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Williams Syndrome: Dad's Journey into the unknown

Williams Syndrome: Dad's Journey into the unknown. Monday, September 16, 2013. Comradeship or lonely furrow. It is amazing, sitting in a ward where everyone has there own problems, that people are sharing their stories. It is like the collective strength is greater than the some of its parts. In reality, no one has enough energy to actually help others beyond some very superficial aid. The true nature of the vent of this blog came home last night. While writing it, I fell asleep in the pull down bed&...

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Williams Syndrome: Dad's Journey into the unknown | williamssyndromedad.blogspot.com Reviews
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Williams Syndrome: Dad's Journey into the unknown. Monday, September 16, 2013. Comradeship or lonely furrow. It is amazing, sitting in a ward where everyone has there own problems, that people are sharing their stories. It is like the collective strength is greater than the some of its parts. In reality, no one has enough energy to actually help others beyond some very superficial aid. The true nature of the vent of this blog came home last night. While writing it, I fell asleep in the pull down bed&...
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Williams Syndrome: Dad's Journey into the unknown | williamssyndromedad.blogspot.com Reviews

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Williams Syndrome: Dad's Journey into the unknown. Monday, September 16, 2013. Comradeship or lonely furrow. It is amazing, sitting in a ward where everyone has there own problems, that people are sharing their stories. It is like the collective strength is greater than the some of its parts. In reality, no one has enough energy to actually help others beyond some very superficial aid. The true nature of the vent of this blog came home last night. While writing it, I fell asleep in the pull down bed&...

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Williams Syndrome: Dad's Journey into the unknown: April 2012

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Williams Syndrome: Dad's Journey into the unknown. Friday, April 20, 2012. Health and Happiness - what more can i ask. So back to my hopes for E.Do I hope he finds love, do I hope he does well at school, do I hope he lives independently, and has any of this changed the way I hope for C? Thursday, April 12, 2012. Birthday Boy - One Hell of a Year! So E, here is to another year of growing and learning (you too if you want). I'm sure it will start at about 04:30 tomorrow - and for once I will be very ha...

2

Williams Syndrome: Dad's Journey into the unknown: October 2011

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Williams Syndrome: Dad's Journey into the unknown. Sunday, October 9, 2011. Dark Days and Sleepless Nights. Yesterday marked 3 months since we were formally notified of Ethan's diagnosis. This has made me return to my blog which has been neglected a little - and makes me think i need to return to the original purpose for setting it up - to help me - to give me a vent. Be back more frequently in future. Subscribe to: Posts (Atom). Things i look at. Working Mum's Fight for Sanity. Chubby Chicks Run Too.

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Williams Syndrome: Dad's Journey into the unknown: February 2012

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Williams Syndrome: Dad's Journey into the unknown. Wednesday, February 22, 2012. What if we had known? Due warning: this is not an easy post to write and is not likely to be an easy post to read - but its what's been in my head - so its coming out - it has taken me three weeks to get to this. This was brought up in my mind by one of the things I look at and it got me to thinking. It was the decision we came to the first time - and we didn't need to use it, so decision remained the same. E's condition has...

4

Williams Syndrome: Dad's Journey into the unknown: Williams Syndrome Basics

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Williams Syndrome: Dad's Journey into the unknown. Williams Syndrome is a rare genetic disorder which comes with a complex set of physical and mental challenges. more soon. Subscribe to: Posts (Atom). Things i look at. Working Mum's Fight for Sanity. Chubby Chicks Run Too. Williams Syndrome Foundation UK. Our Story - WS. Notes from the holler. Comradeship or lonely furrow. A day of mixed feelings. The unfamiliar side of the familiar and our medica. We are waiting, we are waiting. Never tell me the odds.

5

Williams Syndrome: Dad's Journey into the unknown: January 2013

http://www.williamssyndromedad.blogspot.com/2013_01_01_archive.html

Williams Syndrome: Dad's Journey into the unknown. Tuesday, January 15, 2013. Episode 6: Return of the Williams Syndrome Dad. That time I really did take a long break. But, I'm back and hopefully will get back in to it. I've missed it if I'm honest, so I guess the experiment has some very non-scientific results. Moving house, the London Olympics, E's mum being made redundant and getting a new job, E's mum starting new job, finding new nanny and finally Christmas have really wiped out the back end of 2012.

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A working Mum's fight for sanity!: "Please have your 2 year old fill out this form"... Huh?

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A working Mum's fight for sanity! Friday, 13 March 2015. Please have your 2 year old fill out this form". Huh? We're currently going through the process of applying for additional help for E for when he starts school in September. He's a sweet and charming boy but he does have developmental difficulties and left to his own devices he wouldn't stand a chance of "accessing the learning". Without extra assistance I imagine his first day to go something like this:. Today I received an email entitled: "Ref: 2...

