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pkufamilies.blogspot.com pkufamilies.blogspot.com

PKU Families: September 2008

http://pkufamilies.blogspot.com/2008_09_01_archive.html

Sharing Stories, Recipes, Research. Monday, September 29, 2008. Apples for a sweet New Year. From Family Friendly Recipes. 4 Apples, peeled and cored, sliced. 1 1/2 C CBF Baking Mix. 1/2 C Brown Sugar. 6 Servings/ 1 slice each. 4 PHE per serving (.2 exchanges). Tuesday, September 16, 2008. As told on our blog.). Sell wheat free/dairy free waffles which happen to be lower in pro then regular waffles. Some days are still hard for me. I find that if I start to think too much about it, I tend to get ...We ha...

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PKU Families: Welcome to the community!

http://pkufamilies.blogspot.com/2009/09/welcome-to-community.html

Sharing Stories, Recipes, Research. Monday, September 28, 2009. Welcome to the community! I just wanted to post an update for our family. We welcomed into the world our daughter, Audrey, on August 31st. Audrey now joins her older brother Owen in the PKU community. We received the diagnosis 2 weeks ago and are happy to report she has taken off on her medical formula and is still gaining weight steadily! To do it all. So, please welcome a new girl to the block. our little Audrey girl. Subscribe to: Post Co...

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PKU Families: Alphabet

http://pkufamilies.blogspot.com/2010/01/alphabet.html

Sharing Stories, Recipes, Research. Sunday, January 3, 2010. Cross posted at A Double Serving of Love. Ever since Ryan has been eating table food, we have tried to introduce "PKU language". We use words like "Low- protein" and "Phe". We don't like to use the words "can't eat" instead we say "doesn't eat". Today Ryan and I had a little conversation during lunch. Does Ryan eat chicken? Does Ryan eat meat? Ryan eats low protein foods.". Ryan eats low protein because Ryan has PKU. Can you say PKU?

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PKU Families: November 2008

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Sharing Stories, Recipes, Research. Monday, November 10, 2008. With all my pride, I post a video. For now, I leave you with a video of her healing progress. Katy has just turned three years old. I truly believe in the healing power of laughter. We all deserve a chuckle. After all, we're all "normal". Toodles, PKU community. I love you all. Thanks for the friendship. Subscribe to: Posts (Atom). To become a blog author, send an email to heidisrecipes at hotmail dot com. We'd love to hear your stories!

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PKU Families: May 2009

http://pkufamilies.blogspot.com/2009_05_01_archive.html

Sharing Stories, Recipes, Research. Wednesday, May 27, 2009. If I may toot my own horn. A while back, I made a video explaining PKU.  Well, there was a European organization for rare diseases that was running a video competition.  I thought I would go ahead and submit my video (even though I was a bit embarrassed to show them my goofiness).  If anything, my video was surely different- and PKU would get some attention.  . Well, guess what? Yep  The article is HERE.  . Subscribe to: Posts (Atom).

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PKU Families: Food for Thought

http://pkufamilies.blogspot.com/2010/01/food-for-thought.html

Sharing Stories, Recipes, Research. Sunday, January 3, 2010. A good friend of mine, Beth over at Misadventures, Rants and Tidbits. Recently posed this question to me:. Out of curiosity, given the traditional high-pro foods normally served on T-day, what do you guys do or plan to do for your family meal now? That would be a stupendous, informative post! Well, ask a question and you shall receive an answer! When we learned of Ryan's PKU diagnosis. If we go to a party, will there be food for him to eat?

pkufamilies.blogspot.com pkufamilies.blogspot.com

PKU Families: February 2009

http://pkufamilies.blogspot.com/2009_02_01_archive.html

Sharing Stories, Recipes, Research. Friday, February 20, 2009. ANY ADVICE FOR FOOD STORAGE WOULD BE A HUGE HELP FOR ME AND EVERYONE ELSE. Monday, February 2, 2009. Preaching the the Choir. I know, I know. We all know what PKU is. Still, I made a video explaining it a bit. If you follow me at all, you know Im a bit of a goof ball- but If you want to share the link its here:. Http:/ www.youtube.com/watch? Subscribe to: Posts (Atom). Canadian PKU and Allied Disorders. PKU for Life Forum. Life with the Crisps.

