struggle through life involves constant medical care, therapy and the support of those close to her. Monday, 30 June 2008. 30Jun08 - House Adaptions. Back in November I wrote a blog about adaptions. After the first day we can already get an idea of size and it is going to be cozy although we always knew...

littlelucymay.blogspot.com

Lucy May: 01Jul08 - Holding the Fort

http://littlelucymay.blogspot.com/2008/07/01jul08-holding-fort.html

Lucy May born 30th May 2004 suffered oxygen starvation ( Hypoxic-Ischemic Encephalopathy or HIE ) at birth and as a result has Athetoid Cerebral Palsy, Epilepsy, Visual Impairment and Quadriplegia. Lucy's struggle through life involves constant medical care, therapy and the support of those close to her. Tuesday, 1 July 2008. 01Jul08 - Holding the Fort. Lucy did require quite a few modifications to the standard Blade to ensure she could keep the correct posture as much as possible including split foot re...

littlelucymay.blogspot.com

Lucy May: 07Nov07 - Adaption

http://littlelucymay.blogspot.com/2007/11/07nov07-adaption.html

Lucy May born 30th May 2004 suffered oxygen starvation ( Hypoxic-Ischemic Encephalopathy or HIE ) at birth and as a result has Athetoid Cerebral Palsy, Epilepsy, Visual Impairment and Quadriplegia. Lucy's struggle through life involves constant medical care, therapy and the support of those close to her. Wednesday, 7 November 2007. Labels: A Different Life. Subscribe to: Post Comments (Atom). Lucy May - First Year at School. Lucy May - The First 18 Months. Lucy May - The First Weeks. Away with the fairies.

mamalewis.com

About May | Mama Lewis

http://www.mamalewis.com/about-may

May was born on April 23rd, 2009. She suffered poor feeding, shallow breathing and major seizures in the first 12 hours of her life. She stayed in the Special Care Baby Unit for almost six weeks. You can read more about this in the post ‘ The Story of May’s Birth. May has severe brain damage caused by oxygen deprivation. The medical term is hypoxic-ischemic encephalopathy (HIE; for more definitions of medical jargon and silly acronyms see my GLOSSARY. Want to help children like May? Until 2011. Small...

mamalewis.wordpress.com

May you are 2 1/2 years old! Happy Birthday! | Mama Lewis

https://mamalewis.wordpress.com/2011/10/22/may-you-are-2-12-years-old-happy-birthday

And the amazing adventures of the half-brained baby. Laquo; Can a child have too much therapy? May you are 2 1/2 years old! October 22, 2011 by Stacie Lewis. I’m an hour early for the celebrations this year. May officially turns 2 1/2 tomorrow, but we are celebrating now with her uncle and aunt who are in from Perth, Australia. What better gift for May’s birthday than two more people around to spoil her! In keeping with previous birthday posts. Bouncing encouraged, but optional.). You can read more from ...

mamalewis.com

My Husband Is Literally Giving The Shirt Off His Back | Mama Lewis

http://www.mamalewis.com/2014/07/31/my-husband-is-literally-giving-the-shirt-off-his-back-for-me

A bit of praise. My husband is literally giving the shirt off his back. My husband is literally giving the shirt off his back. Posted on Jul 31, 2014 0 comments. 8230;and swapping it for an Anthony Nolan Trust one. And here he is! Wearing his brand new Anthony Nolan Trust racing top for the charity cycle he is doing in my name. Or, spa treatment as I insist my doctor calls it. Which she does. Why not celebrate with me by donating to the charity that has played such a massive part in saving my life? Most ...

mamalewis.com

Someone, Please Tell Me What To Do Now? | Mama Lewis

http://www.mamalewis.com/2015/05/11/someone-please-tell-me-what-to-do-now

Someone, please tell me what to do now? Someone, please tell me what to do now? Posted on May 11, 2015 4 comments. Last Thursday, my husband and I skipped off to the polling station with my downstairs neighbours and our children. They played tag between the voting booths and we shushed them and giggled at the same time, delighted to be there and to vote. And, I hadn't just read. I was writing myself. My post on the shocking truth behind Samantha Cameron's Daily Mail article. But, the truth is, people sym...

mamalewis.com

Press | Mama Lewis

http://www.mamalewis.com/about/press

Sometimes determined, articulate people manage to win small victories on behalf of everyone.". Winifred Robinson, BBC Radio 4's. I'm always interested in hearing from campaigns and charities that want to help the disabled and chronically ill. You can find out more about working with me. Please use this handy contact form. Or get in touch via. If she can do this, I can. Disability cuts will hurt deeply. Government Cuts: On the nursery slopes. How long should a severely disabled child wait for housing?

mamalewis.wordpress.com

Glossary | Mama Lewis

https://mamalewis.wordpress.com/glossary

And the amazing adventures of the half-brained baby. Please remember, I am not a medical expert. This blog is record of my experience and the methods I use with my daughter. That is all. In order, to assist with the ridiculous amount of jargon associated with a disabled child, I present the following glossary. Please email me at contact@stacielewis.com if I missed any terms requiring definition. 8211; – –. 8211; an umbrella term for brain damage received as a baby or young child. 8211; a barbiturate used...

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The boy with five names

The boy with five names. This isn't really my blog, it's Zack's. Zack arrived here 7 weeks early, he had no heartbeat, wasn't breathing but decided he wanted to stay here and so the doctors brought him back. He suffered catastrophic damage to his brain, he has cerebral palsy, problems with his hearing, vision and feeding. Our lives are both challenging and extraordinary. He is a gift. Saturday, 25 April 2015. December. December. That's when I last spoke. So on with the story. We move over to real child w...

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