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A working Mum's fight for sanity!: Power Rangers / Spiderman / Ironman Megaforce!

http://www.workingmumsanity.com/2014/12/power-rangers-spiderman-ironman.html

A working Mum's fight for sanity! Wednesday, 31 December 2014. Power Rangers / Spiderman / Ironman Megaforce! It's been what can only be described as a full-on superhero Christmas. Unfortunately the fun has been slightly marred with the advent of E's eyes being stuck together for a few days! Dealing with a 3 year old who has conjunctivitis isn't fun at the best of times. Dealing with a 3 year old who has Williams Syndrome and major anxiety about anyone touching his face is nigh-on impossible! Was this in...

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A working Mum's fight for sanity!: Earn an honest bob...

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A working Mum's fight for sanity! Saturday, 24 January 2015. Earn an honest bob. This week I was reminded of a sketch by Micky Flanagan. In it he talks about the unwritten contract between a homeowner and a window cleaner that allows the cleaner to have a good old nose around whilst the owners pretend they can't see him. The reason this came to mind? A few minutes later, I'm properly attired and he knocks on the front door for payment. Straight faces all round (mine still a bit pink) until he turns t...

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A working Mum's fight for sanity!: All systems go again

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A working Mum's fight for sanity! Thursday, 11 June 2015. All systems go again. So the good news is that Little E has a school to go to in September! We had a call from the special needs teacher at one of the other schools we’d applied to saying that they've read his reports from top to bottom and would be delighted to have E attend. They feel they would definitely be able to support and encourage him. Labels: Early Years Planning. Subscribe to: Post Comments (Atom). Jon Silk PR Geek. Married Mum of two ...

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A working Mum's fight for sanity!: December 2014

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A working Mum's fight for sanity! Wednesday, 31 December 2014. Power Rangers / Spiderman / Ironman Megaforce! It's been what can only be described as a full-on superhero Christmas. Unfortunately the fun has been slightly marred with the advent of E's eyes being stuck together for a few days! Dealing with a 3 year old who has conjunctivitis isn't fun at the best of times. Dealing with a 3 year old who has Williams Syndrome and major anxiety about anyone touching his face is nigh-on impossible! I’m t...

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A working Mum's fight for sanity!: May 2015

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A working Mum's fight for sanity! Sunday, 17 May 2015. It's little wonder people give up. Not my usual upbeat post I'm afraid - but I'm so frustrated I need to vent! A few posts ago I wrote that we've been going through the statementing process for little E for the past 9 months. It's a very tedious form and report based system but the hope is at the end of it the Governnment will allocate him additional support at school so he can focus and learn to his full potential. This particular mail made me feel ...

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A working Mum's fight for sanity!: Dry December

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A working Mum's fight for sanity! Friday, 12 December 2014. I’m trying something new – not drinking alcohol for a few weeks before the Christmas festivities really kick off. Unsurprisingly my resolve has been sorely tested…. Pizza was ordered, delivered and eaten. The chocolate stash was gobbled up. The fridge was emptied of pop and water… and still the talks rumbled on. At 2am we thought we were close. And at 3am. And 4am. At 4.30am we polished off the cold pizza. Closer still at 5am...We finally closed...

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A working Mum's fight for sanity!: November 2013

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A working Mum's fight for sanity! Sunday, 3 November 2013. They grow up so quickly. It's an accepted wisdom that you should enjoy your children whilst they're young as they'll fly the nest before you know it. Now, I'm not debating that that is the case, but if like me you're still dealing with sleepless nights, sickness bugs and tantrums that make Attila the Hun seem like a teddy bear, it's not something that you tend to dwell on. I asked if they planned to live nearby and was told no, he wouldn't have t...

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A working Mum's fight for sanity!: February 2014

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A working Mum's fight for sanity! Saturday, 22 February 2014. Turns out lions aren't all that cuddly. The lapse in time between my last post and this one isn't due to the fact that I was almost eaten by lions (twice), or that Daddy Day Care didn't go according to plan (all three boys were alive and kicking on my return and all swearing blind that nothing had gone amis.hmm;-) . It's simply due to work being rather full on at the moment. The gallows humour was coming thick and fast, particularly as we'd re...

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Call For Your Free Consultation Today • Home Consultations Available For The Injured • Among The Nation’s Top Peer-Rated Lawyers • Fellow of The College Of Workers’ Compensation Lawyers • SE HABLA ESPAÑOL •. Workers' Compensation •. Personal Injury •. At the law office of Williams and Swee Ltd., we take pride in providing prompt, effective, quality representation and legal services to our clients. Robert E. Williams. Jean A. Swee. Steven R. Williams. And Dirk A. May. Please call Bob Williams. The College...

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A Peeko At Niko: Williams Syndrome

A Peeko At Niko: Williams Syndrome. A chronicle of discovering and coming to terms with my baby being diagnosed with Williams Syndrome. Friday, September 07, 2012. Announcing My First Book: BEAUTIFUL SORROWS. Oh, my friends! The day that I was waiting for is finally here! I’m absolutely delighted to announce that my first book, a short story collection titled Beautiful Sorrows. Will be out next month! Please read the official announcement here! Saturday, June 02, 2012. This is the answer: A weight vest.

