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Little Mama Murphy

Mostly this is me, rambling about family life with a 'medical mystery', an undiagnosed child; the good, the bad and the downright chaotic. Hugh's diagnosis (or lack thereof). Diary of the Ketocal kid. Monday, 17 August 2015. The life I never expected. Way back when I didn't know how disabled Hugh was or would be. Way back when I didn't realise how destructive his seizures were. Way back when I thought the doctors could fix things. I thought that once we'd sorted the epilepsy everything would be better,.

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Little Mama Murphy | littlemamamurphy.co.uk Reviews
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Mostly this is me, rambling about family life with a 'medical mystery', an undiagnosed child; the good, the bad and the downright chaotic. Hugh's diagnosis (or lack thereof). Diary of the Ketocal kid. Monday, 17 August 2015. The life I never expected. Way back when I didn't know how disabled Hugh was or would be. Way back when I didn't realise how destructive his seizures were. Way back when I thought the doctors could fix things. I thought that once we'd sorted the epilepsy everything would be better,.
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2 videos
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7 little mama murphy
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Little Mama Murphy | littlemamamurphy.co.uk Reviews

https://littlemamamurphy.co.uk

Mostly this is me, rambling about family life with a 'medical mystery', an undiagnosed child; the good, the bad and the downright chaotic. Hugh's diagnosis (or lack thereof). Diary of the Ketocal kid. Monday, 17 August 2015. The life I never expected. Way back when I didn't know how disabled Hugh was or would be. Way back when I didn't realise how destructive his seizures were. Way back when I thought the doctors could fix things. I thought that once we'd sorted the epilepsy everything would be better,.

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littlemamamurphy.co.uk littlemamamurphy.co.uk
1

Little Mama Murphy: June 2015

http://www.littlemamamurphy.co.uk/2015_06_01_archive.html

Mostly this is me, rambling about family life with a 'medical mystery', an undiagnosed child; the good, the bad and the downright chaotic. Hughs diagnosis (or lack thereof). Diary of the Ketocal kid. Thursday, 4 June 2015. How do you cope? They told me it got easier, that you learn to live in the moment, that you cherish the little things. And I had to believe them, I had to believe that one day I could be like them- positive, happy, because if it wasn't true, then what hope was there? And I remember fin...

2

Little Mama Murphy: Videos

http://www.littlemamamurphy.co.uk/p/videos.html

Mostly this is me, rambling about family life with a 'medical mystery', an undiagnosed child; the good, the bad and the downright chaotic. Hughs diagnosis (or lack thereof). Diary of the Ketocal kid. Hugh making his TV debut on The National Lottery, raising awareness for Swan UK and The National Lottery Good Causes. Raising awareness about undiagnosed genetic conditions. There's a cute pic of H in there too! A video all about how special the siblings of children with special needs are. This is me . I'm n...

3

Little Mama Murphy: The ketogenic diet: The story begins – Week One

http://www.littlemamamurphy.co.uk/2012/03/ketogenic-diet-story-begins-week-one.html

Mostly this is me, rambling about family life with a 'medical mystery', an undiagnosed child; the good, the bad and the downright chaotic. Hughs diagnosis (or lack thereof). Diary of the Ketocal kid. Monday, 5 March 2012. The ketogenic diet: The story begins – Week One. As many of you may know, Little H has started the ketogenic diet in an attempt to control his epilepsy after 5 different anti-epileptic medications have failed. Youcan read this in full here.). Ketogenicdiet tweets for the week:. Ketone l...

4

Little Mama Murphy: Meet The Family

http://www.littlemamamurphy.co.uk/p/meet-little-mamma-co.html

Mostly this is me, rambling about family life with a 'medical mystery', an undiagnosed child; the good, the bad and the downright chaotic. Hughs diagnosis (or lack thereof). Diary of the Ketocal kid. Mmmm, must be wine-o'clock again! Short-arsed, bespectacled, with hair that has varied through the years from long, curly and. Red to short straight and blonde and anything in-between (including a disastrous. Accident and a dodgy black ‘goth’ look! Rather fond of a glass of wine or three. This is me . Techno...

