princesscloey.blogspot.com
Princess Cloey: Best Mayo Trip so Far!
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Friday, October 24, 2014. Best Mayo Trip so Far! We will be coming home on Sat! It was a very touching moment. We have literally been busy the whole two weeks, I brought things to do in case she had a major surgery or something and I had a lot of down time. That was certainly not the case! Just know Cloey went through the ringer of tests, she was poked and proded every which way and didnt complain once! GI (gastrointestinal)- Cloey is doing great off of her G-tube! ENT (ear, nose and throat)-Cloey had a ...
princesscloey.blogspot.com
Princess Cloey: June 2011
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Sunday, June 26, 2011. Cloey Adventures week 5. We had a great opportunity through Hopekids. To attend the Ringling bros Barnum. In a box suite no less! The Scottsdale Fire Department really stepped up and covered Ty's shift so we could go as a family and Cloey. Was so happy to have her Daddy. There We all had a lot of fun. The best part is we got to share the suite with one of Cloey's. Best friends, these two seem to have a special bond and they had a lot of fun together. To live years beyond. The compl...
princesscloey.blogspot.com
Princess Cloey: July 2011
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Sunday, July 17, 2011. Cloey Adventures weeks 6, 7 and 8. Http:/ tucsoncitizen.com/arizona-news/2011/06/26/a-young-girls-battle-with-cancer/#.TiJq1Rr3sxw.facebook. Subscribe to: Posts (Atom). So do you, how many more know her too? Some issues Cloey has faced. Ventilator dependant (12 hours). At risk melonoma "abnormal birthmark removed". Sub mucus cleft pallette. VSD (hole in her. Gross and fine motor skills delay. Tonsils and adnoids removed. 10 sets of ear tubes. The birth of a miracle. I wasn’t ...
princesscloey.blogspot.com
Princess Cloey: October 2014
http://princesscloey.blogspot.com/2014_10_01_archive.html
Friday, October 24, 2014. Best Mayo Trip so Far! We will be coming home on Sat! It was a very touching moment. We have literally been busy the whole two weeks, I brought things to do in case she had a major surgery or something and I had a lot of down time. That was certainly not the case! Just know Cloey went through the ringer of tests, she was poked and proded every which way and didnt complain once! GI (gastrointestinal)- Cloey is doing great off of her G-tube! ENT (ear, nose and throat)-Cloey had a ...
princesscloey.blogspot.com
Princess Cloey: September 2011
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Monday, September 5, 2011. So Sorry It has been so long since I have updated on Cloey's adventures. She has remained relatively healthy. The only decline we have seen is a decrease in endurance, but thankfully it has been a slow decline and Cloey is still able to do most things. The stress of it all has finally taken it's toll on our marriage. Ty and I our both overwhelmed and obviously coping in very different ways. We are in counseling and working on strengthening our marriage. Sub mucus cleft pallette.
princesscloey.blogspot.com
Princess Cloey: Weeks 9-15
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Monday, September 5, 2011. So Sorry It has been so long since I have updated on Cloey's adventures. She has remained relatively healthy. The only decline we have seen is a decrease in endurance, but thankfully it has been a slow decline and Cloey is still able to do most things. The stress of it all has finally taken it's toll on our marriage. Ty and I our both overwhelmed and obviously coping in very different ways. We are in counseling and working on strengthening our marriage. Some issues Cloey has fa...
princesscloey.blogspot.com
Princess Cloey: Sorry Not Sorry
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Saturday, October 11, 2014. I was going to apologize for not posting for 2 years, but as I looked back at old posts, I realized how thankful I am that I haven't posted for so long. This Blog is meant to keep everyone informed when Cloey is receiving life saving medical care. By the Grace of God that has not been required for the last 2 years, and for that I am not sorry! Subscribe to: Post Comments (Atom). So do you, how many more know her too? Some issues Cloey has faced. Ventilator dependant (12 hours).
princesscloey.blogspot.com
Princess Cloey: July 2010
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Thursday, July 22, 2010. Day 4-change of plans. Cloey's sleep study was moved to today, so we didn't make it to the zoo : (. The good news is we will probably go tomorrow, and be coming home Monday. The not so good news is that we have decided to sign a modified DNR for Cloey, allowing respitory and pain control support only. Cloey does not want that. she tells me she wants to take her g-tube and trach out. She wants to play with other kids. Today when we showed up to the hospital for a sleep...As Ty and...
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Princess Cloey: May 2011
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Monday, May 30, 2011. Cloey's Adventures Week 1. Cloey is now officially on Hospice Service. The process was pretty painless considering the circumstances. Ryan House is an amazing organization and and has made the process fluid, our nurse manager who we will be going through for all our needs is a nurse from Ryan House that we love and trust. I heard a song from Wicked for the first time this week that reminded me of her. My Cloey Girl, You have changed me FOR GOOD. Thursday, May 19, 2011. On Hospice se...
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Princess Cloey: Life after Hospice
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Sunday, June 24, 2012. Cloey did it again! Against all odds, she was discharged from hospice in May after a year without using ventilator support and having minimal complications. Obviously we are amazed and so happy to still have our sweet Cloey with us. So what does this mean? We will also be seeing-. Dietitian and GI to determine adequite nutrition and the possibility of future g-tube removal. Urology to discuss managing her incontinence. ENT to check her ears and evaluate her Tracheostomy. Gross and ...