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Williams Syndrome Ireland

Williams Syndrome Association Ireland. Connecting with WS Communities. Guidelines for Medical Professionals. Music and Williams Syndrome. How Can I Help? Music and Williams Syndrome. How Can I Help? Music and Williams Syndrome. We are a charity that provides support for families affected. By Williams Syndrome in Ireland. Williams Syndrome(WS). Is a genetic defect that affects 1 in 20,000 of the population. The Williams Syndrome Association of Ireland (WSAI). Weeklong Music/Activity camp in the Summer.

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Williams Syndrome | Information, support, personal stories, research | WS Australia

61 2 9295 8359. Guidelines for families and professionals. Guidelines for the care of adults with WS. Management of WS - A checklist. Guidelines for employers / supervisors. Guidelines for general anaesthsia. Health Care Supervision for Children With Williams Syndrome. Growth charts - Male. WS Affects 1 In 10,000 People Worldwide. Occurs In Males And Females, In Every Culture. Support Is Available. Find Out More. Do you have a story to share about Williams Syndrome? About WS A rare genetic disorder.

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Williams Syndrome – a diagnosis raises so many different questions and concerns

A Williams Syndrome Adult. FREE Leaflet & Newsletter. Williams Syndrome Questions and Concerns. WS In The News. Williams Syndrome Questions and Concerns. What is Williams Syndrome? What does a chromosome deletion mean? What are the implications for the life and health of a person affected? How can you help them? How does this affect your family? What can you expect in the future? The answers to the above questions, and many more can be found in our free. There’s lots we’d like to share with y...When it c...

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Williams Syndrome: Dad's Journey into the unknown

Williams Syndrome: Dad's Journey into the unknown. Monday, September 16, 2013. Comradeship or lonely furrow. It is amazing, sitting in a ward where everyone has there own problems, that people are sharing their stories. It is like the collective strength is greater than the some of its parts. In reality, no one has enough energy to actually help others beyond some very superficial aid. The true nature of the vent of this blog came home last night. While writing it, I fell asleep in the pull down bed&...

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Life with Layla

Thursday, September 30, 2010. Life is good:) Its been awhile.Layla has been thriving. her Cardiologist has been seeing her every three months. Her stenosis is improving! Her Pediatrician is very pleased with her and her physical therapist not only loves her but says she is on point with all of her motor skills and physical milestones! Oh how I love my Bayba. Well I'm back at work and I hate leaving her and my Husband is inSouth Amwerica in the ocean on a ship:( We Miss him very much! Layla in the Lillies.

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Williams Syndrome Pictures

Pictures Of People With Williams Syndrome. Pictures Of Williams Syndrome. Pictures Of Williams Syndrome Pictures Of People With Williams Syndrome Pictures Williams Syndrome Williams Syndrome Facts. Pictures Of People With Williams Syndrome. Pictures Of Williams Syndrome. Photos Of Children With Williams Syndrome. Picture Of Williams Syndrome. Be the first to post a comment! If you can read this, don't touch the following text fields. E-Mail : geo.webpages@gmail.com.

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Williams Syndrome Pictures | Photos

Pictures Of People With Williams Syndrome. Pictures Of Williams Syndrome. Pictures Of Williams Syndrome Pictures Of People With Williams Syndrome Pictures Williams Syndrome Williams Syndrome Image. Pictures Of People With Williams Syndrome. Pictures Of Williams Syndrome. Photos Of Children With Williams Syndrome. Picture Of Williams Syndrome. Be the first to post a comment! If you can read this, don't touch the following text fields. Comments on williamssyndromepictures.org. Robbie durand il says:.

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Williams Syndrome Smile | How one smile changed many lives–for the better

How one smile changed many lives–for the better. The Story of a Smile. What is Williams Syndrome? The Time That I Freaked Out. June 19, 2015. It’s very bizarre to fill out medical paperwork on behalf of Emmy. Since we moved a couple months ago, we’ve entered a new school system, and we’ve had to find new doctors and dentists. We’ve also signed up for extracurricular activities, like gymnastics. This all comes with a lot of paperwork…and a lot of questions. And I got nervous. I’ll tell you why&#...She see...

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williamst-louis's blog - william st-louis - Skyrock.com

Mon nom est william st-louis jaime le hockeyy.merci de venire sur mon piczo(=. 21/05/2007 at 9:47 AM. 24/02/2008 at 1:10 PM. 1:Squoi ta couleur préférer 2:Ses qui tes. Subscribe to my blog! Sa ses ma mami est cool en? SA MA MAMK EST COOL EN? Don't forget that insults, racism, etc. are forbidden by Skyrock's 'General Terms of Use' and that you can be identified by your IP address (66.160.134.3) if someone makes a complaint. Please enter the sequence of characters in the field below. Ses mon équipe préférée.