5

Little Mama Murphy: Diary of the Ketocal kid

http://www.littlemamamurphy.co.uk/p/diary-of-ketocal-kid.html

Mostly this is me, rambling about family life with a 'medical mystery', an undiagnosed child; the good, the bad and the downright chaotic. Hughs diagnosis (or lack thereof). Diary of the Ketocal kid. Diary of the Ketocal kid. That's Little H that is! He has currently swapped his 5 feeds a day of nutrini mulitifibre. A nutritionally complete tube feed for the dietry management of disease related malnutrition'. A very high fat, low carbohydrate, nutritionally complete vanilla flavoured liquid product'.

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SWAN Songs : April 2013

http://nanny-anne.blogspot.com/2013_04_01_archive.html

OUR FEEL GOOD FRIDAYS VIDEO. Saturday, 20 April 2013. WE ALL STAND TOGETHER…. Even if you are not local my guess is you would have heard of Stafford Hospital. You may well remember the news coverage of the Francis report regarding the lack of patient care and the tragic and unnecessary deaths that occured between 2005 and 2009. You will have seen in the news recently that the hospital has now been put into special administration. Why then this sudden downturn? In layman’s terms this means that the ...

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SWAN Songs : March 2013

http://nanny-anne.blogspot.com/2013_03_01_archive.html

OUR FEEL GOOD FRIDAYS VIDEO. Thursday, 14 March 2013. The support group I belong to Swan UK have been posting quotes and sayings that people like to use to get them through the bad times. This reminds me of my Mum, her favourite saying was. 8216;As one door shuts another one opens’. When I became a parent myself I suddenly found that I was using this very saying to my own children. They probably gave me the same reaction that I gave my Mum! Jess and her friends at nursery have taught me that all things a...

nanny-anne.blogspot.com nanny-anne.blogspot.com

SWAN Songs : July 2014

http://nanny-anne.blogspot.com/2014_07_01_archive.html

OUR FEEL GOOD FRIDAYS VIDEO. Sunday, 27 July 2014. I took a bit of a break from blogging recently. Not because I have had nothing to write about (I had plenty in fact) but I have had a lot of things going on. Now I’m back at the keyboard. So, are you sitting comfortably? One of the changes that have taken place has been me being able to work at Jess’s nursery. I have been lucky enough to get a job as a Dinnertime Supervisor (Dinner Lady to you and me! Now that’s progress. Having fun in the sun. I have tw...

gingerbreadandsunshine.blogspot.com gingerbreadandsunshine.blogspot.com

Gingerbread and Sunshine: February 2014

http://gingerbreadandsunshine.blogspot.com/2014_02_01_archive.html

Life raising a child who has undiagnosed genetic condition. Why Gingerbread and Sunshine? Thursday, 27 February 2014. The Best of the Little Things. And I frikin loved it. I loved the leg slamming, the infuriated ‘how DARE you’. You see, two year olds are irrational and troublesome little creatures. They are easily angered and should be treated with caution at all times. And that is what my little boy was doing. Being two. This got me thinking about the little things. The things that I thought were g...

oneoffordinary.wordpress.com oneoffordinary.wordpress.com

The One where Camp Amazing turns out to be… amazing | oneoffordinary

https://oneoffordinary.wordpress.com/2013/08/01/the-one-where-camp-amazing-turns-out-to-be-amazing

Living an ordinary family life with a one off child. A One Day Holiday. Sensory Hidden Treasure →. Raquo; July 2013. Raquo; The One where Camp Amazing turns out to be… amazing. The One where Camp Amazing turns out to be… amazing. August 1, 2013. As the holiday drew slowly nearer, I slowly began to panic slightly. What was I thinking? As it turned out the only things I really needed to worry about were:. Would we be able to fit everything in our car and roof box? Seriously, this is half of our stuff:.

