maelsleben.ch
Links
http://www.maelsleben.ch/index.php/en/links
NPC in the Media. Links and information about Krankheit Niemann Pick C diseas:. Swiss Niemann-Pick Association www.npsuisse.ch. NPSuisse on Facebook www.facebook.com/niemannpick. NPSuisse on Twitter twitter.com/npsuisse. German Niemann Pick association www.niemann-pick.de. English Niemann Pick association www.niemannpick.org.uk. American Niemannn Pick association www.nnpdf.org. German Chronic Rare Disease Alliance: http:/ www.achse-online.de. Niemann-Pick Children's Fund: http:/ www.npcfund.org. List of ...
science.nd.edu
Publications // College of Science // University of Notre Dame
http://science.nd.edu/publications
Is the magazine of the College of Science, featuring faculty and student research, education, and news across the college. The digital version of the magazine allows readers to flip through each page and experience interactive content such as videos and links that complement each story. Viewers can enlarge sections, download and pass interesting sections onto other people. Is a completely student-run publication. View the interactive Undergraduate Studies booklet. Fighting Cancer: Cancer Research at the ...
parseghian.org
Ara Parseghian Medical Research Foundation - Parseghian.org - Lysosomal Storage Disease Foundation
http://www.parseghian.org/aboutus.html
Join us in the Fight Against Niemann-Pick Type C Disease. About Niemann-Pick Type C. About the Ara Parseghian Medical Research Foundation. We miss Michael, Marcia and Christa so dearly. They- along with all the others who've lost their battles to NP-C- have given us a.legacy of hope. A Message From Cindy Parseghian. A Message From Coach Ara Parseghian. About Coach Ara Parseghian. One Family's Fighting Spirit". Donors, Sponsors and Volunteers. Ara Parseghian Medical Research Foundation. This includes a gr...
parseghian.org
Niemann-Pick Type C Disease - NP-C Genetic Disease - Lysosomal Disease - Parseghian.org
http://www.parseghian.org/aboutniemannppickc.html
Join us in the Fight Against Niemann-Pick Type C Disease. About Niemann-Pick Type C. About Niemann-Pick Type C. There will be no cure without research and no research without funding. What is Niemann-Pick disease- Description from the NIH. Cause, Symptoms, Diagnosis and Treatment. Types A and B. Niemann-Pick Type C (NP-C) disease. 2008 Ara Parseghian Medical Research Foundation.
lili-npc.de
NP C
http://www.lili-npc.de/54/NP-C.htm
Der Link zu der Seite der University of Notre Dame (South Bend, Indiana, USA), die die jährliche Parseghian Conference ausrichten - dort wird Niemann Pick sehr gut erklärt:. Http:/ niemannpick.nd.edu/. Bei Morbus Niemann-Pick handelt es sich um eine autosomal-rezessiv vererbte Lipidstoffwechselkrankheit, die zu Akkumulation von Fetten in verschiedensten Organen (Milz, Leber, Lunge, Knochenmark, Gehirn) führt. Man zählt sie daher auch zu den Fettspeicherkrankheiten (Lipidosen). Als Folge der exzes...Führe...
immovingalong.blogspot.com
And Life Goes On...An Angel and a Rainbow: Let's Make Aug 30 National Grief Awareness Day
http://immovingalong.blogspot.com/2014/04/lets-make-aug-30-national-grief.html
And Life Goes On.An Angel and a Rainbow. A blog about the grief after losing a child to Niemann Pick, Type C, a rare disease, and how I'm moving forward with my life. Friday, April 11, 2014. Let's Make Aug 30 National Grief Awareness Day. Angie Cartwright from Good Grief Worldwide. And Grief The Unspoken. As I wrote on the petition page. Please take a minute and sign the petition. You can also join the community on Facebook. And Grief The Unspoken. You may not realize how much grief you are holding.
immovingalong.blogspot.com
And Life Goes On...An Angel and a Rainbow: Feeling off
http://immovingalong.blogspot.com/2016/06/feeling-off.html
And Life Goes On.An Angel and a Rainbow. A blog about the grief after losing a child to Niemann Pick, Type C, a rare disease, and how I'm moving forward with my life. Tuesday, June 14, 2016. For the past few weeks, I've felt "off". Not quite sure what I'm feeling. Not sad, not angry, not upset, not happy. I didn't know what the feeling was. I know that I'm dreading the winter holidays this year.it's the year the pendulum swings the other way and Dan will be an angel longer than he was here. I spent 4....
immovingalong.blogspot.com
And Life Goes On...An Angel and a Rainbow: Do you read Huffington Post?
http://immovingalong.blogspot.com/2016/09/do-you-read-huffington-post.html
And Life Goes On.An Angel and a Rainbow. A blog about the grief after losing a child to Niemann Pick, Type C, a rare disease, and how I'm moving forward with my life. Thursday, September 8, 2016. Do you read Huffington Post? Huffington Post had an article recently on grief. You can read the article here. The author writes about a bunch of myths and realities of grief. Anyone who has experienced grief (which will be all of us eventually) can relate to at least a few of the situations in the article. Natio...
immovingalong.blogspot.com
And Life Goes On...An Angel and a Rainbow: Save or Spend?
http://immovingalong.blogspot.com/2016/09/save-or-spend.html
And Life Goes On.An Angel and a Rainbow. A blog about the grief after losing a child to Niemann Pick, Type C, a rare disease, and how I'm moving forward with my life. Friday, September 16, 2016. Which leads me to a question, or a few questions. Would you be able to ask for financial help? Or admit you are a saver or a spender? Would you be able to pull youself out of a financial hole without bankruptcy? Well, Lauren has a new book out, The Recovering Spender. It's one thing to be in debt and get out....
SOCIAL ENGAGEMENT