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PKU Families: July 2011

http://pkufamilies.blogspot.com/2011_07_01_archive.html

Sharing Stories, Recipes, Research. Saturday, July 23, 2011. Subscribe to: Posts (Atom). To become a blog author, send an email to heidisrecipes at hotmail dot com. We'd love to hear your stories! Canadian PKU and Allied Disorders. PKU for Life Forum. Life with the Crisps. For Me This Is Heaven. Simple template. Powered by Blogger.

pkufamilies.blogspot.com pkufamilies.blogspot.com

PKU Families: PKU (low protein) pumpkin pie

http://pkufamilies.blogspot.com/2012/11/pku-low-protein-pumpkin-pie.html

Sharing Stories, Recipes, Research. Sunday, November 25, 2012. PKU (low protein) pumpkin pie. Its my elementary in good time always to transmit on this forum,neutral wannat make some friends here.if its not allowed to record on this board,gladden erase this thread.Nice to adjoin you! Url=http:/ www.sexybags.info/rssrock.html]My designer handabgs[/url]. November 28, 2012 at 8:15 AM. Falcons Tony Gonzalez Jersey. Arian Foster Elite Jersey. December 17, 2012 at 11:56 PM. Did you [url=http:/ www.onlineca...

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北京大学总裁研修班-报名中心!

工商管理硕士(MBA),中国著名企业管理专家,中国清华大学、北京大学 研究院EMBA, 客座教授,中山大学EMBA . 版权所有 北京大学高层管理培训招生信息网 地址 北京市海淀区颐和园路5号.

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www.PKU.es - Inicio - Todo sobre cómo enseñar y aprender sobre PKU

Qué es la fenilcetonuria? El grupo de investigadores. Salvar al Planeta PKU. Cómo fue la promoción de Save the PKU Planet. Salvar al Planeta PKU. Con la PKU en los talones. Y entonces…, me hice nutricionista. PKU en la Nube. La web www.pku.es. Nuevo PKU juego ya disponible! Ya están las ilustraciones de ` A colorear! PKU en la Nube. La colombiana Joan Dayanna Pardo. Colaboradora de nuestra web, va a llevar el blog: PKU en la Nube. Ya puedes jugar a PKU Asteroid! Son la misma web! Para padres y niños.

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Pargas Kungörelser | På allas läppar

Tips & feedback. Om oss och kontaktinfo. Idrottsakademin lockade ett dussin. Framsteg i utredningen av Österbybranden. Lindbloms webbserie End Unsung fick pris. Regissören och filmmakaren Rolf Lindbloms webbserie End Unsung fick pris för bästa filmfotografi på Hollyweb-festivalen. Det är politiker och politiska grupperingar som nu går ut och tar skulden för chefernas alltså tjänstemännens räkning. Piffen vann sin premiär, Wolves kryssade. Regionförvaltningsverket har mycket att anmärka på. Verket har tag...

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Getphpbb.com

The domain getphpbb.com may be for sale. Click here to make an offer or call 877-588-1085 to speak with one of our domain experts. This domain may be for sale. Buy this Domain.

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Home - PKU

We are the PKU Association of Ireland. Our purpose is to help and support those affected by PKU, and other metabolic disorders that can be managed just like PKU. We share tips, advice, stories, and recipes and generally support each other as we learn about this rare condition, helping to make it as easy to manage as possible. We want this site to be a useful resource for all our PKU families and individuals, so please do get in touch if you have questions, are able to help, or have something to share.

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metaX - Institut für Diätetik GmbH - Whats new

XPhe Infant Mix LCP. XPhe Kid and XPhe Kid Sachet. XPhe Junior and XPhe Junior Sachet. XPhe Advance - Advance Sachet. XPhe jump 10 and 20. XPhe for 2 LC. ZeroVIL Infant Mix LCP. ZeroMet Infant Mix LCP. ZeroTVMI Infant Mix LCP. ZeroTP Infant Mix LCP. Wednesday, August 12, 2015. News - low protein. Ernährung von Kindern mit chronischer Niereninsuffizienz. Dietary management in children with chronic renal failure). 9th dietetic-medical interaction symposium. Prof Dr. Müller-Wiefel and Gabriele Holst. Accord...

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PKU Félagið á Íslandi – Félag um arfgenga efnaskiptagalla

PKU Félagið á Íslandi. Félag um arfgenga efnaskiptagalla. Fyrir 10 Frá Erlu 1 líter Menkomel rjómi (fæst í m.a. í Hagkaup) (0.7g prótein/100g) (350 Phe) 1 stór poki bismark brjóstsykur (160g? 1 poki dökkur súkkulaðispænir (frá Mónu) (150g) (330) Hakkið brjóstsykurinn í matvinnsluvél þar til hann er nánast orðin að dufti. Þeytið Menkomel rjómann. Hrærið öllu saman og setjið í box. Eitt stórt… Halda áfram að lesa Bismark ís. Ferskt ávaxtasalat með myntu. Ávaxtasalat með bræddu súkkulaði. Fyrir 4 2 Charlott...

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