wasitnoti.blogspot.com
Is It Not I: Products I Love
http://wasitnoti.blogspot.com/p/products-i-love.html
Is It Not I. The LORD said to him, "Who gave man his mouth? Who makes him deaf or mute? Who gives him sight or makes him blind? Is it not I, the LORD? Exodus 4:11 On this journey of motherhood the Lord has given to me, I will stumble, I will fall, only the Lord may lift me up in my inequities. Let your unfailing love surround us, Lord, for our hope is in you alone. Psalm 33:22. Our Journey with Augustus. Bringing Home Number 6. I came across a product at Walmart recently that I LOVE! Or better yet ANY ba...
arearrangedlife.com
To SWIM: Way Beyond Water Wings | a Rearranged Life
https://arearrangedlife.com/adapting/to-swim
IPad Stylus – making one to Suit Special Needs. To SWIM: Way Beyond Water Wings. Squeeze Bottle w/ Jump-Start. To SWIM: Way Beyond Water Wings. Below is our journey to adapt water activities for our boy, Blue. If you want to read about how it happened, read Being Rearranged. So, the water is tricky to say the least. We’ve thrown a LOT of money down the drain trying to find something. In the end, we’ve figured out some reasonable solutions for:. The Pool (special needs). My boy wiggles A LOT and quickly f...
4p-supportgroup.org
Membership
http://4p-supportgroup.org/membership
Existing Member Update Form. Registry & Research. Our 2014 National Conference Sponsors. Photos & Videos. Donations & Fundraising. Ideas to Spread Awareness. You are here: Home. Informacion en Espanol con respeto al grupo de suporte de cromosoma 4p- (Wolf-Hirschhorn Sindrome) y la reunion regional; llame a Denise Barnes. A (818)468-8671 o region6@4p-supportgroup.org. Chromosomal abnormality are eligible for membership. Membership entitles parents and guardians to:. E-newsletters and organization updates,.
4p-supportgroup.org
2015 Gatherings
http://4p-supportgroup.org/2015-gatherings
Existing Member Update Form. Registry & Research. Our 2014 National Conference Sponsors. Photos & Videos. Donations & Fundraising. Ideas to Spread Awareness. You are here: Home. For the most up-to-date information, please visit our event page on Facebook too. RI, NJ, QC, NB). The Region 1 gathering will be at Laurie Hunter’s home in Jackson, NJ. On Saturday, July 25th at noon. To RSVP or for questions:. Brianna Hauck, Region 1 Director. WV, VA, FL, GA, TN, NC, SC, AL, MS, KY, MD). If you end up needing t...
4p-supportgroup.org
Membership Request
http://4p-supportgroup.org/membership/request-membership
Existing Member Update Form. Registry & Research. Our 2014 National Conference Sponsors. Photos & Videos. Donations & Fundraising. Ideas to Spread Awareness. You are here: Home. Informacion en Espanol con respeto al grupo de suporte de cromosoma 4p- (Wolf-Hirschhorn Sindrome) y la reunion regional; llame a Denise Barnes. A (818)468-8671 o region6@4p-supportgroup.org. Your First and Last Name (required). Second Parent Name (optional). Your Primary Email (required). Country, if not in the United States.
4p-supportgroup.org
Scientific Advisory Board
http://4p-supportgroup.org/for-professionals/scientific-advisory-board
Existing Member Update Form. Registry & Research. Our 2014 National Conference Sponsors. Photos & Videos. Donations & Fundraising. Ideas to Spread Awareness. You are here: Home. Amy RU.L. Calhoun, MD. Assistant Professor of Pediatrics. University of Minnesota Medical School. John Carey, MD, MPH. University of Utah School of Medicine. Salt Lake City, Utah. Agatino Battaglia, MD, DPed, DNeurol. Adjunct Professor of Child Neuropsychiatry. Pisa, Italy;. Adjunct Professor of Pediatrics. Salt Lake City, Utah;.
abmacmillan.blogspot.com
Alistair, Francis & Luella MacMillan: Gone But Not Forgotten
http://abmacmillan.blogspot.com/2015/04/gone-but-not-forgotten.html
Alistair, Francis and Luella MacMillan. Born July 8th, 2009 @ 1041 and May 25, 2012 @ 2305; Sept 4, 2015 @ 2250. Wednesday, April 15, 2015. Gone But Not Forgotten. Celebrating the lives of two uncles was what we had the privilege of during February and March. Although it was their time it was still surprising for many that two brothers passed away only six weeks apart from one another. They both lived incredibly full lives and touched many which was evident at both funerals. George, Ella, Angela, and Ken.
4p-supportgroup.org
4p- Growth Charts
http://4p-supportgroup.org/general-info/4p-growth-charts
Existing Member Update Form. Registry & Research. Our 2014 National Conference Sponsors. Photos & Videos. Donations & Fundraising. Ideas to Spread Awareness. You are here: Home. 4p- height-weight ratio growth chart. Growth charts for Wolf-Hirschhorn syndrome: 0-4years of age. T Antonius. Eur J Pediatr. 2008 July; 167(7): 807 810.). Make a Tax-deductible donation to the 4p- Support Group. Get eNews and Updates. Sign-up to received the latest eNews and Updates. View Our 2016 Awareness Day Video. Medela Spe...
4p-supportgroup.org
Donations & Fundraising
http://4p-supportgroup.org/fundraising
Existing Member Update Form. Registry & Research. Our 2014 National Conference Sponsors. Photos & Videos. Donations & Fundraising. Ideas to Spread Awareness. You are here: Home. Donations & Fundraising. Donations & Fundraising. Monetary donations can be made through PayPal. Or checks can be mailed to:. C/o Amanda Lortz, Executive Director. 1495 Forest Brooke Way, #262. Delaware, OH 43015. To learn more about Kammy’s Kause please visit www.kammyskause.org. Other fundraising activities include:. Sign-up to...
ourlittledillpickle.blogspot.com
Our Little Pickle: May 2012
http://ourlittledillpickle.blogspot.com/2012_05_01_archive.html
Wednesday, May 16, 2012. A dose of reality. This scared me to death and to be honest it made me think, "is this going to be the horrible seizure that takes him from us? It reminded me how fragile Dylan really is and it made me sad. I was once again asking, "why did this happen? Why did our child get diagnosed with this rare syndrome? Subscribe to: Posts (Atom). Make a donation directly to Dylan's trust. To read about Dylan's medical diagnosis click HERE. A dose of reality. View my complete profile.