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The Pain & The Glory: Living With Congenital Myasthenia Syndrome.

I wish to share an insight into the life of Adam, in the hope that someone maybe able to find some sort of help, hope or comfort from it. Adam was born with the very rare illness Congenital Myasthenia Syndrome.

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The Pain & The Glory: Living With Congenital Myasthenia Syndrome. | thecongenic.blogspot.com Reviews
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I wish to share an insight into the life of Adam, in the hope that someone maybe able to find some sort of help, hope or comfort from it. Adam was born with the very rare illness Congenital Myasthenia Syndrome.
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1 hello
2 take care
3 adam
4 no comments
5 life on pause
6 1 comment
7 scoliosis
8 clever title huh
9 fat laces
10 older posts
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hello,take care,adam,no comments,life on pause,1 comment,scoliosis,clever title huh,fat laces,older posts,afterhours fm,blog archive
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The Pain & The Glory: Living With Congenital Myasthenia Syndrome. | thecongenic.blogspot.com Reviews

https://thecongenic.blogspot.com

I wish to share an insight into the life of Adam, in the hope that someone maybe able to find some sort of help, hope or comfort from it. Adam was born with the very rare illness Congenital Myasthenia Syndrome.

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thecongenic.blogspot.com thecongenic.blogspot.com
1

The Pain & The Glory: Living With Congenital Myasthenia Syndrome.

http://thecongenic.blogspot.com/2008/11/wow-has-it-really-been-that-long.html

The Pain and The Glory: Living With Congenital Myasthenia Syndrome. I wish to share an insight into the life of Adam, in the hope that someone maybe able to find some sort of help, hope or comfort from it. Adam was born with the very rare illness Congenital Myasthenia Syndrome. Sunday, 2 November 2008. WOW has it really been that long. Actually not too much has happened however saying that I have been sitting here for the last few weeks bracing myself for any illness coming my way. I'll explain:.

2

The Pain & The Glory: Living With Congenital Myasthenia Syndrome.: Life On Pause...

http://thecongenic.blogspot.com/2009/01/life-on-pause.html

The Pain and The Glory: Living With Congenital Myasthenia Syndrome. I wish to share an insight into the life of Adam, in the hope that someone maybe able to find some sort of help, hope or comfort from it. Adam was born with the very rare illness Congenital Myasthenia Syndrome. Monday, 19 January 2009. Now usually my Myasthenia doesn't get in the way of my life, yet today of all days it knocks me for six. I haven't made the appointment and I guess I have lost out on that property. However there m...Hello...

3

The Pain & The Glory: Living With Congenital Myasthenia Syndrome.: Friday, 20 June 2008

http://thecongenic.blogspot.com/2008_06_20_archive.html

The Pain and The Glory: Living With Congenital Myasthenia Syndrome. I wish to share an insight into the life of Adam, in the hope that someone maybe able to find some sort of help, hope or comfort from it. Adam was born with the very rare illness Congenital Myasthenia Syndrome. Friday, 20 June 2008. The FAT Facts About Me. Posted by The Congenic. Subscribe to: Posts (Atom). AfterHours.FM - Free Internet Trance Radio. The FAT Facts About Me.

4

The Pain & The Glory: Living With Congenital Myasthenia Syndrome.: Wednesday, 6 May 2009

http://thecongenic.blogspot.com/2009_05_06_archive.html

The Pain and The Glory: Living With Congenital Myasthenia Syndrome. I wish to share an insight into the life of Adam, in the hope that someone maybe able to find some sort of help, hope or comfort from it. Adam was born with the very rare illness Congenital Myasthenia Syndrome. Wednesday, 6 May 2009. Onto The Sword Of Fear. (About overcoming my problem with Anxiety). I wrote the following on a forum and I thought I would leave it here to share. Onto The Sword Of Fear. Fri Sep 26, 2008 11:58 am. Once upon...

5

The Pain & The Glory: Living With Congenital Myasthenia Syndrome.: Fat Laces

http://thecongenic.blogspot.com/2008/06/whats-that-all-about.html

The Pain and The Glory: Living With Congenital Myasthenia Syndrome. I wish to share an insight into the life of Adam, in the hope that someone maybe able to find some sort of help, hope or comfort from it. Adam was born with the very rare illness Congenital Myasthenia Syndrome. Tuesday, 17 June 2008. So Run if you are ever reading this. Thanks Man you helped me become the person I am today. You made life a little easier to travel. Repsect. . Oh and . . Hit It Run! Where it all began:.

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myasthenickids.org myasthenickids.org

Myaware Kids – UK & Ireland » In the Media

http://myasthenickids.org/index.php/ventilation/in-the-media

Committee & AGM. 8216;myaware kids’. Myaware, the Charity. Committee & AGM – Archived. Paris to Florence – Tom’s Epic Bike Ride. Radio Newcastle – Raising Awareness. Physiotherapy for childhood myasthenia. Speech & Language, and Feeding Therapy. Toby, Acetylcholine Receptor Deficiency. Ellen, unknown gene fault. Charlie, unknown gene fault. Living without a diagnosed condition…. Naomi’s Story – On the inside of a Myasthenic Crisis. Raquo; In the Media. 3,4 DAP / Firdapse Orphan Drugs and cost to the NHS.

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The Pain & The Glory: Living With Congenital Myasthenia Syndrome.

The Pain and The Glory: Living With Congenital Myasthenia Syndrome. I wish to share an insight into the life of Adam, in the hope that someone maybe able to find some sort of help, hope or comfort from it. Adam was born with the very rare illness Congenital Myasthenia Syndrome. Wednesday, 6 May 2009. Onto The Sword Of Fear. (About overcoming my problem with Anxiety). I wrote the following on a forum and I thought I would leave it here to share. Onto The Sword Of Fear. Fri Sep 26, 2008 11:58 am. Once upon...

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