raisingadisabledchild.blogspot.com
Adventures in Raising a Disabled Child: A Cast Is A Lousy Birthday Present
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Adventures in Raising a Disabled Child. Raising a daughter with 1p36 Deletion Syndrome. Thursday, January 23, 2014. A Cast Is A Lousy Birthday Present. We celebrated Whitney's 10th birthday list past week. Many family members came by to celebrate and spend time with her. She got some really fun gifts. (We decided against the iPad, by the way. It seemed like a bit much for a 10 year old.). I'm wondering if her bone density is an issue. So we'll have to do a good job of protecting her from falls and bu...
raisingadisabledchild.blogspot.com
Adventures in Raising a Disabled Child: Taking Responsibility
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Adventures in Raising a Disabled Child. Raising a daughter with 1p36 Deletion Syndrome. Monday, February 17, 2014. During the daily rush of helping Whitney get dressed, off to school on time and countless other things, it's easy to set aside teaching important lessons. Melanie is better than I am about taking advantage of teaching moments. So when I see something new it often comes as a surprise. Even when it's been something Melanie has been working on for some time. Subscribe to: Post Comments (Atom).
raisingadisabledchild.blogspot.com
Adventures in Raising a Disabled Child: Unlucky Break
http://raisingadisabledchild.blogspot.com/2005/08/unlucky-break.html
Adventures in Raising a Disabled Child. Raising a daughter with 1p36 Deletion Syndrome. Thursday, August 04, 2005. A few months ago the developmental specialists encouraged my wife and I to have our daughter stand next to the couch in order to help her feel independent when standing up and to gain strength in her legs and trunk. I hung up and rushed from work to the hospital. Once the the orthopedic surgeon saw my daughter's X-Rays he told us there was no need to insert pins or operate. What a relief!
laurens1p36deletionjourney.blogspot.com
Laurens 1p-36 Deletion Journey: January 2012
http://laurens1p36deletionjourney.blogspot.com/2012_01_01_archive.html
Laurens 1p-36 Deletion Journey. Thursday, 19 January 2012. Welcome to Lauren's Blog. This is our gorgeous daughter Lauren-Mary Hayden. Lauren is just gone three years old. She lives with a very rare genetic disorder known as 1P-36 deletion syndrome. 1P-36 deletion syndrome is characterised typically by delayed physical and mental development. Typically this is most apparent in areas such as growth, limited speech ability, low muscle tone, hypotonia, seizures, heart problems and distinct facial features.
raisingadisabledchild.blogspot.com
Adventures in Raising a Disabled Child: Knee Improvements
http://raisingadisabledchild.blogspot.com/2014/03/knee-improvements.html
Adventures in Raising a Disabled Child. Raising a daughter with 1p36 Deletion Syndrome. Monday, March 24, 2014. Next we headed to see a rheumatologist. After examining Whitney, he diagnosed her with knee effusion. He ordered some blood tests to determine the cause. He was leaning toward arthritis but wanted more information. So after the blood tests came back, we've been able to rule out rheumatoid arthritis. It's good to be on the road to recovery again. Thanks to everyone who's been so concerned ab...
raisingadisabledchild.blogspot.com
Adventures in Raising a Disabled Child: Willing Protector
http://raisingadisabledchild.blogspot.com/2014/03/willing-protector.html
Adventures in Raising a Disabled Child. Raising a daughter with 1p36 Deletion Syndrome. Tuesday, March 18, 2014. Three years after Whitney was born with all of her complications and challenges, Melanie and I welcomed a son to our family. We named him Liam in the hope that someday he can help be a protector for his older sister. Liam is a short form of William or Wilhelm, which means willing protector in German. Labels: Meanderings from Dad. Subscribe to: Post Comments (Atom). Summer is Coming to an End.
raisingadisabledchild.blogspot.com
Adventures in Raising a Disabled Child: Weak in the Knees
http://raisingadisabledchild.blogspot.com/2014/03/weak-in-knees.html
Adventures in Raising a Disabled Child. Raising a daughter with 1p36 Deletion Syndrome. Monday, March 03, 2014. Weak in the Knees. So what is going on with her knee? Labels: General Medical Treatment. Subscribe to: Post Comments (Atom). Carter and 1p36 Deletion Syndrome. Summer is Coming to an End. Nothing Beats A Quickie! Taylor's Adventures and that 1P36 Thing. A few of my favorites. On TV talking about Uisneach and 1p36. The Ins and Outs of 1p36 parenting. 1p36 Conference in MN and Doctor Appt Updates.
raisingadisabledchild.blogspot.com
Adventures in Raising a Disabled Child: Stressed About Birthday Shopping
http://raisingadisabledchild.blogspot.com/2014/01/stressed-about-birthday-shopping.html
Adventures in Raising a Disabled Child. Raising a daughter with 1p36 Deletion Syndrome. Wednesday, January 15, 2014. Stressed About Birthday Shopping. Whitney doesn't really care for typical age appropriate play. She really doesn't care about her clothes or hair. Although she does like books. So maybe there's an idea there. I'll have to think about this decision a bit more. But time is running out. Someone please tell me that gift giving for her will get easier someday! Labels: Meanderings from Dad.
