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Something for Kelly | My Porphyria Blog
http://www.myporphyria.com/2014/10/08/something-for-kelly
October 8, 2014. A high school friend lost his daughter, Kelly, to anorexia; he and his wife started a foundation called Something for Kelly to fight this problem. Something for Kelly Foundation was nominated by Cunningham Fine Jewelry to receive a $10k grant from #JewelersforChildren. To receive the grant, they have to be among the top vote receivers. Voting is open 10/6/2014 – 10/19/2014. If you would like to help, go to https:/ www.facebook.com/JewelersforChildren/app 303561899745219. Ancient Writings...
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Uncategorized | My Porphyria Blog
http://www.myporphyria.com/category/uncategorized
December 24, 2014. This is a wonderful time of year. Time to be thankful for all of our blessings and for the birth of our Lord. Now, to successfully avoid the chocolate and eggnog. October 8, 2014. Awake to pain…glucose…relief…for a bit, darn. September 14, 2014. 1:00 sound asleep, then ouch! June 10, 2014. June 10, 2014. Something else to deal with. It was pointed out to me, by another in the porphyria club, that, not only are sulfites bad for us, they accumulate, too. So, I started looking for...There...
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Supplements | My Porphyria Blog
http://www.myporphyria.com/supplements
Taking supplements, to improve health, is real popular. But, how safe is that for porphyria sufferers? I’ve tried a few with marginal to bad results. I am going to share what I’ve experienced or heard; your results may be vastly different. 8211; triggered attacks. 8211; no attack; but, slowed me down greatly. 8211; Caro had problems. September 10, 2014 at 8:28 am. Has anyone tried B supplements? How is everyone with vitamin D? September 10, 2014 at 10:58 am. September 10, 2014 at 1:57 pm. I am ok with vi...
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Greg | My Porphyria Blog
http://www.myporphyria.com/author/admin
Sinus Infection – air filters and hydrogen peroxide to the rescue. December 21, 2015. One of my weaknesses is sinus infections. I am allergic to many things and exposure causes my sinuses to be unhappy; then an infection sets in. For a long time, I have been relying in saline spray (Ocean brand from … Continue reading →. December 7, 2015. March 6, 2015. March 6, 2015. December 24, 2014. November 4, 2014. Every morning I wake up feeling like I have a hangover…and, I don’t drink! Eventually, that eases up ...
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Merry Christmas | My Porphyria Blog
http://www.myporphyria.com/2014/12/24/merry-christmas
December 24, 2014. This is a wonderful time of year. Time to be thankful for all of our blessings and for the birth of our Lord. Now, to successfully avoid the chocolate and eggnog. This entry was posted in Uncategorized. Leave a Reply Cancel reply. Your email address will not be published. Required fields are marked *. Diagnosing Acute Intermittent Porphyria. Porphyria – The Unknown Disease. American Porphyria Foundation Blog. Heron Herbals – Porphyria page. Mi vida con Porfiria. Dinosaurs and the Bible.
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Soup | My Porphyria Blog
http://www.myporphyria.com/2015/03/06/soup-2
My Responsibility →. March 6, 2015. This is the way that I do it; but, you can remove the beef bone and chicken, if need be. Boiling the chicken on the bone and the beef bone draws needed nutrients from the marrow. Many with porphyria believe this is beneficial in that a couple of the heme product steps occur in the marrow. Also, the OMD that I see is very much about adding the bones for everyone. The amount of potatoes, carrots, and mushrooms can be varied to suit taste. I make enough for several meals.
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Hangover | My Porphyria Blog
http://www.myporphyria.com/2014/11/04/hangover-2
Merry Christmas →. November 4, 2014. Every morning I wake up feeling like I have a hangover…and, I don’t drink! So, what do you do for a hangover? First, drink plenty of water. Good healthy breakfast. Take a walk. Time. Repeat. How to prevent a hangover? Don’t drink too much. Don’t have porphyria. This entry was posted in General Porphyria Discussion. Merry Christmas →. November 28, 2014 at 12:07 am. December 15, 2014 at 3:05 pm. December 15, 2014 at 5:01 pm. October 6, 2015 at 4:15 am. How about a bad c...
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Diet | My Porphyria Blog
http://www.myporphyria.com/category/diet
March 6, 2015. This is the way that I do it; but, you can remove the beef bone and chicken, if need be. Boiling the chicken on the bone and the beef bone draws needed nutrients from the marrow. Many with porphyria believe … Continue reading →. March 6, 2015. September 23, 2014. Food on the Road. March 31, 2014. March 28, 2014. Known Triggers & Known Good. February 9, 2014. I use extreme caution using these terms. For instance, in my family, cucumbers are a know trigger; however, many porphyria suffer...
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Diverticulitis | My Porphyria Blog
http://www.myporphyria.com/diverticulitis
On a Porphyria blog? Think about it – with constant intense colon spasms during acute attacks and persistent feeling of constipation, it is bound to happen. From what I understand, most occurrences of diverticulitis happen at the exit of the colon and are generally because of straining. However, in my case, the problem is at the beginning of the colon…yep, by the liver and (removed) gall bladder. Straining is not a problem, with all the fruits and vegetables that I eat. It really helped. It turns out...
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In The News | My Porphyria Blog
http://www.myporphyria.com/in-the-news
Chronic Chlamydia and Associated Porphyria. Http:/ dynamics.org/Altenberg/MED/StrattonMitchell.v.4.html. ALN-AS1 – a potential treatment? Http:/ www.alnylam.com/Programs-and-Pipeline/Alnylam-5×15/Porphyria.php. Http:/ jrgray.hubpages.com/hub/Acute-Intermittent-Porphyria-an-Inherited-Blood-Disorder. In depth case study:. Http:/ www.slideshare.net/rosesrred90/acute-intermittent-porphyria-case-presentation-16396581. There are some folks in Arizona that think Porphyria can be treated with marijuana! This boo...
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