thisisnoordinarykid.blogspot.com thisisnoordinarykid.blogspot.com

This is No Ordinary Kid: The Most Fun Appointment Ever

http://thisisnoordinarykid.blogspot.com/2014/06/the-most-fun-appointment-ever.html

This is No Ordinary Kid. Family life, raising a child with special needs after surviving Meningitis. Thursday, 5 June 2014. The Most Fun Appointment Ever. Another forgotten blog post and this was from last year. There's an update at the end. Cameron's Ipad and Ipod. The Most Fun Appointment Ever is what I think Cameron would have called our appointment at the Independent Learning Centre. Cameron got to have a play on the mini ipad and the two Samsung devices too. He really was in heaven. An update - Foll...

oneoffordinary.wordpress.com oneoffordinary.wordpress.com

Playing Catch Up | oneoffordinary

https://oneoffordinary.wordpress.com/2013/07/16/playing-catch-up

Living an ordinary family life with a one off child. A One Day Holiday →. Raquo; July 2013. Raquo; Playing Catch Up. July 16, 2013. This week I heard words that, to be honest, I’d given up on waiting to hear long ago. Three little words that astounded me. 8220;Might catch up”. When Jacob stopped receiving play development therapy from portage. We were referred to a local outreach service run by a charity called BIBIC. He might catch up? 8221; She smiled, nodded and stressed “He. This entry was posted in ...

gingerbreadandsunshine.blogspot.com gingerbreadandsunshine.blogspot.com

Gingerbread and Sunshine: July 2014

http://gingerbreadandsunshine.blogspot.com/2014_07_01_archive.html

Life raising a child who has undiagnosed genetic condition. Why Gingerbread and Sunshine? Tuesday, 15 July 2014. Musings of a Cheese and Ham Sandwich. 8217; Spilling coffee down my white top is no longer an event of biblical proportions. The thought of driving through Central London in rush hour no longer breaks me out in a cold sweat (sh*t scary got somewhat redefined around 2012). But I often need to give my life-axis a quick shove and re-align it. I need to be able to relate to people for who SATs are...

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Thursday, March 21, 2013. It's been way too long since I've done a blog entry but. I am SO excited and thrilled and relieved to FINALLY be done with the NARM CPM certification process! Last month I took the written exam and last week I found out that I passed. I can't officially use the credentials or say "I'm a CPM" and it's not really, truly official until I get the certificate. But.I know my file is complete so somewhere out there in the universe, I am a Certified Professional Midwife. Critical Thinki...

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Little Mama Murphy

Mostly this is me, rambling about family life with a 'medical mystery', an undiagnosed child; the good, the bad and the downright chaotic. Hugh's diagnosis (or lack thereof). Diary of the Ketocal kid. Monday, 17 August 2015. The life I never expected. Way back when I didn't know how disabled Hugh was or would be. Way back when I didn't realise how destructive his seizures were. Way back when I thought the doctors could fix things. I thought that once we'd sorted the epilepsy everything would be better,.

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Tuesday, October 9, 2012. I haven't shared with you a couple of our newest aquiring's. Meet, Sassy and Charlotte, oh and Hallie. We have had mice problems, bad. It comes with living in the country, as does peace and quiet, and wide open spaces. Mice must enjoy the peace and quiet and wide open spaces too. We knew what had to be done, we needed to get some barn cats. About that time a friend adopted a cute little cat who 3 weeks later gave her 7 more cute little cats. Cats were not on my radar.

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Little mama plus two. Friday, March 16, 2012. It's probably no surprise now that it's on Facebook, but Reid and I brought home our newest addition yesterday evening! His name is Wyatt Ellis Young and he was born at 5:33am on Tuesday, March 13th. Wyatt weighed in at 5lbs 6oz, sported a full head of hair, and some wickedly long fingers and toes. It's so far from where we were a year ago, believing that we were just not meant to bring our kids home from the hospital. Kara B. Young. The day i got home from t...

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